insomnia and pred help

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buckeyeinchicago
Regular Member


Date Joined Feb 2009
Total Posts : 40
   Posted 3/1/2009 7:13 PM (GMT -6)   
Does anyone have any ideas about helping with sleeping on Prednisone. I was going to call my doctor tomorrow and ask to be put on something but I'd like some ideas firs.t Since the first day I went on it I haven't had a full night's sleep. I wake up constantly and don't fall asleep until really late. What have others done? I've been taking simply sleep but last night even that didn't do the trick.
Diagnosed when 13 and am now 25, female. Currently taking 100mg of 6mp, 60 mg of prednisone and 12 pills of asacol a day.  I tried cortifoam for this flare and it didn't work.  In the past I've tried rowasa, enemas, pentasa, colazal, sulfasalizine.  I was in a four year remission until the end of January.


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 3/1/2009 7:18 PM (GMT -6)   
The insomnia is the worst part of the pred.  You're exhausted but you just can't sleep!  One thing that helps a little is to try to take your full dose early in the day - or at leat finish taking it earlier in the day.  That should help a little.  After that - warm milk?  (If you can tolerate it.)  I used to go to sleep early when I felt tired.  Fall asleep and then wake up at like 1 am and be awake for most of the night - then fall back asleep like 5 ish - just in time to have to get up and get the kids ready for school!  :(  No real words of advice other than - was in your position and it does eventually get better as you get to lower doses and finally off it completely.

Mamas Boys
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/1/2009 8:28 PM (GMT -6)   
You might find you don't really need as much sleep. I stay up later and get up earlier. Make use of the extra hours and energy instead of fighting to try to sleep as much as you did.

That said...I take a dose of Trazodone, have done that for years and it helps me stay asleep, whether I'm on prednisone or not. It's a woman thing.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/1/2009 9:02 PM (GMT -6)   
To help pred insomnia take your pred first thing early in the am and you shouldn't have any issues with sleeping, you still might have a little "racing mind" going on but you should still be able to sleep, the earlier in the am you take it the better.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 3/1/2009 9:13 PM (GMT -6)   
So they say pb.  Never worked for me.  I was still up all night.  I think I must have been sensitive to it because I am also still suffering side effects from the pred and it's been 3 years since I was on it.

Mamas Boys
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!


JM21204
Regular Member


Date Joined Dec 2008
Total Posts : 254
   Posted 3/1/2009 11:02 PM (GMT -6)   
My dr. prescribed me ambien for when I'm on Prednisone. I try not to take it every night but it really helps me. An almost effective drug for me is benadryl - knocks me out almost as much as the ambien and it's OTC of course which is nice. Also, same as others said - take it first thing in the morning.
34 yr old female
Diagnosed with Pancolitis in 1/2007
Baby due 3/2009
Meds:1600 mg Asacol a day, Ferrex, Pre-Natal Vitamins, Lovenox, on and off Prednisone (40 mg then taper)
 


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 3/1/2009 11:07 PM (GMT -6)   
When I was on Prednisone I took the whole dose (from 35 mg tapering to 0) before 8 am. I was so weak back then. I usually felt exhausted after dinner. Taking a shower was a challenge and I went to bed after I had finished. That's around 9 pm and I would fall asleep without any problem.
Hope you will feel better soon.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 2/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C, psyllium capsule (Metamucil) and bee propolis.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 3/1/2009 11:20 PM (GMT -6)   
Mamas Boys said...
So they say pb.  Never worked for me.  I was still up all night.  I think I must have been sensitive to it because I am also still suffering side effects from the pred and it's been 3 years since I was on it.


That seems awfully odd that 3 yrs later you'd still have insomnia effects from taking pred previously...maybe you have something eles going on and it was coincidence when you were on pred and started having sleep issues...if it were me, I'd investigate further because I've never known pred to cause continual insomnia effects 3 yrs later.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


dodge08
Regular Member


Date Joined Feb 2009
Total Posts : 31
   Posted 3/2/2009 7:42 AM (GMT -6)   
burnabygirl said...
When I was on Prednisone I took the whole dose (from 35 mg tapering to 0) before 8 am. I was so weak back then. I usually felt exhausted after dinner. Taking a shower was a challenge and I went to bed after I had finished. That's around 9 pm and I would fall asleep without any problem.
Hope you will feel better soon.

Yes, when i was on the higher doses, I always had to take it atleast by 8am so that I could get some sleep.  When I was on the 40 mg I hardly slept at all.
By the time I was down to about 15mg, I was sleeping much better, tomorrow I am down to 2.5! I can't wait.
Male 38, diagnoised in 1998, first major flare in November 2008, have had 2 remicade infusions
have used pentesa, salofalk pills (mesalamine), and enema's.
Started salofalk again until I can get my next remicade.
currently decreasing predisone, take folic acid, calcium, vitamin D, HMP powder and a multi vitamin


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 3/2/2009 7:51 AM (GMT -6)   
PB - not insomnia - weight issues - which are directly related to the pred.  got it checked out by my gi and an endocronologist!  Ah - the joys...

Mamas Boys
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!


buckeyeinchicago
Regular Member


Date Joined Feb 2009
Total Posts : 40
   Posted 3/2/2009 8:16 AM (GMT -6)   
Unfortunately, I already take the prednisone at around 5:30 AM and I still am having the issues at night. We have bad timing and are trying to buy a house now and that is also keeping me up. But I know that the prednisone started it as I have never had this bad of a time sleeping.
Diagnosed when 13 and am now 25, female. Currently taking 100mg of 6mp, 60 mg of prednisone and 12 pills of asacol a day.  I tried cortifoam for this flare and it didn't work.  In the past I've tried rowasa, enemas, pentasa, colazal, sulfasalizine.  I was in a four year remission until the end of January.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 3/2/2009 9:38 AM (GMT -6)   
     I suffered terribly with insomnia while on prednisone and I also took it early in the morning.  My doctor prescribed Ambien CR.  I found that in the beginning it did help but the longer I took it I sort of got addicted to it and the 6.5 dosage just wasn't cutting it.  I've been off prednisone since Nov 1st and still have problems sleeping at times.  I try to drink a cup of green tea without caffeine.  That sometimes helps.  Other times I take a Tylenol PM.  Tylenol is not good for the liver, so I only try to take it occassionally.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


AmyG
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/2/2009 10:27 AM (GMT -6)   
This might sound sort of silly, but one thing that really helps me when I am on Pred and can't sleep is wearing ear plugs. I found that slight noises would wake me very easily. Once awake, the mind engages and there is no going back to sleep. The ear plugs help to block some of the noise and help me stay asleep for a longer stretch.

JM21204
Regular Member


Date Joined Dec 2008
Total Posts : 254
   Posted 3/2/2009 10:58 AM (GMT -6)   
Oh yeah I also found sleeping on my back made it harder to fall asleep. It was like I could feel my heart beating right out of my chest. But when I rolled on my side or stomach it wasn't as evident.

I can't wait to be able to sleep on my stomach again :) 8 more days and this baby's coming out!
34 yr old female
Diagnosed with Pancolitis in 1/2007
Baby due 3/2009
Meds:1600 mg Asacol a day, Ferrex, Pre-Natal Vitamins, Lovenox, on and off Prednisone (40 mg then taper)
 


Howright
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 3/2/2009 4:19 PM (GMT 0)   
 
I do have problems sleeping when I'm first prednisone and I don't sleep but I'm not tired during the day either.  It's very weird.   
 
Diagnosed January 07 - but realize I've been living with minor flare-ups for 10+ years. 
 
Asacol 3 pills/3 times a day.
 


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 3/3/2009 12:28 AM (GMT -6)   
I take benadryl to help me sleep when I am on pred
Jessica 27/F
Remicade
Entorcort 9ml
Lialda 2.4GM
Citalopram 20 MG
omeprazole(for acid reflex)
Tried (Entorcort EC 9ml/day and Prednisone, Asacol ,colazal, Culturelle, dicyclomine)


teacupsunderfire
Regular Member


Date Joined Jul 2008
Total Posts : 46
   Posted 3/3/2009 2:08 PM (GMT -6)   
the doctor gave me a prescription for Lunesta. That's the one you see all the commercials on TV for with the butterfly that helps you sleep. Lunesta is designed for long-term use with less chance of addiction. So, I started taking these 1mg capsules Monday evening. I slept fairly well Monday night, waking up only to go to the bathroom (which is still normal, given the flare and all). I went to sleep between 10:30pm and 11:00pm, and awoke a little before 7:30am. This is what I would classify as a good night's sleep.

Having enjoyed a good night of sleep on Monday, I took the Lunesta again on Tuesday night. I took it at 9:00pm with all of my other medications, just like on Monday night. We went to sleep around 10:00pm, which is about normal (for now). Again, I fell asleep fairly easily, and did not awaken until about 2:15am to go to the bathroom. that was it, i couldn't fall back to sleep, Now I am on 3mg and i sleep like a baby every night.
Lialda (4 pills/day), Canasa (as needed), 6MP, probiotics, multivitamin

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