I'm sorry your daughter has UC, especially at such a young age.
How severe is her UC? Have you seen her c-scope pictures? Is she anemic? Does she bleed a lot? Ask the doctor why exactly he thinks she should start Remicade.
I know Remicade sounds scary, but there have only been a few cases of cancer and those have been with patients using both Remicade and immunosuppresants (6MP, Imuran) at the same time. I still go to a pediatric hospital, and a lot of kids come in for Remicade, so it's not that uncommon. But the thing about Remicade is that it's only been around for 10 years, so we don't what it's long-term effects will be; this is what freaks me out even though Remicade has put me into remission.
I'm surprised that her doc hasn't put her on any of the 5ASAs, like Asacol/Colazal/Lialda/Sulfa. If you don't think her UC is too bad, ask for one of the 5ASAs and see if she improves. I remember that at initial diagnosis my GI wanted to put me on steroids, and I refused; I went into remission within a couple of weeks with just Asacol.
Ultimately, the decision is up to you to decide what's best for your daughter. But try to find out more specific info about her condition before making a decision.
A good book that I recommend to read is Jill Sklar's The First Year: Crohn's and Ulcerative Colitis: An Essential Guide for the Newly Diagnosed.
Oh, and welcome to HealingWell!
Female, Age 20 (formerly ComedyDork)
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP, 1 Primadophilus reuteri, Remicade (6 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3
Post Edited (bookworm21) : 3/4/2009 7:19:43 AM (GMT-7)