A slow simmer of constant inflammation can do lots to the system. Remember, autoimmune disease can have another area take up the cause...in other words, join in.
I'd not want to be dependent on biologics, because they will only work for so long. Since you havn't had the results for the positive criteria, you'd pretty much be postponing the inevitable.
I'd be scared crapless to have the surgery, but there are awesome, awesome members here who I would trust to say it would be OK for me to go ahead with it.
I'd want my life to be not ruined from the potential side effects and my energy and hopefullness be used for getting on with learning how to live with no colon.
Maybe I'm not the best person for the suggestion since we don't agree on many things.....but I think it's better to make the decision than to be forced to.
You have to wait to give yourself permission....possibily. What does your husband say in this matter? your family? Would that have any weight in your decisions?
*Heather* Status..Asacol (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!