I know exactly how you feel. I also had bathroom breaks every 30-45 minutes at night, and sleep was something I never experienced. I also know exactly how you feel with your baby and the time you spend away b/c of how you're feeling and the runs to the bathroom. I actually keep the Dreft stain remover in the bathroom (I think it works the best) and a Clorox stain pen.
It's just so unbelievable how familiar our situations are. What you're going through is almost identical to where I was starting last summer. I also continued with work and started grad school. It's unbelievable how we continue trucking with our struggles, but at the same time suffer to horribly. My best friend just told me today that she was amazed how well I used to hide my illness b/c she never knew how sick I was most of the time. : ) I'm a good actress. : )
I guess that I'm just so used to withstanding pain and discomfort and go on with daily duties, it is so hard for me to just lay low and not do much since my surgery. I want to do dishes, make meals, pick up my son...but I can't. I over did it my first week and a half home and am now stuck in bed hoping the pain in my stoma goes away. Grrr. I'm also asking for help and starting to communicate my needs b/c of my pain. Do you know hard it is to tell someone that I hurt?! IT'S HARD!!!!!!!!!!!!!
Anyway...I so hope you find comfort with your new treatments. I am so routing for you!!!
: ) Robin
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
"Your mind is like a parachute, it only works when it is open." -Unknown