I had my surgery in Columbia, Missouri...I would not recommend my surgeon, as he is now dubbed Dr. Ass----. : ) However, I asked about
surgeons in Missouri on j-pouch.com and a gentleman told me about
a woman doctor in Kansas City who was really wonderful and had great bedside manner. My doctor is a shmuck. I told him so yesterday at my first follow-up appointment. I'm hesitant to go to my second but my family is on me to be responsible...even if it is with an ass. : )
Many people travel to Chicago for their surgery and there are a few other
locations that get rave reviews. I know the Mayo Clinic is wonderful as well. My great-uncle is a retired surgeon who specialized in abdominal surgeries and he was going to get me in with his partner, but if I followed through with the surgeon in Columbia then my surgery would have been sooner...and at the time I liked my surgeon...his incompitence became known only after my surgery (which he did do a good job with)...it's just his pain management practices that suck.
Anyway, today was the first day I've taken one or two vicadin. And today it's been two weeks since my surgey! : ) Whoo-hoo!!!
Today I've ate jumbo smarties and mustard!!! Not together. : ) I eat sour cream almost every day b/c I can! I had syrup with my breakfast and no trouble!!! I also went out for breakfast with my husband. We ran an errand afterward and not once did I think about
a bathroom. It makes me emotional thinking about
it. My outings are not controlled by the colitis. I didn't stress or sweat b/c of cramping and severe abdominal pain. I 'enjoyed' the time with my DH and was able to focus on him 100%. Do know how wonderful that feels? You guys, having this surgery has given me back far more than I ever knew I had lost. I hadn't realized my focus was not fully on those around me...until now. I find myself being more attentive to my loved ones and able to make dinner dates without a thought. It's unbelievable. I am looking forward to our dinner date with some friends tomorrow night...and we're going to 'their' house! All I need to do is pack my needs for my accessory and I'm good to go! I mean...serioiusly...I ate MUSTARD people!!!
: ) Okay...I'm done bragging. : ) It's just so amazing because every day I'm learning new perks to having a total colectomy. *happy sigh*
I really do not want to offend anyone, and I'm not trying to push anyone to surgery. But please know that there is a life...an amazing life...afterward, and there is always 'hope'! I hadn't realize I had lost my hope until we decided on the surgery and it was scheduled. : ) My hope was renewed and even through all my fears and apprehensions...I knew my fight with UC was over.
You are all in my thoughts...and please email me if you want to speak privately about
the surgery or any questions or apprehensions you may have.
: ) Robin
28 year old Mommy of a 1 year old and Wife for almost 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
"Your mind is like a parachute, it only works when it is open."
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!