Rowasa question?

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Woogy
Regular Member


Date Joined Apr 2004
Total Posts : 125
   Posted 2/27/2009 11:04 PM (GMT -6)   
Does anyone use Rowasa enemas as a maintenance drug?  I was using Rowasa 2 days every week and the new GI doc that I went to (the one who wants me to use Lialda and not LDN because she has never heard of it) told me by using these for only 2 days a week is going to do nothing for me.  Does that sound right?  Or should the Rowasa only be used for when you are in a bad flare?
Left-Side UC diag. 2002
Was in remission until June 2008
Been flaring since then!!  Ugh
LDN 4.5 mgs
Lialda 4 pills every AM (still deciding to take these)


RyanF
Regular Member


Date Joined Jan 2006
Total Posts : 358
   Posted 2/27/2009 11:31 PM (GMT -6)   
Some people use them on an as-needed basis. Many are tuned into their bodies enough to know when a flare is looming and will begin using the rowasa as preventative-- in this way I think it works very well. It also has helped me go into remission in the past. As for maintenance, I don't know. I mean if you're healthy and not flaring is it doing anything? Dunno. However, if you stay in remission for long periods and have no flares then there may be something to be said for your method.

I personally can't wait to stop using mine... they help me big time but they sure do mess me up in terms of bm's the next morning. Once that stuff is out I feel great.
Ryan


Meds:
Began Humira on 10 Jan 2009
Second injection: two pens on 24 Jan 2009
Third injection: two pens on 07 Feb 2009
Humira pen (1) weekly WIE UFN
Rowasa nightly
Canasa daily
Lialda X3
Probiotics + protein digestive enzymes


quincy
Elite Member


Date Joined May 2003
Total Posts : 30611
   Posted 2/27/2009 11:52 PM (GMT -6)   
The "should" be increased to nightly during a flare then once normal, start tapering to a maintenance dosage. (I've explained what I do in countless postings)

That's subjective, however. It's more of an ongoing process rather than nightly to twice weekly,

I've figured out my process through what I need...others have been able to taper off and then start when flaring then tapering off..etc.

The optimum maintenance dosage found through some studies is twice a week...I would equate that to every third or fourth night.

quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


gaff
Regular Member


Date Joined Jul 2006
Total Posts : 442
   Posted 2/28/2009 9:09 AM (GMT -6)   
I have been using them as a maintenance drug for 4 years.
gaff
left-sided UC since 11/05
 Rowasa, Colazal, Calcium, Centrum
Natren Healthy Trinity Probiotics


Risan1808
Regular Member


Date Joined Jan 2009
Total Posts : 153
   Posted 2/28/2009 10:13 AM (GMT -6)   
gaff,

Since you use rowasa as a maintenace drug how often do you use it?
Diagnosed Friday, February 13, 2009
Asacol 2 tabs 3X daily
Rowasa Nightly


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 348
   Posted 2/28/2009 10:43 AM (GMT -6)   
I believe that I read that it takes about 1 week of Rowasa to stop bleeding. Anyone have any stories on this?
26m - Dx January 2005: UC/Crohn's
Normal medication: 12 tablets of Asacol daily
New: Entocort 9 mg


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/28/2009 1:30 PM (GMT -6)   
I think you might not be able to expect them to completely stop bleeding, but they can sure sooth the inflammation in the lower part of your colon, right away.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 2/28/2009 5:15 PM (GMT -6)   
Right now, I plan to use them to maintain remission. As the inflammation starts in the rectum, and oral meds don't always reach the rectum, I think it makes sense to use them as a maintenance drug. My doctor thinks that using them 2-3 times per week will help keep me in remmission.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 3/1/2009 1:37 PM (GMT -6)   
I haven't had to use Rowasa in a while but I definitely reach for my Canasas any time something doesn't feel right.  My GI actually told me to use them as needed - so I always have a stash at hand.  I see nothing wrong with continuing to use them a few times a week as maintenance.

Mamas Boys
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!


theklep
Regular Member


Date Joined Nov 2007
Total Posts : 75
   Posted 3/3/2009 2:27 AM (GMT -6)   
I use Rowasa every night. I am in remission and have discovered that if you do both oral medication and Rowasa you can save yourself from sneaky flares. Not too mention that if you can afford it, it should be a no brainer because it does not hurt your body in any way. Plus if you want to avoid the whole steroids debacle than you may want to just suck it up and turn it into a nightly ritual before bed. I have, and ever since have been free of symptoms and I can tell you that if you try this you will be successful from now on. Please try this. it has been a great help to me.
Jeff, 24, Diagnosed July 2007 probably had it since 2005 but no real symptoms till July 2007 *Update 3/25/08: Entire Colon UC*
Lialda - 2.4mg 2x Day
Perrigo 1x Every night
Centrum Multi-Vitamin 1X Day
Probiotics by Ethical Nutrients- Intestinal Care (Started Recently During a Long Flare Seems To be Working Wonders) 2x day
Probiotics by VSL #3 (trying it out at 2x a day now)
Slow Fe (Iron supplement)- 1x day
Lexipro- 2x Day 10Mg
In What I Would Call a Remission....As Close to Normal As It Gets


teacupsunderfire
Regular Member


Date Joined Jul 2008
Total Posts : 46
   Posted 3/3/2009 9:48 AM (GMT -6)   
My Dr and I use them three or four days a week as needed, Its best to Treat Both Ends!
Lialda (4 pills/day), Canasa (as needed), 6MP, probiotics, multivitamin


Risan1808
Regular Member


Date Joined Jan 2009
Total Posts : 153
   Posted 3/3/2009 11:40 AM (GMT -6)   
Thanks everyone. I don't know what I would do without this forum. Probably be in a mental hospital by now. :) I will be discussing stayin on the Rowasa with my GI tomorrow.
Diagnosed Friday, February 13, 2009
Asacol 3 tabs 3X daily
Rowasa Nightly


quincy
Elite Member


Date Joined May 2003
Total Posts : 30611
   Posted 3/3/2009 4:24 PM (GMT -6)   
Keep us posted regarding your appointment.
q
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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