If anyone is on long term low dose prednisone for UC that person's GI is doing them a great disservice and in my opionion that doctor should not be practicing. Your GI is wise to keep you off of it as a long term solution. Long term prednisone use, even at low doses, is dangerous to health. The damage it can do is not reversible. Best to have surgery if prednisone is the only drug to provide relief from UC.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free