I always have symptoms, even when I'm not in full flare. I was hopeful when I learned of food sensitivities, but that only gave me temporary relief, symptoms returned, and I even started flaring again this week. Prednisone seems to have zapped things back to "normal" (for me) but I have a rare appointment Friday to talk to my GI about new treatments.
In years past she has always said there is nothing else that is worth the side effects. But now I think I am ready to take risks to see if there is opportunity for improvement in my quality of life, which has been controlled my my UC for decades now since I can't usually go more than about 2 hours without a bathroom. I am otherwise very healthy, my immune system seems to be strong. I'm not an alarmist about side effects, there's no way to know what will happen to me just because it happened to someone else.
I guess I'll ask about Humira, Remicade, mp6, Imuran, everything I can remember from here. She will probably again say that, since I have managed this long, never better but never worse, don't do it. But I'm tired of managing!
Our doctors have so many different view on these things, hers will be just one more.
What do you all think I should do?
Which of these heavy duty treatments should I try first, if any?
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares.
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin.
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.