essay on UC in NYT

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UCinNC Veteran Member Date Joined May 2007 Total Posts : 528	Posted 3/2/2009 8:04 PM (GMT -6)
	This essay in the new york times is about living with UC. <http://www.nytimes.com/2009/03/03/health/03cases.html?ref=health> 30/Female/NC Pancolitis dx 3/07 9 Colazal a day 150mg Imuran/day (was steroid dependent, reached this dose 9/07) Rowasa in PM once/week (my GI says research shows once/week helps maintain remission) Getting married October, 2008!!!! Back to Top

RyanF Regular Member Date Joined Jan 2006 Total Posts : 358	Posted 3/2/2009 10:27 PM (GMT -6)
	Thanks for sharing that... I had to laugh when she described the things she delighted in so much that everyone else calls normal. For me, it was the first time I headed to the bathroom and pee-ed standing up! LOL I was ecstatic!! For you guys out there, you hear what I'm saying. Ryan Meds: Began Humira on 10 Jan 2009 Second injection: two pens on 24 Jan 2009 Third injection: two pens on 07 Feb 2009 Humira pen (1) weekly WIE UFN Rowasa nightly Canasa daily Lialda X3 Probiotics + protein digestive enzymes Back to Top

bookworm21 Veteran Member Date Joined Mar 2008 Total Posts : 1766	Posted 3/3/2009 6:52 AM (GMT -6)
	The one day that I don't read the NYTimes there's a UC article! :) I'm in the same place--in remission, but always worried about when I'll flare next. You wrote this article, right? I liked the lines "Afraid to believe in something so ephemeral as remission, reluctant to trust this coquettish sweetness called normalcy," "It’s a contract scribbled on a rain cloud," and "Like a mama bird, he is gently nudging me out of the nest. He wants me to fly away." How does one become a contributer to a newspaper or magazine? I've always wondered about that. Female, Age 20 (formerly ComedyDork) ~~9 Asacol~~, ~~Rowasa~~, ~~1000 mg Canasa~~, ~~Proctofoam~~, ~~Rifaximin 2/day~~ ~~Digestive Advantage (Crohn's & Colitis)~~, ~~1 Florastor~~, ~~50 mg 6MP~~,~~1 Primadophilus reuteri~~, Remicade (6 infusions), ~~2.4 g Lialda~~, Forvia, 6 Colazal, ~~1 Anucort~~, ~~Culturelle~~, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3 Back to Top

Red_34 Forum Moderator Date Joined Apr 2004 Total Posts : 23551	Posted 3/3/2009 7:20 AM (GMT -6)
	Very well written. This something that I have believed in for a long time. I KNOW I will flare again but in the meantime, I live life as if I don't have a chronic illness. Sure, I know that it will always be there but when I am feeling normal I want to enjoy what life has to offer. I live in the now and I try not to worry about tomorrow. I believe this is a huge hurdle that many people have to overcome. ^{@--->--SHERRY--<---@} ^{Moderator for Allergies/Asthma and Co-moderator for UC} ^{~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-BioUnable to tolerate Asacol, Rowasa or Canasa}^{~Year-round allergies-Singulair, Zyrtec}^{~Secondary Reynauds Syndrome-'04-Norvasc}^{~Sacroiliitis}^{-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel} ^{To help Healingwell - click here: DONATE} http://www.myspace.com/82595818 Back to Top

Mamas Boys Veteran Member Date Joined Oct 2005 Total Posts : 1460	Posted 3/3/2009 8:35 AM (GMT -6)
	Thanx for sharing. That was great. Mamas Boys Colazal, Azathioprine, Remicade Culturelle, MultiVitamin, Folic Acid, Viactiv Status: Remission!! Back to Top

suebear Forum Moderator Date Joined Feb 2006 Total Posts : 5698	Posted 3/3/2009 9:24 AM (GMT -6)
	Loren, Great article! Your words certainly summed up my feelings with UC. Thanks for being a spokesperson for many. Sue dx proctitis in 1987 dx UC in 1991, was stable until 1998 1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics 2000 lost all my B-12 stores and became anemic 2001 opted for j-pouch surgery- now living life med-free Back to Top

teacupsunderfire Regular Member Date Joined Jul 2008 Total Posts : 46	Posted 3/3/2009 10:06 AM (GMT -6)
	This is a Great Article! I love her words ". I can take road trips with my husband, and attend movies at the mall. I can make plans and keep them. " Lialda (4 pills/day), Canasa (as needed), 6MP, probiotics, multivitamin Back to Top

WhiteSox1 Regular Member Date Joined Oct 2007 Total Posts : 135	Posted 3/3/2009 1:31 PM (GMT -6)
	Fantastic article. Thanks for sharing. Pancolitis - Diagnosed on 9/6/07 Asacol 4 pills 3x's daily Imuran 150mg. Canasa Multi-Vitamins Calcium with Vit. D Tablets Back to Top

dakotagirl Veteran Member Date Joined Apr 2006 Total Posts : 3402	Posted 3/3/2009 2:05 PM (GMT -6)
	Kudos! I really enjoy reading your articles Lauren :) Pan-colitis and GERD diagnosed May 2003 Osteopenia (hip and spine) diagnosed Feb 2006 Status: Remission Asacol 12 per day, Azathioprine 50mg, Aciphex, Effexor XR, Forvia, Fibercon, and Culturelle Remicade: 1st infusion 06/17/08: Next infusion: end of March or early April Last Prednisone dose: 7/15/08 Co-Moderator UC forum: Keep HealingWell running smoothly: www.healingwell.com/donate Back to Top

Colitis Confusion New Member Date Joined Jan 2009 Total Posts : 17	Posted 3/4/2009 9:12 AM (GMT -6)
	Great articles. You are a very good writer and describe the emotions and thought processes of myself almost perfectly. I have shared them with all of my friends and family that have asked a lot about UC, but you did a good job of putting my feelings, thoughts, hopes, and fears into words. Thanks for sharing. Asacol - 12 per day Prednisone - could be back up to 40 mg : ( Imuran - 100 mg Omega 3 - 1 per day Back to Top

princesa Veteran Member Date Joined Aug 2007 Total Posts : 2204	Posted 3/4/2009 1:25 PM (GMT -6)
	The author is lucky. Most of the GIs I've seen seem to take the attitude of "Your remission is a fluke. It will be over soon. Call us when you flare again," even though I've pretty much been in remission for years. It would be nice to find one who's happy about my success. Diagnosed with ulcerative colitis spring 1999. Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips. Back to Top

tooth fairy Regular Member Date Joined Jan 2008 Total Posts : 98	Posted 3/4/2009 7:53 PM (GMT -6)
	Yet another fantastic article, congratulations!! I'll be forwarding this to all of my family, just like the last one. Thanks so much-- Erica, 31 Pancolitis, diagnosed July 2006, at age 29 Imuran, Asacol, Rowasa*(new!) Experimenting with diet, live culture yogurt and probiotics Back to Top

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