pb4- I used Proctofoam for weeks with little results (I know it is not as strong of steroids). Worst part was the application. I really hate to say I have to do it on the toilet and then can barely reach because of my obesity and arthritis and so risk problems with injury, etc. I would, however, consider trying it again and maybe not every night. I really had best luck USING suppositories and keeping them in all night that is why they interest me. I don't believe the foam gets up any further because of the position I have to apply it in - although I lay on my left side at least 1/2 hour.
As for my GI - I rarely see him. He has a wonderful nurse practicioner who listens to me and is compassionate to my needs, etc. They have regular consultation on each patient with another partner. Since I am 69 and diagnosed so late in life I am about their only NEW senior patient. What has worked for so many did not for me. I had to be very firm about not taking mesalamine any more. Doc just thought (at first) that I was not willing to put up with the side effects to heal the UC. That was not true. I got VERY sick - no anemia or anything that showed up - but flu symptoms that threatened to keep me housebound and in bed. Every time I tried something new - Colozala, Canasa, LIalda, whatever, started to work a little and then all downhill - more pain, more cramping, more bleeding and chills, nausea, cramping in legs, etc. SO - NO MORE! Prednisone is working - what will happen next I don't know. I have to call tomorrow or Tuesday about how I am doing.
Senior - New diagnosed with proctosigmoiditis - 6/2008
Tried all mesalamines and enemas, Canasa, etc. Colonoscopy 10/28 showed only few cm. left to heal -hydrocortisone enemas 12 days - much worse.
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
Feb. 21 - down to 20 mg. - no blood, no pain, no bad side effects so far. Plan on adding 6MP (or?) at lowest possible prednisone dose.
Probiotic Align, Prilosec for GERD