Reverse Operation Advantages?

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inkboom
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 2/27/2009 2:51 PM (GMT -6)   
Hi everone,

Im 19 years young and had an end-ileostomy just 3 months ago. My doc says hes willing to reverse it (give me the pouch i understand) next sumer if im willing, so i came here for help..

I am very cool about my stoma, which we named "Lee." So its the the social thing im worried about. I want to here from anyone whose had a reversal about other advantages. I heard one can go to the toilet up even 10 times after reversal, but i dont know how real that is, so i really need someones help before i make this big decision.

Also, more importantly, after how long after surgery do u recommend exersise, for those who do sports. I (used to) do gymnastics, skateboarding, football and badminton) From your experiences, do u realistically think i can keep doing these things? competitively? thanks A LOT!

Thanks a lot bros (and sis' ;)
Essam

mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 2/27/2009 6:08 PM (GMT -6)   
inkboom,

I am sorry I haven't had surgery or I would try to give you advice. I am wondering if the folks on the Ostomies board could give you some advice? I wish you the best of luck with your decision. I myself have been thinking and thinking about surgery. Do/Did you have UC or Chrohns? Was your surgery a chose or an emergency type of thing? I like that you named your Stoma:)

Good Luck,
Melissa
Female, Left-sided colitis diagnosed at age 28 in 2001
Currently, I am in a terrible flare after taking Augmentin (antibiotic)
Trying to drink Glucerna for nourishment but even that upsets my stomach sometimes.
All my meds are approved by the doc. for breastfeeding but they still make me nervous.
3.5mg Low Dose Naltrexone (Stopped taking, didn't have time to wait for it to work), Prednisone 40mg, Zoloft, Asocal (but they are going straight through), enemas=hydrocortisone, Meselamine, vitamin E suppositories (I can bearly hold enemas in and they irritate). Prenatal vitamins, Juice Plus, Expecta DHA,Emergen C, VSL $$$$$ ( (Not taking all of my supplements right now they hurt too badly) Starting 1st Remicade infusion as of 2/24/09.


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 2/27/2009 6:21 PM (GMT -6)   

Hi Essam,
Welcome. You probably will get a lot of information from the Ostomies forum. They are also a great bunch of people on there!
My daughter had her temporary ostomy in July and her reversal in November. She is 17. For her, the reversal has been great. She had minimal issues right after surgery (butt burn, control, etc) but that went away within about 2 weeks. She has good control over her bowels. She can hold it until she is ready to go to the bathroom (no urgency). She generally poops when she pees. No big deal. For her, the pouch is exactly what she was hoping for. She did fine with the ostomy but looked forward to the reversal.

There are many people on the ostomy forum who love not having to find a bathroom. Many people are very active and athletic. Suebear (who posts both here and on the ostomy forum) has a j-pouch and hikes all over the world.

Check out the ostomy forum and ask lots of questions. I am sure you will get lots of answers.


--Mom of bratcat (17 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 2/28/2009 11:13 AM (GMT -6)   

This is really an individual decision.  If you're happy with your ostomy you don't need to purse additional surgery.  For me an ostomy never would have been an option.  I'm a backpacker and long distance hiker (100-200 miles) and with that activity I wanted to preserve traditional function.  I had a temp ostomy for 8 weeks and we never got along.  Frequency with a jpouch is higher but for me it's as quick as urinating.  The best advice I can give you is list the pros and cons of each choice and compare it to your lifestyle.  There is no perfect surgical decision but there is a choice that best fits you.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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