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UCgoaway
Regular Member


Date Joined Feb 2009
Total Posts : 43
   Posted 2/19/2009 12:44 PM (GMT -6)   
I was just diagnosed in January with left sided UC (GI said I had it for years, I just lived with it).  The prednisone and colazal have cleared it up pretty much.  My question is if I should request Rowasa or the foam?  My poo comes out as if it were pressed through a Play-Doh mold.  Does this mean my rectum is still inflammed?  The poo is soft and formed.  Thanks in advance.
 
Current Regimen:
 
30mg Pred (tapering)
3 x 3 Colazal
BuSpar for GAD
Forvia multivitamin
Align Probiotic
Turmeric, Boswellia, Fish Oil, and Milk Thistle (for my liver)

PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 2/19/2009 1:20 PM (GMT -6)   
First of all welcome to this forum. I am glad to know that you are taking turmeric and boswelia for your UC. Infact I have been suggesting others too to take this as it is quite effective. I would appreciate if you could inform us about your experience with turmeric and boswelia. Infact I had posted lot of information on this forum under PSA.Delhi, Haldi, Turmeric, Boswelia and Sallaki. The information may be of some use to you. Wish you good health always.

45 years Male
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
on Combiflam, Multivitamins and restricted diet.
Tried Sallaki/Turmeric/Homoepathy/Allopathy/Chinese/Unani/Ayuvedic/Yoga before going for surgery


UCgoaway
Regular Member


Date Joined Feb 2009
Total Posts : 43
   Posted 2/19/2009 1:25 PM (GMT -6)   
I'm not sure exactly which one did it, but within two days of taking turmeric and boswellia, the blood virtually disappeared and my BM's were down to 2 a day.

PSA.Delhi - How long do you recommend taking the turmeric and boswellia? Is it safe long-term?
Current Regimen:
 
30mg Pred (tapering)
3 x 3 Colazal
BuSpar for GAD
Forvia multivitamin
Align Probiotic
Turmeric, Boswellia, Fish Oil, and Milk Thistle (for my liver)


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 2/19/2009 2:04 PM (GMT -6)   
How do you take the turmeric and boswellia? Are both available (and effective) in capsules? What is the doseage?
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


UCgoaway
Regular Member


Date Joined Feb 2009
Total Posts : 43
   Posted 2/19/2009 2:36 PM (GMT -6)   
I take capsule supplements. I got them from the VitaminShoppe. I'm not sure of the dosage, I just follow the directions on the back of the bottle. Just make sure you get "standardized" capsules.
Current Regimen:
 
30mg Pred (tapering)
3 x 3 Colazal
BuSpar for GAD
Forvia multivitamin
Align Probiotic
Turmeric, Boswellia, Fish Oil, and Milk Thistle (for my liver)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/19/2009 3:20 PM (GMT -6)   
I'm trying the Curamin, which has it...but I think it is upsetting my stomach...I'll try it a little while longer.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Probiotics (Ultimate Flora, 50 billion). Doing much better, but still having some bad days. 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 2/20/2009 1:52 AM (GMT -6)   
UCgoaway said...
My poo comes out as if it were pressed through a Play-Doh mold. Does this mean my rectum is still inflammed? The poo is soft and formed. Thanks in advance.


Is the poo thin (narrow)? My poo was narrow when my colon was inflamed. I think when I was coming out of my flares, the blood would stop first, and then the poo would gradually get wider.

Turmeric works for me too. I continue to eat mild curries every few days when I'm not flaring. I also eat a lot of spinach, which is also good for calming inflammation. And I drink a herbal tea that has many anti-inflammatory properties (Tension Tamer from Celestial Seasonings). I also take Probiotics. I guess you could say these are my maintenance medicines.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 2/20/2009 3:19 AM (GMT -6)   
ABSOLUTELY request rectal meds...(Rowasa to start if you're in the US. The foams in Canada and the US would only be steroid).you really should have been on them previously..

Welcome to the forum!
quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite..back to nightly (Jan 22)..tapered too fast
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


UCgoaway
Regular Member


Date Joined Feb 2009
Total Posts : 43
   Posted 2/20/2009 6:43 AM (GMT -6)   
Peetey - I read somewhere that turmeric can upset ones stomach. Can you decease the amount?

Subdued - yes! They are pencil thin and sometimes come out flat??? My 3 year olds are bigger than mine! Lol

Quincy - my GI previously said I didn't need them because the colazal supposedly reached all the way??? Is this not true? I really think I need the rowasa.
Current Regimen:
 
30mg Pred (tapering)
3 x 3 Colazal
BuSpar for GAD
Forvia multivitamin
Align Probiotic
Turmeric, Boswellia, Fish Oil, and Milk Thistle (for my liver)


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 2/20/2009 12:14 PM (GMT -6)   
I just got some Boswellia 5Loxin NSI brand from Vitacoast, they are small capsules, take two a day for normal usage. I hope they help, rather not have to take so many drugs if I can help it.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 2/20/2009 1:03 PM (GMT -6)   
UCgoaway said...
Quincy - my GI previously said I didn't need them because the colazal supposedly reached all the way??? Is this not true? I really think I need the rowasa.
It's possible some may reach, but I certainly wouldn't depend on that.  You should say you want to try them, because if they work, that will have you feeling better.  It's also a way for you to deal with  flares more early.
 
Both ends approach isn't a new concept...personally, I think some doctors don't get that.
 
quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite..back to nightly (Jan 22)..tapered too fast
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


UCgoaway
Regular Member


Date Joined Feb 2009
Total Posts : 43
   Posted 2/20/2009 1:13 PM (GMT -6)   
Thanks Quincy - I gave my GI a call and they are going to call in a Rx for Rowasa. I'll let you know how it goes.
Current Regimen:
 
30mg Pred (tapering)
3 x 3 Colazal
BuSpar for GAD
40mg Protonix
Forvia multivitamin
Align Probiotic
Turmeric, Boswellia, Fish Oil, and Milk Thistle (for my liver)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 2/20/2009 1:23 PM (GMT -6)   

I know I ask this before but maybe it got lost...

I agree about rectal meds.  You know I am on prednisone and maybe later on 6MP.  However, most of my "problems" are rectal.  I would like to use at least occasional rectal meds.  I have used Canasa, Rowasa and hydrocortisone enemas - what else is there for me who can't tolerate mesalamines and the hydrocortisone enemas caused me to bleed more.

Any ideas?  I am talking with doc next week when I go to 20 mg.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only few cm. left to heal in rectum - tried Proctofoam for weeks - no luck.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Tried hydrocortisone for two weeks with no change.
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 
 
 
 
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 2/20/2009 3:07 PM (GMT -6)   
     My GI suggests the Cort enemas AND Colazal while flaring.  Off the enemas since Nov but still on Colazal and 6MP.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 3/25/2009 1:10 PM (GMT -6)   
UCgoaway said...
I'm not sure exactly which one did it, but within two days of taking turmeric and boswellia, the blood virtually disappeared and my BM's were down to 2 a day.

PSA.Delhi - How long do you recommend taking the turmeric and boswellia? Is it safe long-term?

Oops my apologies that I missed your message and could not reply earlier. Well there are no side effects to my knowledge in so far as Turmeric is concerned. It is very useful and can be taken long term because it is the most effective antiseptic/anti oxidant and prevents cancer too. In so far as Boswellia is concerned, so far I have not seen any serious side effects. I have used both of them for years and found them to be very effective.
In case you need any further information, please feel free to ask.

45 years Male
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
on Combiflam, Multivitamins and restricted diet.
Tried Sallaki/Turmeric/Homoepathy/Allopathy/Chinese/Unani/Ayuvedic/Yoga before going for surgery


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/25/2009 1:30 PM (GMT -6)   
Yes, play-doh pooh can be an indication of some narrowing going on inside, rectal meds are usually very helpful, so is fibre supplements.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)

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