Thanks, the problem I have is that I have a lot of gas. When I hold it for about
5 seconds it goes away. It comes back about
a half hour after a bowel movement. After that it comes back 15 or 20 minutes and then 5 or 10 minutes. It keeps reducing the time until it is only a few minutes between them and the pressure or urgency also increases until I have another bowel movement. With the butt burn it really hurts when I have the gas pressure. I currently have 8 to 10 BMs per day and with the butt burn I think my condition is no better than it was before surgery. This is a real pain in the butt.
I was warned about
this at the hospital and it should take a couple of months to adjust. The nurse at the hospital gave me a water bottle to spray my butt each time and cream to apply. I have been doing this every time and it still isn’t helping much. I doubt I have an infection. There was a resent post about
someone else having the same problem after about
3 weeks. I had a similar problem around my stoma when it leaked. The liquid stool can really burn the exterior skin.
I went o my family doctor over a week ago to talk about
my sleep apnea. He is referring me to a sleep disorder clinic. I haven’t got the appointment yet but I was told that they would do their own tests on me and I may have to sleep at the clinic for the tests.
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect