I just wanted to give you a little update regarding my past couple weeks without UC. : )
Prior to surgery I was very limited...in extreme amounts of pain...and failing all medications. The surgery pain has sucked, but I had a c-section and my proctocolectomy was done laparscopically so the recovery of this is nothing compared to my prior surgery.
Anyway, it's been an adjustment have an ileostomy, but to be honest, it's welcomed b/c I don't have UC anymore. : ) I don't feel the pain...I don't have issues with running to the bathroom...I'm not bleeding anymore. I mean sure, my bootie is a little sore b/c it's ALL gone, but nothing...NOTHING...has made me feel this good in the past two years. I had UC for less than two years actually...and that was enough. It was like a vicious monster that set it's sites on me and my immune system and attacked! I really didn't have much of a break that entire time.
I'm off Asacol (which I was taking 2400mg twice a day) and no longer needing Remicade (yea!), and was on 40mg of prednisone for almost that entire time and am now down to 5mg and will be completely off by the start of next week! My prilosec will be once a day after the prednisone has stopped, and it's all just been so amazing!
I realize that many of you are finding relief and positive change with diets, nutritional changes, different forms of treatments and suppliments, but none of that would have made any difference to me b/c of the severity of my UC. I have learned on this forum that UC comes in so many different steps and stages. Mine just happened to be big and bad and I didn't want to allow it control any more. : )
So, anyway, prior to my surgery I was scared and upset with the fact that I had UC and that it wasn't reacting to any of our treatments. I was broken hearted and just completely exhausted from it all. You all helped give me hope and gave me that little extra umph that I needed to make it through the day at times. My recovery has been up and down (as days when I feel good I want to do things so I'm stupid and make dinner or something and end up spending the next day in bed b/c of the pain *sigh*), and I am just now trying to make more of an effort to get online and share my experiences and catch up with everyone else!
I hope you are all doing well and are remaining to find treatments that work for you!!!
Thanks again for all your support and words of encouragement!!!
: ) Robin
28 year old Mommy of a 1 year old and Wife for almost 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
"Your mind is like a parachute, it only works when it is open."
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!