WOW are these posts scary! I've been on 6MP for more than five years now. It really hasn't kept me in remission, I have yearly flares, but I saw a GI surgeon and he explained to me that in his opinion my flares would have been much worse. Can't figure that one out because my last flare landed me in the hospital. However, my UC is confined to my rectum and the surgeon said after suffering with UC as long as I have I am fortunate it is still JUST in the rectum. The 6MP could be helping in that respect.
My regular GI doctor tried to put my mind at ease by relating that the dosage I am taking is much less than the dose given to cancer patients. Well, I lowered my dosage to 50 mgm one day and 25 the next. Taking 75 mgm of the 6MP lowered my white count drastically and I didn't like that one bit.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!! Hope I don't jinx myself. Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks. Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.