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suse
New Member


Date Joined Feb 2009
Total Posts : 19
   Posted 2/26/2009 8:10 PM (GMT -6)   
I am curious as to how many others with UC also suffer from joint pain .  Seems to me when ever my bowel symptoms are under control I suffer from Joint pain ,  sometimes so bad that I cannot open or close my hands .  This first began after a reaction to pentasa but now (six months later)
occur regularly .  It is as if there alway has to be inflamation if not in the bowel then somewhere else.
 
I have so far reacted to almost everything ,  I see my GI at the end of March and am hoping to be trying Remicade.
 
 

nucid
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 2/27/2009 12:38 AM (GMT -6)   
I have joint pain in my hands and my sternum right now. Started in my hands so bad I had difficulty falling asleep. Then couple weeks later moved to my sternum. Whats weird is that it can be real bad and then ease a few minutes later. And my bowels are under control. New to the disease so I don't have too much history.
Female 33 Married
diagnosed January 2009
mild pancolitis
Sulfasalazine 500mg 3X

"The Lord is my Shepherd"


UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 2/27/2009 6:08 AM (GMT -6)   
Major joint inflammation here. Went on humira this year and nasty joint flares have ended. Still have some achyness, but the debilitating flares in my big toe and sternum have ceased.
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/27/2009 6:33 AM (GMT -6)   
If you are having joint pain while not in a flare, you should get checked out for arthritis. Uc'ers are more prone to certain types of arthritis then the normal population.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 2/27/2009 6:39 AM (GMT -6)   
I've been in remission since about December, but have been having joint pain for the past few weeks. It's not too debilitating, but still annoying. The pain includes my wrists, fingers, and knees.
Female, Age 20 (formerly ComedyDork)
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (6 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3
 


nucid
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 2/27/2009 12:14 PM (GMT -6)   
Is the sternum a common place to have joint pain with UC? Seems like a strange place to get arthritis.
Female 33 Married
diagnosed January 2009
mild pancolitis
Sulfasalazine 500mg 3X

"The Lord is my Shepherd"


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/27/2009 12:24 PM (GMT -6)   
Pain in the sternum is a sign of Costochondritis. I used to get that in my early years of Uc. I would think though if you are flaring that costo is a possibility.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


nucid
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 2/27/2009 4:51 PM (GMT -6)   
I'm not flaring. I wasn't able to find out what costo was on a quick search.
Also I read somewhere that ibuprofen was not good to take if you have UC, is that true?
Female 33 Married
diagnosed January 2009
mild pancolitis
Sulfasalazine 500mg 3X

"The Lord is my Shepherd"


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 2/27/2009 5:09 PM (GMT -6)   
Nope, it's not good to use ibuprofen or other NSAIDs if you have UC, mostly because we're at increased risk for bleeding. However, NSAIDs can also be a little rough on the kidneys, as can the meds we take, so it's not a good idea from that standpoint either. Tylenol is fine.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 2/27/2009 5:22 PM (GMT -6)   
nucid said...
Is the sternum a common place to have joint pain with UC? Seems like a strange place to get arthritis.


I had a flare specifically in the sterno manubrial joint. I had to have a ct guided steroid shot in the joint to get it under control.

Since I have started humira it has not recurred.
 


nucid
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 2/27/2009 6:02 PM (GMT -6)   
This disease is so screwed up! How do you have a flare in a joint?

Is UC joint pain different and distinct from arthritis and RA?

Also sorry to high jack the thread. But I would really like to know what is going on with this.
Female 33 Married
diagnosed January 2009
mild pancolitis
Sulfasalazine 500mg 3X

"The Lord is my Shepherd"


suse
New Member


Date Joined Feb 2009
Total Posts : 19
   Posted 2/28/2009 7:45 AM (GMT -6)   
I am glad that I asked the question as I am learning a great deal from your responses . As for pain I have taken to using acideminphin with codine (codine is constipating) so instead of making the UC worse it usually helps a litte and also helps with pain. In Canada you do not need a presription but it is kept behind the counter.

PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 2/28/2009 8:34 AM (GMT -6)   
Yes joint pains are quite common in UC. Infact, at times one gets shooting pains in palms - just at a very small portion, as small as pin head. These pains go away on their own. At times they are because of withdrawl symptoms of steroids or lack of protein.

45 years Male
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
on Combiflam, Multivitamins and restricted diet.
Tried Sallaki/Turmeric/Homoepathy/Allopathy/Chinese/Unani/Ayuvedic/Yoga before going for surgery


UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 2/28/2009 12:13 PM (GMT -6)   
nucid said...
This disease is so screwed up! How do you have a flare in a joint?

Is UC joint pain different and distinct from arthritis and RA?

Also sorry to high jack the thread. But I would really like to know what is going on with this.


Google Reactive Arthritis + Colitis or chrons or IBD.

The IBD related arthritis is different than RA as it doesn't damage the joint over time. Find a good Rhuematologist. Mine has been a huge help for the joint related pain/issues.
 


nucid
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 2/28/2009 2:01 PM (GMT -6)   
Thanks UC Dude for the google search. It was very informative. I found it interesting that the treatments were NSAIDs, pred, or sulfasasiline which I am already on. I'm just coming out of a flare and hoping things will settle down on their own. I'd rather not add another specialist and extra meds if it can be avoided. Is it unreasonable to think symptoms will improve on their own?
Female 33 Married
diagnosed January 2009
mild pancolitis
Sulfasalazine 500mg 3X

"The Lord is my Shepherd"


UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 2/28/2009 7:25 PM (GMT -6)   
nucid said...
Thanks UC Dude for the google search. It was very informative. I found it interesting that the treatments were NSAIDs, pred, or sulfasasiline which I am already on. I'm just coming out of a flare and hoping things will settle down on their own. I'd rather not add another specialist and extra meds if it can be avoided. Is it unreasonable to think symptoms will improve on their own?


The first drug I tried 10 years ago was sulfasalazine and I developed a rash. It is/was originally an arthritis med going back 50 years or something. The problem with nsaids is that they can irritate the colon. I have also done pred with limited long term success. I also have had steroid shots into the joints. The shots help, but can only be done a couple of times in a 1-2 year time frame.

The arthritis Dr. (Rheumy) has been 10 times more helpful to me than my Gastroenterologist. He helped me get approved for Humira last year which has been a godsend. Seriously I would not hesitate to see another specialist for the arthritis. They can effectively coordinate care with the GI Dr.

For me the "extra" med turned out to be ONE med that helped with both. Good luck.
 


UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 2/28/2009 7:27 PM (GMT -6)   
supersaw said...
Red_34 said...

If you are having joint pain while not in a flare, you should get checked out for arthritis. Uc'ers are more prone to certain types of arthritis then the normal population.

This doesn't make sense to me....arhtritis is my major symptom of UC, with the bowel irritation 2nd. So to me, a flare up IS when my joints are crippling. Relief only comes with prednisone dosages higher than 5 MG. Started Humira a month ago to see if that will help keep it down, but I don't know if that works yet since its still "early" and I'm also still taking pred.


Agree. Sounds like your story is the same as mine. I couldn't get below 5 mg pred without recurring joint issues. Have been on Humira for 11 months with great results overall. Going back for a 1 year scope next month to see how colon has responded.
 


UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 3/1/2009 5:40 AM (GMT -6)   
supersaw said...
So you're saying the Humira DID provide help with the joints? I'm happy to hear it, because I just kind of figure nothing will work for mine. But mine is horrible, like cant walk the dog because I cant grab the leash handle, or cant write because certain fingers are so swollen....right now I only have slight discomfort when standing up from a chair.

Should I get a colonoscopy too 12 months after my first one?


Humira did/has helped.


A year ago I had a scope done (10 years after first one). The scope showed significant active disease. However my UC symptoms were minimal. I always frustrated my GI when I complained about joint issues because the UC symptoms I described to him were quite mild. So the scope a year ago helped justify the move to Humira.

Fast forward to today... going to re-do the scope one year later to see how it has impacted the UC.

I still have minor aches and pains, but no hot swollen joints that keep me from functioning. I am able to run 3-4 times a week on the treadmill for 20-30 minutes. Life has improved on Humira.
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/1/2009 8:08 AM (GMT -6)   
My statement meant: If you have joint pain while in a flare, this CAN be a sign of Peripheral arthritis. This is a form of arthritis that wax and wanes with your flare. The inflammation in the joints mirrors the inflammation in the colon. A large majority of IBD'ers have this. However, after your flare has ended and you are continuing to have joint pain then that can be a sign of more damaging arthritis's and it should be addressed by a rheumatologist. There are literally hundreds of different forms of arthritis and sometimes it's hard to distinguish the difference between them. Rheumy's even have a hard time diagnosising the right one at times. However, if the pain is highly intense along with swelling and redness then one shouldn't assume that it's PA. You just follow what your body is trying telling you.

http://www.ccfa.org/info/about/complications/arthritis
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 3/1/2009 9:28 AM (GMT -6)   
I've been in remission for the past couple of months, but my joint pain started a few weeks ago...that can't be good sad
Female, Age 20 (formerly ComedyDork)
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (6 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3
 


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 3/1/2009 1:03 PM (GMT -6)   
I also suffer from joint pain - fingers, hips, knees and occasionally ankles.  I've never really gone to see anyone about it as arthritis does run in my family.  I just suffer through it.  Weight bearing exercise is great for arthritis and I make it a point to hit the gym at least 4-5 times a week.

Mamas Boys
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3695
   Posted 3/1/2009 5:02 PM (GMT -6)   
I have suffered from joint pain (knees, hands and shoulder, mostly) has been on an off every since I was first diagnosed with UC back in 1990, I also suffer from Chronic pain do all the bad disc in my back, an I am on meds 24/7 for that, My Docs have always told me for the most part the joint pain is just part of UC. I was also told that the risk of colon cancer goes up dramatically after having UC 10 years or more, anyway I have a history of Colon Cancer on both sides of my family my mother died of it at age 62, so I get a colonoscopy annually every year, the folks up at Mayo wanted me to have one every 6 months, but my Doc and I think that is a little much. But every year they do take out 2 or 4 precancerous adenomas, and and as long as they can get them early they don't turn into full blown cancer! I take my Sulfasalazine twice a day and I have been doing Ok for the most part, I have some minor problems now and then but I haven't had a major flare-up in a few years.

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1914
   Posted 3/1/2009 9:44 PM (GMT -6)   
Yes, I have joint pain too that mostly waxes and wanes with my bowel problems. It occurs in my knees and wrists.
diagnosed 1/09 with colitis,54 yo, colazal, fish oil, synthroid, cymbalta

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