essay on UC in NYT

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Veteran Member

Date Joined May 2007
Total Posts : 528
   Posted 3/2/2009 8:04 PM (GMT -6)   
This essay in the new york times is about living with UC.
Pancolitis dx 3/07
9 Colazal a day
150mg Imuran/day (was steroid dependent, reached this dose 9/07)
Rowasa in PM once/week (my GI says research shows once/week helps maintain remission)
Getting married October, 2008!!!!

Regular Member

Date Joined Jan 2006
Total Posts : 358
   Posted 3/2/2009 10:27 PM (GMT -6)   
Thanks for sharing that...

I had to laugh when she described the things she delighted in so much that everyone else calls normal. For me, it was the first time I headed to the bathroom and pee-ed standing up! LOL I was ecstatic!! For you guys out there, you hear what I'm saying.

Began Humira on 10 Jan 2009
Second injection: two pens on 24 Jan 2009
Third injection: two pens on 07 Feb 2009
Humira pen (1) weekly WIE UFN
Rowasa nightly
Canasa daily
Lialda X3
Probiotics + protein digestive enzymes

Veteran Member

Date Joined Mar 2008
Total Posts : 1766
   Posted 3/3/2009 6:52 AM (GMT -6)   

The one day that I don't read the NYTimes there's a UC article! :)

I'm in the same place--in remission, but always worried about when I'll flare next.

You wrote this article, right? I liked the lines "Afraid to believe in something so ephemeral as remission, reluctant to trust this coquettish sweetness called normalcy," "It’s a contract scribbled on a rain cloud," and "Like a mama bird, he is gently nudging me out of the nest. He wants me to fly away."

How does one become a contributer to a newspaper or magazine? I've always wondered about that.
Female, Age 20 (formerly ComedyDork)
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (6 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3

Forum Moderator

Date Joined Apr 2004
Total Posts : 23551
   Posted 3/3/2009 7:20 AM (GMT -6)   
Very well written. This something that I have believed in for a long time. I KNOW I will flare again but in the meantime, I live life as if I don't have a chronic illness. Sure, I know that it will always be there but when I am feeling normal I want to enjoy what life has to offer. I live in the now and I try not to worry about tomorrow. I believe this is a huge hurdle that many people have to overcome.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
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Mamas Boys
Veteran Member

Date Joined Oct 2005
Total Posts : 1460
   Posted 3/3/2009 8:35 AM (GMT -6)   
Thanx for sharing.  That was great.

Mamas Boys
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!

Forum Moderator

Date Joined Feb 2006
Total Posts : 5698
   Posted 3/3/2009 9:24 AM (GMT -6)   

Great article! Your words certainly summed up my feelings with UC. Thanks for being a spokesperson for many.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Regular Member

Date Joined Jul 2008
Total Posts : 46
   Posted 3/3/2009 10:06 AM (GMT -6)   
This is a Great Article! I love her words ". I can take road trips with my husband, and attend movies at the mall. I can make plans and keep them. "
Lialda (4 pills/day), Canasa (as needed), 6MP, probiotics, multivitamin

Regular Member

Date Joined Oct 2007
Total Posts : 135
   Posted 3/3/2009 1:31 PM (GMT -6)   
Fantastic article.

Thanks for sharing.
Pancolitis - Diagnosed on 9/6/07
Asacol 4 pills 3x's daily
Imuran 150mg.
Calcium with Vit. D Tablets

Veteran Member

Date Joined Apr 2006
Total Posts : 3402
   Posted 3/3/2009 2:05 PM (GMT -6)   
Kudos! I really enjoy reading your articles Lauren :)
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission
Asacol 12 per day,  Azathioprine 50mg, Aciphex, Effexor XR, Forvia, Fibercon, and Culturelle
Remicade: 1st infusion 06/17/08:  Next infusion: end of March or early April
Last Prednisone dose:  7/15/08
Co-Moderator UC forum:  Keep HealingWell running smoothly:

Colitis Confusion
New Member

Date Joined Jan 2009
Total Posts : 17
   Posted 3/4/2009 9:12 AM (GMT -6)   
Great articles. You are a very good writer and describe the emotions and thought processes of myself almost perfectly. I have shared them with all of my friends and family that have asked a lot about UC, but you did a good job of putting my feelings, thoughts, hopes, and fears into words.

Thanks for sharing.
Asacol - 12 per day
Prednisone - could be back up to 40 mg : (
Imuran - 100 mg
Omega 3 - 1 per day

Veteran Member

Date Joined Aug 2007
Total Posts : 2202
   Posted 3/4/2009 1:25 PM (GMT -6)   
The author is lucky. Most of the GIs I've seen seem to take the attitude of "Your remission is a fluke. It will be over soon. Call us when you flare again," even though I've pretty much been in remission for years. It would be nice to find one who's happy about my success.
Diagnosed with ulcerative colitis spring 1999.
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.

tooth fairy
Regular Member

Date Joined Jan 2008
Total Posts : 98
   Posted 3/4/2009 7:53 PM (GMT -6)   
Yet another fantastic article, congratulations!! I'll be forwarding this to all of my family, just like the last one. Thanks so much--
Erica, 31
Pancolitis, diagnosed July 2006, at age 29
Imuran, Asacol, Rowasa*(new!)
Experimenting with diet, live culture yogurt and probiotics

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