I know some people have started with left sided and over time learned they had pancolitis. I don't know if that's because the flare just didn't fully develop during the diagnosis process, or if the disease actually progressed through the colon.
I had pancolitis and the right side hurt like hell for me, just as the left. It's my understanding that a flare begins at the bottom and works its way through the colon, starting with the left and going to the right. My major issues were the right (toward the entry into the colon) and the center portion by my belling button. Those were the areas that caused the most pain UC wise, and then my hemerroids were extremely painful in the rectum, so I was miserable.
Not everyone feels pain with their UC, but I will be the first to admit that mine was excrutiating and very difficult to tolerate...and with pancolitis it sucked very badly. Saying that I was miserable is an understatment.
I wish you the best with treatments and future remission!
: ) Robin
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
"Your mind is like a parachute, it only works when it is open." -Unknown