For those of you in the raw food diet or who juice.

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mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 2/28/2009 11:12 PM (GMT -6)   
I am so interested in doing this especially juicing but I am wondering how people with UC/Crohns get started. I mean raw fruits and veggies just kill my stomach. So do you think the people that do this don't have as sensitive of a stomach as me (because I know we are all different) or did they start it while they were in remission? Which would make sense. Then maybe they ease their way into it. Anyway any information you can give would be appreciated.


Thanks,
Melissa
Female, Left-sided colitis diagnosed at age 28 in 2001
Currently, I am in a terrible flare after taking Augmentin (antibiotic)
Trying to drink Glucerna for nourishment but even that upsets my stomach sometimes.
All my meds are approved by the doc. for breastfeeding but they still make me nervous.
3.5mg Low Dose Naltrexone (Stopped taking, didn't have time to wait for it to work), Prednisone 40mg, Zoloft, Asocal (but they are going straight through), enemas=hydrocortisone, Meselamine, vitamin E suppositories (I can bearly hold enemas in and they irritate). Prenatal vitamins, Juice Plus, Expecta DHA,Emergen C, VSL $$$$$ ( (Not taking all of my supplements right now they hurt too badly) Starting 1st Remicade infusion as of 2/24/09.


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 3/1/2009 1:17 AM (GMT -6)   
If I was in the raw food diet or if I juiced, I'd be flaring.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 3/1/2009 2:07 AM (GMT -6)   
See that is what I was thinking? Fruits and Veggies have not been my friend for some time. But I keep hearing about UC/Crohns people doing it with successful remission. So I am assuming that either they know something about getting started that I don't or their systems can just handle it differently than mine.
Female, Left-sided colitis diagnosed at age 28 in 2001
Currently, I am in a terrible flare after taking Augmentin (antibiotic)
Trying to drink Glucerna for nourishment but even that upsets my stomach sometimes.
All my meds are approved by the doc. for breastfeeding but they still make me nervous.
3.5mg Low Dose Naltrexone (Stopped taking, didn't have time to wait for it to work), Prednisone 40mg, Zoloft, Asocal (but they are going straight through), enemas=hydrocortisone, Meselamine, vitamin E suppositories (I can bearly hold enemas in and they irritate). Prenatal vitamins, Juice Plus, Expecta DHA,Emergen C, VSL $$$$$ ( (Not taking all of my supplements right now they hurt too badly) Starting 1st Remicade infusion as of 2/24/09.


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 3/1/2009 12:05 PM (GMT -6)   
Their reasons for getting Colitis are different; so their treatment is different too.

You should do what works for you, not what works for others if it doesn't work for you.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 3/1/2009 12:10 PM (GMT -6)   
well, I gave it a try for a month or so... raw foods, not juicing. It was..... interesting???? Not a very good experience, overall. Increased diarrhea & mucous, blood, cramps. I gave it up after I realized I was doing more harm than good. I eat cooked veggies often, & fruit all the time, neither of which bother me at all. But the raw stuff was just killing me! That said, give it a go- you'll know pretty darn fast if it's helping or hurting. Plus the food just isn't all that good- I found myself craving comfort foods, like soft hot pasta with cheese! It's really hard to eat raw all the time, especially if it's cold outside.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/1/2009 12:15 PM (GMT -6)   

Soft, hot pasta is my friend!  It works great for me and any kind of cheese.  My NP told me to avoid anything raw while flaring and add gradual when feeling better.  I eat my fruit canned or cooked and veggies mushy - no problems.  But - everyone is different as we find here - what works for one doesn't not for another. 

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008
Tried all mesalamines and enemas, Canasa, etc.  Colonoscopy 10/28 showed only few cm. left to heal -hydrocortisone enemas 12 days - much worse. Cannot tolerate mesalamine!
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 Feb. 21 - down to 20 mg. - no blood, no pain, no bad side effects so far. Starting 6-MP Feb. 28 along with 20 mg. prednisone.
Probiotic Align, Prilosec for GERD
 
 
 


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 3/1/2009 12:30 PM (GMT -6)   

I started juicing while in a flare. because I figured that fruits and veggies are healthy and they contained some nutrient i was missing because I wasn't eating them.  For me, it wasn't the vegetable/fruit, it was the whole vegetable/fruit that caused me problems...chunks of carrots, whole lettuce leaf, etc on its way out. 

I started juicing since I'm not inclined to eating vegetables or fruits, and for a while it was great.  Then I did the math and I can buy the V8 Fusion drinks (they contain a full serving of fruits and a serving of veggies in every 8 oz glass) for less than my weekly juicing fruits/veggies.  My juicer sits idle, waiting for the day when I get the juicing bug again.  But I continue to drink the V8 fusion.  I go through about 4 bottles a week.

If you are unsure whether you can tolerate things, buy a V8 fusion and try some.  If it hurts, don't drink anymore.  It is important to note that citrus juices can interfere with some medications, so do a little research before you begin drinking tons of fruit drinks.  Some meds are rendered ineffective or less effective, while others are amplified by citrus.

 



 
36 y.o. male
Diagnosed w/ UC in May '06, had symptoms since '99
Meds & supplements: VSL#3, Lialda, Allegra, multi-vitamin, buproprion, fluoxetine, and vit E, D, zinc.
Started LDN: 1.5mg for now


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 3/1/2009 3:03 PM (GMT -6)   
Thanks for the input everyone. I already bought a juicer a while back, because I just knew that this is what was going to put me into remission idea Anyway it has/did not. I keep trying. I guess that is what we all do. Any other people with success or non success stories in this are please post so that I can gain some insight. That said Subdued mentioned peoples reasons for getting UC. I have been thinking and thinking wondering and wondering about my possible reasons. I know that I will never know for sure but I really think it was antibiotics. But for now I am wondering what the other possiblities are???????
Female, Left-sided colitis diagnosed at age 28 in 2001
Currently, I am in a terrible flare after taking Augmentin (antibiotic)
Trying to drink Glucerna for nourishment but even that upsets my stomach sometimes.
All my meds are approved by the doc. for breastfeeding but they still make me nervous.
3.5mg Low Dose Naltrexone (Stopped taking, didn't have time to wait for it to work), Prednisone 40mg, Zoloft, Asocal (but they are going straight through), enemas=hydrocortisone, Meselamine, vitamin E suppositories (I can bearly hold enemas in and they irritate). Prenatal vitamins, Juice Plus, Expecta DHA,Emergen C, VSL $$$$$ ( (Not taking all of my supplements right now they hurt too badly) Starting 1st Remicade infusion as of 2/24/09.


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 3/1/2009 8:31 PM (GMT -6)   
mjw82704 said...
I have been thinking and thinking wondering and wondering about my possible reasons. I know that I will never know for sure but I really think it was antibiotics. But for now I am wondering what the other possiblities are???????


If it was antibiotics, then there is a good chance that fecal transplantation will help greatly. It put my second flare into remission. But then I had to take antibiotics again, and I got another flare. Probiotics should also help.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/1/2009 8:44 PM (GMT -6)   
Juicing is a great alternative to eating fruits and veggies that you otherwise can't handle eating, at least you have somewhat a better chance of getting some nutrients in you...what works for some doesn't work for all, you won't necessarily go into remission from juicing or doing raw food diet...

I saw the guy on "The Doctors" show that does the raw food diet, he explained that he actually had cancer and didn't want to continue with his life because the treatments (chemo/radiation, ect) made him so sick so he decided to eat raw meat in the hopes that it would kill him and it ended up healing his cancer (according to him). But his lips were a weird red and chapped looking, his tounge was also a very dark weird red looking and watching him eat raw chicken on TV almost made me throw up (and I have a pretty strong stomach when it comes to gross things).

To each their own.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 3/2/2009 1:04 AM (GMT -6)   
I never saw or heard of anyone eating raw meat to heal themselves but that sounds really really yucky. But as you said to each their own. Actually when I was a little girl I had a friend whose family used to eat raw hamburger rolled with some salt I certainly did not try it. They also used to eat bananas and mayonnaise. Wow that brought back some gross memories for me smilewinkgrin
Female, Left-sided colitis diagnosed at age 28 in 2001
Currently, I am in a terrible flare after taking Augmentin (antibiotic)
Trying to drink Glucerna for nourishment but even that upsets my stomach sometimes.
All my meds are approved by the doc. for breastfeeding but they still make me nervous.
3.5mg Low Dose Naltrexone (Stopped taking, didn't have time to wait for it to work), Prednisone 40mg, Zoloft, Asocal (but they are going straight through), enemas=hydrocortisone, Meselamine, vitamin E suppositories (I can bearly hold enemas in and they irritate). Prenatal vitamins, Juice Plus, Expecta DHA,Emergen C, VSL $$$$$ ( (Not taking all of my supplements right now they hurt too badly) Starting 1st Remicade infusion as of 2/24/09.

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