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New Member

Date Joined Feb 2009
Total Posts : 1
   Posted 2/21/2009 10:59 PM (GMT -6)   
My name is Sandy and about 4 years ago I got really sick and spent 5 weeks in the hospital.  I had C-diff (from being on antibiotics for months), At that time they thought I had UC, severe gurd, Pancrititus and my galbladder was bad and had to be removed.  After my hospital stay they decided that I didn't have UC becaues after repeating my colon-oscapy everything looked great. But they left me on Asocal.  Everytime I try to go off it I get really bad pain, gas and diareah. 
My question is that since I was so ill I haven't been able to eat whole grains, lagoons, veggitabls and very few fruits.  These things cause me to bleed and have sever pain for weeks at a time.  Does this sound familar to anyone?  If so is there anything I can do that help me be able to eat these foods again?
Also, I'm wondering if anyone else is taking Asocal?
Thank you for your time,

Regular Member

Date Joined Feb 2009
Total Posts : 40
   Posted 2/21/2009 11:17 PM (GMT -6)   
Hi Sandy,
I'm not sure why everything came out clear on your colonoscopy but maybe they are treating you with asacol for a different reason. I have been on asacol for years and haven't had any food issues. Sorry! good luck!
Diagnosed when 13 and am now 25. Currently taking 100mg of 6mp, 60 mg of prednisone and 12 pills of asacol a day.  I tried cortifoam for this flare and it didn't work.  In the past I've tried rowasa, enemas, pentasa, colazal, sulfasalizine.  I was in a four year remission until the end of January.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 2/22/2009 12:38 AM (GMT -6)   
whole grains, legumes, vegetables and many fruits can typically be hard on most IBDers, but generally once you're able to get your flare under better control you may very well be able to enjoy them all again.

My bum is broken....there's a big crack down the middle of it! LOL :)

Veteran Member

Date Joined Dec 2008
Total Posts : 3231
   Posted 2/22/2009 3:21 PM (GMT -6)   
SandyD said...
After my hospital stay they decided that I didn't have UC becaues after repeating my colon-oscapy everything looked great.

Hi Sandy,

I don't understand this sentence. I had a colonoscopy done soon after my second flare (which was a very severe flare in which I was at risk for losing my colon) and everything looked great. There was barely any evidence that I had had a flareup. However, the medical profession considers you to have Colitis as long as you have had even one inflammation. It doesn't matter how great the colon looks during remission.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)

Veteran Member

Date Joined Mar 2008
Total Posts : 2855
   Posted 2/22/2009 6:22 PM (GMT -6)   
Asacol is a maintenance drug, not something you are supposed to try and stop taking. Sounds like you need to ask more questions about your diagnosis, I agree. Asacol is designed to only dissolve once it reaches the ph level of your colon, so if you have trouble without it, you have colon trouble.

BTW, my colon shows evidence of flares even when I'm doing OK, with lots of scar tissue. Ick.

I have to be careful about high fiber, so there are many foods like those you mention I should never eat. When I do, I pay with varying degrees of discomfort.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. Doing OK, but still have some bad days. 

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