As I mentioned I've been fighting what we thought was a respirtory infection for about 3 weeks, had to postpone my infusion...chest x-ray showed little nodules so they thought it was TB (even though I had the TB tests), they did a bioposy, finally got the results today...
it's not cancer, not TB, not fungal, not pneonmia, but rather non-caseating granulomas -- which the Resp. Dr told me occur in some people with UC, he said while others with UC might get sore joints, or a rash, I get this in my lungs, from my very bad flare in Dec/Jan....
So the good news is I can continue to get my Remicade (which after 2 infusions as really helped) because the better my UC is under control the better my lungs will be.
Wow, I was sure this was all caused by the Remicade, when it's actually the oposite!!
He said it's rare, has anyone else had this experience? He said it's caused by IBD/UC or sarcoidosis (which I"m not sure what that is yet)
Male 38, diagnoised in 1998, first major flare in November 2008, have had 2 remicade infusions
have used pentesa, salofalk pills (mesalamine), and enema's.
Started salofalk again until I can get my next remicade.
currently decreasing predisone, take folic acid, calcium, vitamin D, HMP powder and a multi vitamin