Just came back from my Gastro appt, I have been battling this lung infection for over 3 weeks now and have had to delay my 3rd Remicade Infusion (was supposed to be Feb 4) ....all he said was it will be the Respitory Doctor's decision if I can continue on Remicade or not...if it's just a normal bug I have I can, if not then I can try Imuran (sp?) but it will compromise my immune system as well, or the surgery. I don't see the Resp. Dr. for another week.
He game my Safolak pills to start taking again and the enema's to help keep me in remission.
I am so frustrated because obviously the Remicade is working for the Colitis, but is it causing the lung infection.
I also mentioned taking probotics (which I have been) and he almost had a look of disgust on his face that I would even try anything else.
Thanks. I just want to feel better!
Male 38, diagnoised in 1998, first major flare in November 2008, have had 2 remicade infusions
have used pentesa, safolack pills, and enema's.
currently decreasing predisone, take folic acid, calcium, vitamin D, HMP powder and a multi vitamin