Anyone NOT change their diet?

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UCgoaway
Regular Member


Date Joined Feb 2009
Total Posts : 43
   Posted 2/20/2009 11:31 AM (GMT -6)   
My GI told me I didn't have to change my diet.  I still eat like I did before.  I have not found any foods that bother me other than artificial sweeteners. 
 
Has anyone not changed their diets?  Is this irresponsible or should I not worry because it's not making things worse?  I only have BM's 2 -3 times now.  5-8 before. 
Current Regimen:
 
30mg Pred (tapering)
3 x 3 Colazal
BuSpar for GAD
40mg Protonix
Forvia multivitamin
Align Probiotic
Turmeric, Boswellia, Fish Oil, and Milk Thistle (for my liver)


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 2/20/2009 11:50 AM (GMT -6)   
my consultant told me the same thing, but i have seen others that have said to try a food diary as everyone is different - some people find certain foods really agravate their UC. I have done a food diary myself and discovered certain foods that dont help - its well worth doing!

22 year old female, from the UK
 
Diagnosed with Ulcerative Proctitis Jan '08
Hospitalised Jan '09 for IV Hydrocortisone steroids - had no effect!
 
Currently taking daily: 9 x 400mg Asacol tablets, plus Fybogel fibre supplement and vitamin tablet.


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 2/20/2009 11:53 AM (GMT -6)   
My GI told me when flaring to stay away from fruits & vegies. After that he said I could eat anything that doesn't bother me.
Mamas Boys
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 2/20/2009 11:54 AM (GMT -6)   
I've pretty much not changed my diet....but I didn't really eat a lot of junk food or make bad decisions with my main meals. I did have snack foods, however, mostly chocolate and have definitely cut that way back (unless I'm on a binge or something..lol).

I don't follow the no carbs fungus diet.
I don't follow anything that tells me to not eat something because it's bad...

My diet may not be as others' anyway, but in general it's pretty basic and balanced. I do have to add more fruit and veggies. I prefer veggies cooked, I will eat raw carrots and salad...etc. Never raw cruciferous veggies.

I'm going to start adding more lentils/beans..etc. cooked of course., but I'll take beano because I'll eventually have lots of gas.

I don't eat whole grain breads except on occasion. I have a bakery rye bread.

I have protein with every meal..I don't do protein drinks or bars.

I don't have alcohol except a teeny glass of wine on occasion.

I drink coffee daily.
 
I limit high fat meals, and make choices in that favour.

Diet is subjective, and eating for gut comfort by keeping your colon exercised, your body nourished and producing a good stool is a difficult thing to do when one is flaring.

I do somewhat adjust when I'm flaring...say I won't have as much coffee if my butt is throbbing and I wouldn't have as much salad or fruits. My flares don't last long once I've increased the rectal meds..

Hope this helps.

quincy


*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite..back to nightly (Jan 22)..tapered too fast
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Howright
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 2/20/2009 12:13 PM (GMT -6)   
 
I haven't really changed my diet the only thing I'm doing different is trying to eat things in moderation so that no one thing can cause irritation.  I should also note though that between flares I'm pretty much in remission, I just have minor tummy troubles (gas & gas pains) but no bathroom trips, etc. 
 
I don't believe that there is one certain food that triggers my problems.  When I look back on flares, it's usually a combination between some sort of food irritatant (in larger quantities) and stress.  The first time I flared I had just changed to a more vegetable based diet, had a stressfull event and flared.  The second time I had overdone it on chocolate at Halloween time, had a stressful event and flared. 
 
I would suggest if you are having some problems keep a diary to figiure out what's bothering you, if not than just eat things in moderation and not too much of any one thing and you should be good.  smilewinkgrin


 
Diagnosed January 07 - but realize I've been living with minor flare-ups for 10+ years. 
 
Asacol 3 pills/3 times a day.
 


UCgoaway
Regular Member


Date Joined Feb 2009
Total Posts : 43
   Posted 2/20/2009 12:20 PM (GMT -6)   
Thanks for all the info. My GI suspects that stress (my newborn was in the hospital with RSV), antibiotics (I was on them for bronchitis and a sinus infection), and NSAID's (I was taking 800mg of Ibuprofen like candy) caused my flare...these three events happened within 3 weeks of each other. So I guess that's why he doesn't think my diet plays a role in my UC.

I will keep a diary and see if I can connect anything though.
Current Regimen:
 
30mg Pred (tapering)
3 x 3 Colazal
BuSpar for GAD
40mg Protonix
Forvia multivitamin
Align Probiotic
Turmeric, Boswellia, Fish Oil, and Milk Thistle (for my liver)


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 2/20/2009 12:25 PM (GMT -6)   
I haven't changed my diet. The doctor that prescribed LDN for me wants me to try a gluten free diet. I really have no desire to change my diet since I never notice food effecting me. I am always able to eat what I want without a change in my UC symptoms.
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
LDN - 2/17/09 1.5 mg.
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 2/20/2009 12:25 PM (GMT -6)   

Only suggestion was when bleeding my NP told me low fiber/lowfat until healed.  I eat what I did before - no raw veggies or fruit - but I have had IBS so many years I have to be careful anyway or cause diarrhea.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only few cm. left to heal in rectum - tried Proctofoam for weeks - no luck.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Tried hydrocortisone for two weeks with no change.
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 
 
 
 
 
 


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/20/2009 12:29 PM (GMT -6)   

i was diagnosed with crohn's 20 yrs ago...recently dx changed to uc...huh???

anyway i'm a slacker with diet...i eat just about anythin i want to when i'm feeling well...knowing somethings work better than others...sometimes i can't avoid that fried food or burger though...

no that i'm flaring i am trying to eat better and avoiding the other foods of course.

i just never really noticed too much differance eating when i'm well.

that said i do think that diet plays an important role and should be a big part of all of our lives.

it's just really hard sometimes...lame excuse i know.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 2/20/2009 12:31 PM (GMT -6)   
I avoided highly spiced, fatty and high fiber foods when I was flaring. Other than that, I tried virtually every diet modification known to man in the years of my flare. None of them made any difference in my symptoms. So I eat what I want, still keeping the fatty foods down and the high fiber foods to a moderate amount. Wednesday I had bean soup with no problem. When I was flaring really bad, I could drink a glass of water and have to run to the bathroom.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


UCgoaway
Regular Member


Date Joined Feb 2009
Total Posts : 43
   Posted 2/20/2009 12:44 PM (GMT -6)   
I'm so glad to hear that there is a lot of you guys out there that are like me. I was so afraid I was doing something wrong (even though I feel good).

I just started drinking Peppermint Tea after a heavy meal and I find out it helps me digest the food better.
Current Regimen:
 
30mg Pred (tapering)
3 x 3 Colazal
BuSpar for GAD
40mg Protonix
Forvia multivitamin
Align Probiotic
Turmeric, Boswellia, Fish Oil, and Milk Thistle (for my liver)


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/20/2009 12:48 PM (GMT -6)   
My GI explained that Ibuprofen was a HUGE no-no for UC! He said it was something I should absolutley never take. Maybe you could try something else while flaring as that concerned me what I read how much you took!!!

My GI also told me that diet doesn't matter. I kept a food diary and learned of foods that were bothersome, and for me it was dairy with high lactose. A sensitivity runs in my family anyway, so I wasn't too surprised. However, I also learned that eggs and pickles were evil foods as well. Also, because I was in a constant flare for almost two years I stayed away from anything with seeds and nuts. I also limited my fiber intake b/c it caused just a lot of pain in general.

Also, just an FYI, I had a severe form of pancolitis and my medications did not work. So I limited my diet just as a desperate attempt to relieve any aspect of my suffering. However, prior to my severe issues I did eat a normal diet and did okay.
: )  Robin
 
28 year old Mommy of a 1 year old and Wife for almost 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
"Your mind is like a parachute, it only works when it is open."
-Unknown
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!


UCgoaway
Regular Member


Date Joined Feb 2009
Total Posts : 43
   Posted 2/20/2009 12:56 PM (GMT -6)   
I was taking that much ibuprofen right before the flare. My GI said it was a contributing factor. I will never go near ANY NSAID anymore. Thanks for your concern. :o) I love this forum.
Current Regimen:
 
30mg Pred (tapering)
3 x 3 Colazal
BuSpar for GAD
40mg Protonix
Forvia multivitamin
Align Probiotic
Turmeric, Boswellia, Fish Oil, and Milk Thistle (for my liver)


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 2/20/2009 1:29 PM (GMT -6)   
RobinByrd said...
My GI explained that Ibuprofen was a HUGE no-no for UC!


Thanks Robin for the info about Ibuprofen.

Many GIs will tell you what they learned in school--that Colitis is an autoimmune disease, that no one knows why one gets Colitis, that side effects of medicines are a necessary trade off to treating the disease, and that diet doesn't matter.

However... Although Colitis is treated as though it were an autoimmune disease, there is no consensus that it is such. We do know why some people get Colitis. In fact, there are different forms of Colitis--some of which are due to antibiotic use, germs, genetics, ... Many times the side effects of Colitis medicines are worse than having Colitis. Diet does matter for many.

I think that when it came to the subject of diet, my GI didn't really have an answers. It was as if he was on the one hand taught that diet didn't matter and on the other hand told by many his patients that it did. My GI told me the medicine would work regardless of what I ate. When I told him that some foods bothered me, he said, "then don't eat them." He did recommend not eating broccoli during a flare. He said it was hard to digest.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 2/20/2009 1:35 PM (GMT -6)   
UCgoaway said...
Thanks for all the info. My GI suspects that stress (my newborn was in the hospital with RSV), antibiotics (I was on them for bronchitis and a sinus infection), and NSAID's (I was taking 800mg of Ibuprofen like candy) caused my flare...these three events happened within 3 weeks of each other. So I guess that's why he doesn't think my diet plays a role in my UC.

I will keep a diary and see if I can connect anything though.


Some foods have anti-inflammatory properties. Others are pro-inflammatory. Even if you don't have any food intolerance, eating more anti-inflammatory foods and less pro-inflammatory foods can help.

http://nutrition.about.com/od/dietsformedicaldisorders/a/antiinflamfood.htm
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 2/20/2009 2:03 PM (GMT -6)   
     Since I've been in remission, I eat anything I like EXCEPT crab cakes..lol.  I suffered two flares a day or so after eating crabcakes in the past so I am NOT taking any chances.  Small price to pay, as there are SO many other goodies out there.
     We were down Atlantic City for three days and I was a BAD girl and drank one mudslide every night for three nights.  Now I should know better being on 6MP...but they were SOOOO good!  Hope my liver isn't mad at me nono
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Howright
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 2/20/2009 2:32 PM (GMT -6)   
 
UCGoAway, Funny you should mention antibiotics . . .
 
I think I was probably prone to UC to begin with (because I have never had a super healthy GI Tract) but my first flare occurred after a long term dose of antibiotics.  The flare that finally got me diagnosed was worsened by the fact that I was taking ibuprofen to relieve the pain and large dose stress is always a trigger, so your GI is probably right on!! 
 
Diagnosed January 07 - but realize I've been living with minor flare-ups for 10+ years. 
 
Asacol 3 pills/3 times a day.
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/20/2009 2:43 PM (GMT -6)   
I certainly haven't followed anyone else's advice about changing my diet! LOL

Except, I guess, for accommodating the test results about my intolerance to wheat...
High fiber, low fiber, it's such an individual thing. Trial and error. You'll figure out what your triggers are, if any.


49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Probiotics (Ultimate Flora, 50 billion). Doing much better, but still having some bad days. 

Post Edited (Peety) : 2/20/2009 2:17:54 PM (GMT-7)


dodge08
Regular Member


Date Joined Feb 2009
Total Posts : 31
   Posted 2/20/2009 2:55 PM (GMT -6)   
My GI doesn't seem to think Food affects it much -- the only things I now I have to avoid is carbonated beverages (pop, mineral water etc) - doesn't cause a flare but doens't seem to help, during my big flare in Nov/Dec I followed the low residue diet and it seemed to help. I took was taking lots of Advil - not realizing I shouldn't, now I wonder if that contributed to to my flare.
Male 38, diagnoised in 1998, first major flare in November 2008, have had 2 remicade infusions
decreasing predisone, take folic acid, calcium, vitamin D, HMP powder and a multi vitamin


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 2/20/2009 5:11 PM (GMT -6)   
I had to change my diet or i would probably bleed to death. sounds kinda scary but my diet b4 UC consisted of a lot of greasy fried foods and lots of alcohol so yup yup it was commen sense to change regardless my GI telling me diet didn't matter. Also don't underestimate chewing your food good. that's the first part of digestion. I'm an accountant with a 1 hour lunch and I notice how people and coworkers can scarf down food without even chewing but i think its wise to take your time escpecially if you have UC...Your the sole proprietor of your body so i'm sure you'll do whats best for you. I never ever drink sodas anymore. I hardly ever eat fried foods, ice cream, candy, etc. and my symptoms do alright for the most part but i notice major changes when i stray from my usual diet now.
I would highly recommend the SCD diet or other similar diets if you can find them. they are healthy for people and the foods are easier to digest than junk foods.
                                                                                         
28/M/TX single parent of gorgeous 3yo girl (revised 12/12/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  Mildly Flaring 
RX/day: none! Tapered off Prednisone 9/20/08. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: enzymes everyday, turmeric, seldom use probiotics, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: Prayer, food combos, good posture, chewing more, etc.


20yr-counting
New Member


Date Joined Dec 2008
Total Posts : 3
   Posted 2/20/2009 9:56 PM (GMT -6)   
My advice to diet is if you can tell what kind of food it is when it comes out "DON'T" eat it.
I've logged 20yrs. W/UC,age 54
take 3 caps 3 times a day Colasal
insert 1 canasa supp. at bedtime when needed
Mom also suffers W/UC


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 2/21/2009 1:25 AM (GMT -6)   
supersaw said...

If your GI said diet didnt matter, then how did you come to the conclusion that my favorite kinds of foods would cause you to bleed to death?


Because the GI was wrong. This shouldn't come as a surprise. Doctors are often wrong. We shouldn't expect them to know everything. It is our responsibility to take our health into our own hands. We should do our own research, get second opinions, and change our doctor if we aren't satisfied with his/her service.

My GI didn't tell me about fecal transplantation. I read about it on my own. I did it three times over three days and went immediately into remission. The effect was so immediate that I could have stopped taking the Prednisone cold turkey if it weren't for the danger of doing so. In fact, I got symptoms of arthritis from reducing my dosage so fast, and no symptoms of Colitis.

My GI kept saying my recovery was remarkable.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 2/21/2009 8:43 AM (GMT -6)   

I so agree with Joy.  Although I generally follow my doctors advice, etc. because he/she had a lot more education than I, we know our bodies BEST!  I am a senior so have many years of experience with doctors, etc.  A GYN doc told me once that I MUST take hormones and handed me a prescription.  I told him to wait a minute - don't I have a say?  I had researched it some and found I could "handle" the symptoms of menopause without hormones and therefore safer for chances of cancer.  Sometimes we do need to change doctors if possible - see nurse practicioners who in my opinion are more caring, etc. and trust how WE FEEL!!  The hard part for me is getting a doctor/NP/PA to LISTEN to what I have learned here on the computer - both from reliable sources and people like you guys who have been there.  Finding an open-minded doc is hard to do.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only few cm. left to heal in rectum - tried Proctofoam for weeks - no luck.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Tried hydrocortisone for two weeks with no change.
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 
 
 
 
 
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 2/21/2009 9:08 AM (GMT -6)   
I haven't really changed my diet- I do tend to avoid fried foods, but I always did. They just make me feel worse now then they did before! I find when I eat a lot of sugary foods, the bm's are more numerous & messy, but again, this used to happen pre-UC. My GI also told me diet is not a factor.... I know doctors don't "know" everything, but you can't help but agree when to my knowledge, not one doctor has said that diet is in fact a major player. And I see the posts from people doing SCD, spinach/sunflower seeds, etc, but the majority of those people are also on a lot of drugs- so whose to say it's the diet that's helping? I know some aren't taking anything, just severely limiting/altering their diet... to me that's as bad as UC. If I want a cupcake, darn it, I want a cupcake! After being in & out of flares for a long time now, some very bad, some minor, I can honestly say diet doesn't seem to affect it much. For me, it's all about the meds! My overall GI tract tends to be a bit more sensitive nowadays, which is most likely an unfortunate side effect of flaring the better part of 6 years. Or it could be getting older too- who knows!

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


shortstuff1
Regular Member


Date Joined Feb 2009
Total Posts : 80
   Posted 2/21/2009 9:57 AM (GMT -6)   
I have been diagnosed with UC since Nov 08 and freaked out when I saw that we basically weren't supposed to eat anything... after talking with my doc (6 weeks after he diagnosed me!) He told me to work things back into my diet. I'm not so good at that... I have found that milk irritates me and greesy foods. I felt so bad for so long that I didn't realize that when I was in remission how good I would feel. I think I can handle a couple of days of irriation every now and then to enjoy the things I love.... It's better than a whole year of nasty symptoms!! I do not stick to a strict diet though I pay more attention to what I eat. You will know within an hour if something bothers you. Definitely eating too much causes me great discomfort. Try to eat smaller meals throughout the day.
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