What is considered remission?

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Whatsaflaredown
Regular Member


Date Joined Feb 2009
Total Posts : 22
   Posted 2/27/2009 1:01 PM (GMT -6)   
Hi all,
 
I have been flaring since late Dec. 08. I was on prednisone for 8 weeks and when I tapered totally off them the flare got pretty major again. I was feeling hopeless and called the doctor after two weeks off prednisone and he gave me a new prescription for prednisone. I did not take it and am feeling much better now. I haven't had a solid bm yet but am only going typically 3 times a day. The urgency is still there a little and I still enjoy the big cramp pains a few times a day. The blood seems to only be coming from my hems. Is this remission? Will I ever feel normal again? Can I ever eat anything I like again?
 
By the way, I have read posts about exercising making things better. I finally felt good enough to try and exercise and it really does make me feel better. Even if I have to sprint to the John directly after :). I have always exercised and it seems to also help with staying positive so I appreciate the information and encourage everyone to try and exercise even when you are feeling icky.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 2/27/2009 1:04 PM (GMT -6)   
     No, I wouldn't consider how you are feeling as being in remission.  I am in remission and it is heaven!!!!!  It's how you felt before developing UC....no diarrhea, normal one a day bowel movement, no mucus, no urgency, no blood, no cramping = REMISSION!!
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 2/27/2009 1:07 PM (GMT -6)   
I probably wouldn't consider that remission, either. I'm down to three mildly urgent, somewhat formed BMs a day with no blood (I've never really had pain), and I consider myself ALMOST there. So, I'm not tapering any of my meds yet. I want to wait until I feel I've been in remission for a week before I do that.

Are you taking anything else besides prednisone?
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


Whatsaflaredown
Regular Member


Date Joined Feb 2009
Total Posts : 22
   Posted 2/27/2009 1:18 PM (GMT -6)   
I take 3 asacol 3X's a day. I also use Canasa before bedtime. I had every side effect possible with the prednisone and I mean every so that is why I opted to not take the second prescribed dose. I also use a hydro cream a few times a day because my hemms are pretty nice sized and active. I've changed my diet completely. Although I haven't tried the probiotics, that is my next course of action. I really don't want to be on prednisone if I can at all avoid it!

Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 2/27/2009 1:24 PM (GMT -6)   
I don't know but i'll tell you what i consider remission. First of all since prednisone was my UC magic drug and could eliminate symptoms so much it didn't feel I had UC then I would haved to be off that to even consider thinking remission. I mean i can't say i'm in remission if i were taking prednisone b/c you have to still taper and that is a UC battle all over again.
Once off prednisone i would want to feel as normal as possible or as close to my pre-UC days as possible. For me, my pre-UC days were 1-2BMs solid per day without any type of gastroentestinal problems so my remission would have to be similar considering I still had UC and UC has caused some damage that will take a long time to get better or quite possibly never get better.
So for me remission is no visible blood at all, 1-2 BM's a day without ever or hardly ever feeling bloated, have gas, or pain. The bowel movements wouldn't have any associated urgency issues meaning i would have time to choose a place to use the restroom. Also the stools would be as solid as my body can make them which is a lot different than my pre-UC days.
I have experienced this type of remission like 2 times since i've had UC so i know it's possible.
                                                                                         
28/M/TX single parent of gorgeous 3yo girl (revised 12/12/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  Mildly Flaring 
RX/day: none! Tapered off Prednisone 9/20/08. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: enzymes everyday, turmeric, seldom use probiotics, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: Prayer, food combos, good posture, chewing more, etc.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/27/2009 2:01 PM (GMT -6)   
I've never been in total remission, I always have some symptoms.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


Whatsaflaredown
Regular Member


Date Joined Feb 2009
Total Posts : 22
   Posted 2/27/2009 4:02 PM (GMT -6)   
Hi Peety,

That is what I am afraid of. I would love to feel normal again. I hope, for both of our sakes, that time will come :).

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 2/27/2009 5:10 PM (GMT -6)   
     and it will...think positively!  Last summer I was so darn sick...flare lasted from April thru end of Oct.  But my GI doctor said "We'll get you into remission...don't worry."  By golly...we did it!  Meds and lots of prayer...good combo.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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