When do you go to the hospital???

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mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 2/26/2009 9:37 PM (GMT -6)   
So after the Remicade infusion Tuesday there was no miraculous recovery which I was kinda hoping for. I finally ate some rice and scrambled eggs tonight. I ran to the bathroom as usual. I figure it was good to get something into my system. The Glucerna nutritional drinks do the same thing they just don't act as fast because there is nothing solid in my system. Anyway my doctor told me Wednesday that there was nothing he could do to treat me at home that I should be admitted in the hospital for IV fluids, nutrition, and steroids. My question is why can't he just up my steroids? I am very tired from not eating a lot but I guess I don't understand why the hospital would be the next step? I told him that I wanted to finish out work this week and then see how I am feeling and go if I don't feel better. I keep hoping that I will feel better, the next day or the next few hours, but I feel good for a while then the same old routine in the morning. I wake-up about 3:00ish in the morning with cramping and frequent bathroom trips then I get into a hot shower for about a half an hour or so then I dry off and sit on a heating pad, take Tylenol, then get ready for work. I work all day with milder bathroom trips and cramping. I come home and it starts all over again. What would you do if you were me?
Female, Left-sided colitis diagnosed at age 28 in 2001
Currently, I am in a terrible flare after taking Augmentin (antibiotic)
Trying to drink Glucerna for nourishment but even that upsets my stomach sometimes.
All my meds are approved by the doc. for breastfeeding but they still make me nervous.
3.5mg Low Dose Naltrexone (Stopped taking, didn't have time to wait for it to work), Prednisone 40mg, Zoloft, Asocal (but they are going straight through), enemas=hydrocortisone, Meselamine, vitamin E suppositories (I can bearly hold enemas in and they irritate). Prenatal vitamins, Juice Plus, Expecta DHA,Emergen C, VSL $$$$$ ( (Not taking all of my supplements right now they hurt too badly) Starting 1st Remicade infusion as of 2/24/09.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/26/2009 9:50 PM (GMT -6)   
I have suffered through times like that, and just suffered through and never go to the hospital.
But I've never lost my appetite like you describe. So if you can't eat, you might need some kind of IV and nutrition you can only get there. 40 mg is already a pretty big dose of prednisone.

So sorry you are suffering so.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. Doing OK, but still have some bad days. 


suse
New Member


Date Joined Feb 2009
Total Posts : 19
   Posted 2/26/2009 10:22 PM (GMT -6)   
Give yourself permission to slow down , either take some time off work or let them admit you to hospital .

The stress of pushing yourself is doing you more harm then good.

I went for a year having 6-10 bms before leaving for work in the morning . Having since experience improvment, after being off work for some time and trying many different treatments I can honestly say that I would never put myself through that again. You need relief , rest and nutrition in order to gain control again.

Take care of yourself , and accept the help when offered.

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 2/26/2009 10:58 PM (GMT -6)   
from what i've heard the iv steroids work better for some.
also if they can feed/rehydrate you in the hospital it will make you feel better.

burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 2/26/2009 11:19 PM (GMT -6)   
I went to hospital twice during my last flare. On both occasions I passed out after a BM. I was dehydrated and had not been eating well for 1 week at that time.
I stayed in the hospital for 6 hours and got IV during the first hospital visit, feeling much better when I went home. For the second time, which was 1 week later, I saw a GI specialist there. He put me on prednisone IV and then sent me home with a script for prednisone which saved my life. (It was a Sunday and I couldn't find my own GI doctor.)
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 2/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C, psyllium capsule (Metamucil) and bee propolis.

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