Canasa vs. Steroid Suppositories

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meikaidi
New Member


Date Joined Dec 2008
Total Posts : 18
   Posted 3/3/2009 10:44 AM (GMT -6)   
Hello!
I did a little quick search and I did not find anything exactly like my question so I hope I am not being redundant. Anyway, I was given both steroid suppositories and Canasa suppositories for a recent flare of my Ulcerative Colitis. I was initially put on prednisone and protosert (the steroid suppositories) which got rid of all my symptoms including the blood. Now, my question is… is it okay for me to just start using Canasa suppositories or is it best to taper? I asked my doctor and she could not give me a straight answer. She just said to experiment and see what works best. Also, is it okay to use both, alternating between days? Lastly, I am planning on getting pregnant and I was wondering if anyone had an experience with using steroid suppositories while pregnant. My doctor said it would be okay for me to use them while pregnant but I am a little reluctant. I have yet to try out the Canasa suppositories but have used Rowasa enemas in the past so I am not worried about side effects. I'd also love to hear anyone's experiences with canasa vs. steroid suppositories. Thanks in advance for your help and advice!

Katie

Diagnosed with Pancolitis in October 2006.
Current Meds: Lialda 3 pills-2.4mg tabs, Prednisone (15mg, tapering), Proctosert 25mg

teacupsunderfire
Regular Member


Date Joined Jul 2008
Total Posts : 46
   Posted 3/3/2009 11:20 AM (GMT -6)   
Try Rowsa It is like Canasa but get higher up with the medicine and seems to work better.
Lialda (4 pills/day), Canasa (as needed), 6MP, probiotics, multivitamin


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 3/3/2009 11:34 AM (GMT -6)   
Katie,

Yes, you can use them at the same time, and yes, you should taper.

For about four months, I used both Canasa and steroid suppositories daily -- steroid in the morning, Canasa at bedtime. I tapered slowly off the steroid suppositories (as recommended by my GI's nurse), first skipping every third day for a week or so, then every other day, then using one every third day... I had been using Canasa for almost four months before adding the steroid suppositories; the steroid suppositories (and smooth Metamucil) seemed to be what helped me start improving.

Good luck to you --
emory
41, female
Dx ulcerative proctitis, 3-5 cm, June 2008. Still flaring? Not sure.
Canasa 1000 mg suppositories and 1 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories (tapering) and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, and Trazodone 75 mg for sleep/anxiety (clonazepam as needed)
2.5 mg methimazole for thyroid
Had some success with acupuncture
Osteopenia and other assorted ailments


meikaidi
New Member


Date Joined Dec 2008
Total Posts : 18
   Posted 3/3/2009 3:32 PM (GMT -6)   
Thanks for your advice teacupsunderfire. I have used Rowasa in the past and had little success but had only used it for about a week. The flare got worse so I stopped using it after I had been on prednisone. I will think about using it again if the Canasa and Proctosert does not help.

Thanks emory! I will give the taper a try. Sometimes doctors can be so elusive with advice! My doctor's usual response is "you know your body best!" I can only fight this myself so much.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 3/3/2009 4:00 PM (GMT -6)   
     Last year while in a flare I had a hard time keeping the Cort enemas in so the doctor prescribed Canasa.  I took it for awhile until my condition started to improve, then took Canasa and Cort enemas on alternating night.  Worked for me.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 3/3/2009 9:13 PM (GMT -6)   
Slowly replace your steroid supps with Canasa.  First use the Canasa twice in the week - then 3 times - then every other day - etc. till you are only using the Canasas and not the steroids.  If you find that you are getting symptomatic - slow down.
Mamas Boys
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!


meikaidi
New Member


Date Joined Dec 2008
Total Posts : 18
   Posted 3/3/2009 10:21 PM (GMT -6)   
Thanks for your advice everyone!
I'm still looking to hear if anyone has used either Canasa or steroid suppositories while pregnant?

*Jen*
Veteran Member


Date Joined Jul 2005
Total Posts : 514
   Posted 3/4/2009 12:27 AM (GMT -6)   
I used hydrocortisone enemas with my first pregnancy, which I am guessing would be similiar to the suppositories. 
I was in a HORRIBLE flare when I was 6 weeks pregnant and they helped to get it back under control.  I had to use them for 2-3 weeks and then was able to switch back to rowasa enemas and then tapered those down to once a week.  You will have to see how the pregnancy goes.  Some women flare and some stay in remission.  I flared badly with my first pregnancy(but I was on NO meds like an idiot) and only had a very minor flare with my second.  With both pregnancies I had pretty bad flares after giving birth.  With my first it was 6 weeks after and my second it was 4 weeks after.  Be prepared in case you do flare as you will need help with the newborn and trying to get yourself back in remission.  That part is not fun if it happens to you.  The hormones play a huge role in my UC symptoms.  If you need anymore advice let me know. 
Diagnosed: 
Officially Diagnosed with UC in June 2003.  Have had stomach issues since 1989.  Unknown if they are related or not.  Have mild/moderate UC.  Have had 4 flares, the last one caused by hormones from stopping breastfeeding.  Currently back in remission!  Only taking 6 Asacol a day.   Will take Rowasa enemas as needed. Colozal did not work for me.  Luckily my UC is relatively minor and responds well to meds, but man do those flares hurt!
 
 


meikaidi
New Member


Date Joined Dec 2008
Total Posts : 18
   Posted 3/4/2009 9:11 AM (GMT -6)   
Thanks for your input Jen! Hormones also play a role in my UC as well. I tend to get mini flares during my period. Not fun! I am hoping I am one of those women that do better during pregnancy. I am crossing my fingers :)
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