stressed need help to avoid hospital

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coprhead
Regular Member


Date Joined Feb 2009
Total Posts : 42
   Posted 2/19/2009 3:49 PM (GMT -6)   
finally got to see the doc this afternoon he is concerned with my condition:the bloody D 7 to 10 times,severe left sided pains,lower back pains,just feel down right awful and sent me to get labs done to check med levels in blood. not sure why? he then told me to take zanax along with reg meds, was upped to 30 on pred yesterday,along with oxycodine for the pain. he informed me that if no changes in my condition by noon on the 20th he wants to admit me back into the skull hospital skull . this freeked me out I really dont want to go back for another stay. I have been drinking ensure for two days to try to get flare under controll. It seems nothing I do will help. At this point I am willing to try anything! I feel so down I just dont think I can keep fighting this!
Jody
Age 34-Male-South Carolina
Diagnosed 02/08 Severe UC
Colazal Predinsone Entocort Lialda-No Help
Mesalamine-Little help
Remicade-Second infussion-still no change


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 2/19/2009 3:51 PM (GMT -6)   
Are you using the rectal meds?
Mamas Boys (aka KTM)
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!


coprhead
Regular Member


Date Joined Feb 2009
Total Posts : 42
   Posted 2/19/2009 3:55 PM (GMT -6)   
i still have meslamine but had very little responce while using daily

Jody
Age 34-Male-South Carolina
Diagnosed 02/08 Severe UC
Colazal Predinsone Entocort Lialda-No Help
Mesalamine-Little help
Remicade-Second infussion-still no change


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 2/19/2009 4:10 PM (GMT -6)   
I know - but together with the Remicade it might be what you need. They did nothing for me before the Remicade - but after I was on Remicade and I was using the enemas twice a day I got into remission. And have been there ever since.
Mamas Boys (aka KTM)
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!


coprhead
Regular Member


Date Joined Feb 2009
Total Posts : 42
   Posted 2/19/2009 4:15 PM (GMT -6)   
Ok thank you I will give it another try tonite.

Jody
Age 34-Male-South Carolina
Diagnosed 02/08 Severe UC
Colazal Predinsone Entocort Lialda-No Help
Mesalamine-Little help
Remicade-Second infussion-still no change


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/19/2009 10:12 PM (GMT -6)   
I would try at least 40 mg of prednisone before I would give up and be hospitalized.
I get worse when I don't eat enough, are you sure you can't get something solid down?
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Probiotics (Ultimate Flora, 50 billion). Doing much better, but still having some bad days. 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/19/2009 10:57 PM (GMT -6)   
You might want to stop drinking the Ensure. This is horrible, for some, while in a flare. I know when I tried it, they about killed me. Too many sugars in it I think. Try to stick to a more bland, low residue diet such as chicken, fish, rice, very ripe bananas. If you can't keep solid food down, resort to babyfood.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 2/20/2009 10:55 AM (GMT -6)   
I don't understand what Xanax has to do with your flare? I take it occassionally for anxiety, it takes away the urgency I feel when I'm going to leave the house but it doesn't actually do anything to heal the UC. Also, it's very addicting and should be used with caution, especially if you're taking oxycodine too. I would question your GI about this. Instead of the Rowasa enemas, maybe you could try the steroid ones. You might have better luck.
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
75mg 6-MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 2/20/2009 12:07 PM (GMT -6)   

I would like to comment on the Xanax.  I was taking small doses for anxiety before diagnosed.  When put on prednisone 40mg. my NP told me to take max dose of Xanax to help with the moody/mental part of taking prednisone and relax me more.  It, of course, does not heal but STRESS is so much a factor in flaring (in my opinion) in my case - it is helping  a lot.  I can't take the narcotic pain relievers so I don't know the consequences of them together but my husband takes Xanax for anxiety, Zoloft for depresion AND Norcor or pain due to back injury and post traumatic stress and is doing just fine at age 73.  No doubt he is addicted but that goes along with it.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only few cm. left to heal in rectum - tried Proctofoam for weeks - no luck.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Tried hydrocortisone for two weeks with no change.
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 
 
 
 
 
 


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 2/20/2009 12:29 PM (GMT -6)   
Thanks for your insight Elaine. I love how Xanax helps with my anxiety, I wish it did more for my bleeding. lol. :)
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
75mg 6-MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


Mtnhawk
New Member


Date Joined Feb 2009
Total Posts : 16
   Posted 2/20/2009 2:32 PM (GMT -6)   
I too almost went to the hosp. I Knew what it was and went to my DR. I told her to put me on pred. I know I dont like the side effects, but I dont have insurance anymore. She tried to start me on 10mg. after a week I told her I need at least 40 too start. That has helped a bit already. Only been 2 days. So we will see. She also gave a pres. for Asacol but I have to wait until Cobra kicks in. So darn expensive. Sux being laid off, that's what started all this.. Been in remission for several years before the lay off.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 2/20/2009 2:39 PM (GMT -6)   
     So sorry to hear you are suffering so.  Has your doctor ever mentioned taking 6MP along with the prednisone?  Was wondering why you started the Remicade before trying Imuran or 6MP.  I also have to start my prednisone dosage at 40 mgm before it does any good.  Doctor tried starting me off at 30 mgm several times last year but I would always relapse when weaned off.  Not until he started the pred at 40 mgm with a 10 mgm per week taper that I was FINALLY able to get off the drug and into remission.
     I also agree with Sherry.  I couldn't drink that Ensure while flaring.  Had to stick to a low residue diet.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 2/20/2009 2:44 PM (GMT -6)   
Christine - I actually started Remicade before 6mp because it works faster - and I was trying to avoid a hospital stay.
Mamas Boys
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 2/20/2009 2:56 PM (GMT -6)   
     Mamas Boys....I am not a candidate for Remicade.  I was exposed to the TB virus while working in a lab back in the 60's and tested positive for it on the skin test.  I do not have active TB and my chest xray was negative but the doctors say it is dormant in my system and Remicade could activate the virus and it could have fatal results.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/20/2009 3:52 PM (GMT -6)   
Mtnhawk said...
I too almost went to the hosp. I Knew what it was and went to my DR. I told her to put me on pred. I know I dont like the side effects, but I dont have insurance anymore. She tried to start me on 10mg. after a week I told her I need at least 40 too start. That has helped a bit already. Only been 2 days. So we will see. She also gave a pres. for Asacol but I have to wait until Cobra kicks in. So darn expensive. Sux being laid off, that's what started all this.. Been in remission for several years before the lay off.
Will the COBRA benefits in the stimulus bill help you? I think they are supposed to pay 65% but I don't know when it starts. Well, that's another thread, I'll check into it.

49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Probiotics (Ultimate Flora, 50 billion). Doing much better, but still having some bad days. 


coprhead
Regular Member


Date Joined Feb 2009
Total Posts : 42
   Posted 2/20/2009 4:18 PM (GMT -6)   
well thanks for all the info doc was trying to keep me out of the hospital due to my request I do not think at the hospital my insurance covers you get care worth a poop on the weekends. Been there alot last year!! I am not doing much better but got enought meds to hold out till monday morning. he gave me the meds to try to get enough comfort till monday morning. I will have a list of questions i get from my fellow UCrs for monday mornin before hospital or new treatment he really wants me to hang in there to get my third infussion of remicade it is really conforting knowing all will try to help if they can this site is all i have due to not knowing anyone else that has experienced UC thank yall bunches 

Jody
Age 34-Male-South Carolina
Diagnosed 02/08 Severe UC
Colazal Predinsone Entocort Lialda-No Help
Mesalamine-Little help
Remicade-Second infussion-still no change


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/20/2009 4:32 PM (GMT -6)   
Hope you feel better and have a good relaxing weekend.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Probiotics (Ultimate Flora, 50 billion). Doing much better, but still having some bad days. 


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/20/2009 8:27 PM (GMT -6)   
I was told by my doctor that Remicade can take about three infusions before a change can be seen, and some on this forum say about 5. I saw some positive change with the first two, but then quickly regressed back into a constant flare. I went 8 weeks between infusions one time and that was horrible...we tried six before my 4th infusion and then four weeks before my 5th, which was just a desperate attempt to give me any kind of relief prior to surgery.

As for the stress part...definitely try working on maintaining your mental health. Stress is a HUGE contributor to flares and the severity of them once they're active. Medication is a wonderful way to help maintain that stress and evil thoughts. : ) I like Paxil and if that's not enough then Effexor is pretty amazing!

As for the foods...I really stayed away from high lactose dairies, fiber and spicy foods. Along with nondigestable foods such as raw veggies, lettuce, corn, broccoli, anything with small seeds...oh and sugar. : ) What did work was rice based foods...rice milk, rice cereal...just rice in general. : )

I wish you the best of luck!
: )  Robin
 
28 year old Mommy of a 1 year old and Wife for almost 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
"Your mind is like a parachute, it only works when it is open."
-Unknown
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!

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