How to classify

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Risan1808
Regular Member


Date Joined Jan 2009
Total Posts : 153
   Posted 2/26/2009 9:21 PM (GMT -6)   
I am so forgetful.  I went back to the GI today to follow up after my colonoscopy.  I have been flaring since January 1, 2009 (yeah...Happy New Year)!  I had a colonoscopy on February 13th. 
 
This is all so overwhelming!  It was like all this information flying at me all at once today.  After the colonoscopy he put me on 2 Asacol 3X a day and Rowasa.  Today he increased the Asacol to 3 tablets 3x a day. 
 
The one question I forgot to ask is how to classify the UC.  I know they call it different things based on how much of the colon is affected.  He said mine has affected the rectum, sigmoid colon, decending colon and about 1/2 the transverse colon.  Does anyone know how this would be classified?
 
Also, has anyone heard of psydo polps from inflammation?
Diagnosed Friday, February 13, 2009
Asacol 2 tabs 3X daily
Rowasa Nightly


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 2/26/2009 10:04 PM (GMT -6)   
If you look at our resource section, I have a post in there that describes the varying degree of Uc. I would say that either you have Left sided or Pancolitis.
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quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 2/27/2009 2:00 AM (GMT -6)   
Yeah, I'd say left-sided heading to pancolitis.

But, don't despair yet, if the 5ASA meds can help get the inflammation under control, your future flares can be fairly well kept limited to the lower protion of the colon.

How are you doing with the Rowasa? What did the doc say for you to do once you feel normal?

quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Risan1808
Regular Member


Date Joined Jan 2009
Total Posts : 153
   Posted 2/27/2009 6:48 AM (GMT -6)   
Thanks! I was guessing the same thing. GI didn't say what to say when I felt normal. I go back again on March 18th. I have two weeks left on the Rowasa perscription. That means I will be off it for 6 days before going back to the doctor. I have to admit I am a little hesitant about going off the Rowasa.

The Rowasa isn't bad (once you get past the sticking things up your butt that is :) ). I am still having symptoms of a flare which is why he increased the Asacol. I am now on 3 tablets 3X a day. He said next step is prednisone. At this point I don't think I'm going to agree to go on Prednisone. The last time I was on that stuff was absolutely horrible!!!! It causes more problems than it solves. Is there any other option besides Prednisone?
Diagnosed Friday, February 13, 2009
Asacol 2 tabs 3X daily
Rowasa Nightly


quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 2/27/2009 5:01 PM (GMT -6)   
Call the doctor to get refills on the prescription...stopping cold turkey is not recommended....say you don't want to be without them for 6 days.

Or...get the pharmacy to call when you start the last box.

I agree regarding the prednisone. It's my own theory that it will set one up for future med failure.....but if you can stick with the 5ASA meds and give them a real fair trial.....patience is really what you need....they could very well be all you'll need.

Yes, they're a pain,
Yes, I hate doing them...but 9 seconds out of my night is nadda.

I would say give yourself at least 6 months with the 5ASA, oral/rectal....you may be able to taper the rectal to maintenance...that's really the goal, to find that will help keep flares to a minimum.

I had lots of ups and downs the first 2+ years....I actually begged my doctor for other meds....he just shook his head and said that they do work for me considering I'm have improvement and have remissions...it's just finding the right combo and sheduling that requires the patience.

He then gave me the freedom to increase and decrease the rectal med (I'm on Salofalk..which is like Rowasa, but in Canada) as I see fit. 20 years later....still using them and they still work..whew.

Hang tough...if you're in a hurry but yet having improvement, you'll maybe miss out on a med that can take you through many years before you have to go to other meds.

If htey don't work, you'll know it...but give it a fair try.

The commitment is a pain, but not as much as a flare pain in the butt.....

quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Risan1808
Regular Member


Date Joined Jan 2009
Total Posts : 153
   Posted 2/27/2009 5:41 PM (GMT -6)   
Quincy,

You seem very knowledgeable. I questioned the prescription for the Rowasa. I will have been on them for 4 weeks. He said he wanted to see how I'd do without them. I'm a little nervous about that. My husband and I are going to Aruba in 6 weeks. I want to feel good. I don't want to chance going on meds and being miserable the whole time we are gone.
Diagnosed Friday, February 13, 2009
Asacol 2 tabs 3X daily
Rowasa Nightly


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 2/27/2009 5:55 PM (GMT -6)   
I answered in your "flying with meds" post, but I'll also answer here. I'm also newly diagnosed and there's no way I'd want to chance feeling bad during a vacation to Aruba, either! At least take some Rowasa with you so you can use them if things start to head south. I think the Rowasa is what really did it for me in terms of improving my symptoms quickly.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 2/27/2009 6:57 PM (GMT -6)   
Tell the doctor about your holiday and that you'd like to try the "without" (stupid in my opinion anyway) rectal meds when you get back.

You could do every second night. I don't get why doctors sometimes set their patients for a failure.
Cold turkey isn't how to deal with Rowasa....he'll want to put you on prednisone....probably.

Call and make an appointment sooner than the one you have to discuss the matter. You have concerns...put them out there and negotiate.

proactive is a good way to go...

My thoughts on it anyway.

q
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Risan1808
Regular Member


Date Joined Jan 2009
Total Posts : 153
   Posted 2/27/2009 7:55 PM (GMT -6)   
Thanks everyone. I will give the GI a call this next week.
Diagnosed Friday, February 13, 2009
Asacol 2 tabs 3X daily
Rowasa Nightly

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