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Ouchie2
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 2/22/2009 7:18 AM (GMT -6)   
I have had so many changes in meds lately ...nothing really seems to work for long periods of time... so I flare quite often.... I know I should be using rectal meds...but the thought of using them makes me ill ...is this just me??? I just hate the thought of using them ...sorry to be such a baby...
HELLO FROM NEW ZEALAND

38 year old female
UC - Diagnosed 2006
HLA-B27 Gene
Iritis 2008
Asacol
Mercaptopurine


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 2/22/2009 7:58 AM (GMT -6)   
Rectal meds aren't that bad once you get used to them, it just becomes normal to do it! You are very similar to me in that no meds seem to be working for long periods of time - except for me that includes rectal meds. I have been flaring most of the past year, and now am ending up having to go into hospital. If you want to sort things out you need to give the rectal meds a go - they may be what works for you. If you don't try them then you may get worse, but even if you do try them and they don't work, at least you and the doctors know that and can work on the next step.
22 year old female, from the UK
 
Diagnosed with Ulcerative Proctitis Jan '08
Hospitalised Jan '09 for IV Hydrocortisone steroids - had no effect!
 
Currently taking daily: 9 x 400mg Asacol tablets, plus Fybogel fibre supplement and vitamin tablet.


RyanF
Regular Member


Date Joined Jan 2006
Total Posts : 358
   Posted 2/22/2009 9:27 AM (GMT -6)   
When I was dx-ed with UC I didn't respond to anything and then they put me on the rectal meds and I was horrified. But I tried and they worked-- every time. I don't mean to sound cold or mean but you just have to get over it-- especially if nothing else helps. It isn't fun by any means but neither is taking medicine and not having it work. I hope you're feeling better soon.
Ryan


Meds:
Began Humira on 10 Jan 2009
Second injection: two pens on 24 Jan 2009
Third injection: two pens on 07 Feb 2009
Humira pen (1) weekly WIE UFN
Rowasa nightly
Canasa daily
Lialda X3
Probiotics + protein digestive enzymes


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16438
   Posted 2/22/2009 9:30 AM (GMT -6)   
I've only tried suppositories but I have to say it is no big deal. I pop one in at night before bed and one in after my morning BM and I am good to go for the day. They are really easy to use and they help big time. Enemas seem a little bit more difficult but if it helped keep me stay off the toilet, I would be using them.
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


IndianaUC
Regular Member


Date Joined Feb 2007
Total Posts : 212
   Posted 2/22/2009 9:31 AM (GMT -6)   
I was horrified too when I first started mine. I'm over that now seeing that the meds are working. Whatever it takes to not flare is worth it in my book.
- DXed with "left sided" UC in 1998. DXed with "proctitis" Oct. 2007
- Sulfasalazine 3 500mg tabs twice daily
- 500mg Vitamin C, 1 Multivitamin, L-Glutamine
- Max Acidophillis EC Capsules 350Mg(7 types of bacteria with over 42 billion viable cells) with 50 Mg colostrum & 50 Mg FOS(fructo-oligosaccharides)
- Experimenting with this or that on occasion. Always open to new ideas.
- Colonoscopies - 2 (Due for my next one ASAP)
- Canasa 1000mg @night. Started Oct. 23, 2008
- Niferex-150 Forte 1 capsule 2x Daily


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 2/22/2009 11:53 AM (GMT -6)   
I put off using them for the longest time cuz I just couldn't wrap myself around the idea of jamming something up my butt every night. But I finally gave in and it was the best thing I ever did. Now - as soon as I notice any slight change I reach for my suppositories. You will just have to force yourself to try. Once you see how well they work - you kinda get past the grossness factor. And then it just becomes the new norm.
Mamas Boys
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30694
   Posted 2/22/2009 1:44 PM (GMT -6)   
It's definitely your choice.....but if they work (and they have for me for 20 years), that could be in your favour for a very long time.

I, personally, am more grossed out by having a flare than sticking meds in the area that will help treat and control it.

I'm hardcore 5-ASA...and intend (hope) to remain that way forever.

My flares have been minimal...and that's purely from treating with the enemas early, using them for treatment nightly and then slowly tapering to a maintenance dosage.

Are they a regular med staple....yes.....but I don't always have to use them nightly. Sometimes I hurry the taper just because I hate using them....and have skipped a night "just because"..although that's very seldom.

Your choice..
quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite..back to nightly (Jan 22)..tapered too fast
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


megger
Regular Member


Date Joined Oct 2008
Total Posts : 62
   Posted 2/22/2009 3:18 PM (GMT -6)   
I was diagnosed in Oct 2008 and had been unable to get into full remission until I started using 5 ASA Pentasa enemas. I had started using Entocort (corticosteroid) enemas when I was first diagnosed, but they didn't do anything. It was very discouraging, but I am sure glad that I was willing to try the Pentasa enemas!!!! It has made a world of difference - I went from 6-10 loose bm's a day with blood to 2 or 3 formed bm's a day without blood :)
Meghan - 24 years old
 
DX:  Pancolitis since October 2008
Current Treament:  Asacol (3 pills 4 times daily), Pentasa Enemas nightly
Natural Treatment: Low Residue/Low Fiber Diet, Daily Multi-Vitamins, Activia Yogurt, Chamomile Tea
Previous Treatment:  Prednisone (40 mg - 5 week taper), Entocort Enemas, Buscopan
Status:  Remission I think!!! YAY!!! And now trying to get pregnant!!!


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 2/22/2009 4:26 PM (GMT -6)   
I guess I'm in the minority, because I wasn't grossed out at all at the thought of using the Rowasa enemas. My thinking is that if it can help me not have urgent diarrhea 20x a day, then I'll try just about anything. I'm not squeamish at all though about doing "things" to my body.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


Ouchie2
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 2/22/2009 6:05 PM (GMT -6)   
Thanks so much everyone ..your comments are helpful
HELLO FROM NEW ZEALAND

38 year old female
UC - Diagnosed 2006
HLA-B27 Gene
Iritis 2008
Asacol
Mercaptopurine


Cadillac Lover
Regular Member


Date Joined Feb 2009
Total Posts : 235
   Posted 2/22/2009 6:12 PM (GMT -6)   
I just started canasa last night & before that I was using mesalamine wich is way harder and more uncomfortable. Canasa is easy to use.
Diagnosed with UC summer of 08.
Currently taking asacol 1600mg 3 x a day, Prednisone 60mg, 6MP 50mg.
Currently having a flare.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/22/2009 6:12 PM (GMT -6)   
It's simply not a very dignified disease. Worth trying!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. Doing OK, but still have some bad days. 


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 2/22/2009 7:45 PM (GMT -6)   
You are not alone. Rectal meds are not fun but there are actually nights when I can't remember if I've used them because it becomes a habit and I don't even notice. (Like taking all those pills.)

Here are few things that I've found make it all easier:
1) imagining the inflammation and imagining the meds actually soothing that area
2) warming up the bottle (if it's rowasa or other enema) under warm water
3) using Cortifoam instead of the enemas ... there's something about the foam that I find waaaay easier to deal with.
4) Using them whenever I feel I can handle it during the day, even if it's not at night. I figure it's better to use it at any point in the day than not at all. So try it in the evening and then lie around and watch tv.

The results from rectal meds can be really great. It's really worth trying consistently.
-------
UC for the last ten years
Current Meds: 6MP since 2006, Lialda, Asacol foam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine, Cortifoam)
Alternative treatments I have had success with: Acupuncture, Hypnotherapy

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