OMG...how horrific for you to be going through this! What exactly is the name of the particular blood infection? Have you done any research on it?
I don't know if the 2000 UI of vitamin D is high enough....my vig D is low..66, and I'm taking 2000 UI.
Are you also taking Calcium? Magnesium?
I cannot comment on the steroids....maybe your GI's wanting to use steroid topicals such as the rectal meds instead of the systemic meds. Maybe that's where you could start.
I would do two things....1)do the extensive research on what exactly you have and what it is you can do for yourself to help improve your situation before you see the doctor. 2)Make a list of extensive questions to ask your doctor.
Are you able to eat? Are you getting enough nutrients to sustain your situation?
Have you heard of a product called Ribose? It might help you with your energy and body pains. A friend of mine suggested it, and it seems to be helping. Oh, as well, her vitamin D was low....seems an epidemic.
I'm wondering if you have fissures or hemmorhoids or maybe a fistula or abscess in the perianal area? Did the doctor take a look to see what's possibly going on?
Have you taken a look to see what's going on? If the outside of the area is red/angry looking, maybe you could use a hydrocortisone cream. If that doesn't help, maybe you have a yeast infection and an antifungal product might work.
Zinc is also another thing that could help sooth a very sore butt.
Please keep us informed as to how you're doing.
Hang tough...hope the doctor is able to give you the answers you need.
*Heather* Status..Asacol (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!