Still alive [Long Rant]

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Fremen
New Member


Date Joined Jan 2009
Total Posts : 17
   Posted 3/5/2009 2:50 PM (GMT -6)   
Well, those of you who remember me, I am still alive. I've managed not to die either by my symptoms or myself. So I guess that's good. The last weeks have been up and down. For a while it seemed as if I was going to recover on prednisone alone. I would have perhaps 3 trips to the bathroom a day, with only the last one having a little bit of blood. Now I'm going maybe six times a day with massive amounts of blood. The pain is also returning with a vengeance. Luckilly I've been able to stop any weight loss (and may have actually gained some weight back, despite being in a flare) with diet and protein shakes. I'm on 50 mg of prednisone, but am taking two calcium supplements twice a day to hopefully slow it down. Right now it doesn't appear the prednisone is doing anything, so I'm going to ask my doctor if I can get off of it.

I went for a scope on Tuesday and I see my GI tomorrow. Although the biopsy results won't be in then, I'll be seeing him again maybe a week after that. He's already stated that he wants to start me on Remicade. I am pretty reluctant. The side effects of Remicade seem worse than UC. I'm contemplating skipping the immuno-suppressive step and going right to surgery. I've seen many testimonies from people who had surgery saying it gave them their life back and they wish they'd done it sooner. With Remicade I've seen only a few people say anything even close to that, most saying it gave them a remission but it came back anyways. Right now I don't see the point of messing with my immune system further if there's still a chance that it could come back and require surgery anyways. Feel free to give your opinions or stories.

As far as my personal life, I returned to work three our four weeks ago. And have been doing well there so far. However I've been unable to make the commute to school and I've missed a month so far. It appears I may lose the entire year. This would be the second year I've lost to UC. I spend most of my time at home either just wasting time online or reading. I get depressed and lonely very often here alone. But I'm well enough to go do basic things with friends, which always raises my spirits.

Depression-wise, it's hard to say. I probably seem in better spirits than the last time you encountered me. But I'm probably worse. I think I've just become more accepting of what's coming. That and I realize most people aren't interested, so I keep my thoughts to myself. I still think about death and dying often.

At this point I'm not sure what I'm going to do. My GI seems to think a flare is much more serious than a lot of other people. I mention people who have been in flare-ups for six months and he shakes his head. I figure if I am not losing weight, and can get off of prednisone, then perhaps this flare will be manageable and just go away. Also there's a chance it might have been some kind of bug causing the flare up, so I'm hoping for that as well. If not, and I have to choose between Remicade or surgery, I'm not sure. My GI is very anti-surgery and will try to convince me to go with Remicade, I personally am leaning towards surgery right now.

Also, I'd like to thank everyone who in my last thread offered words of comfort to me. In all honesty, I didn't really feel any better reading most of them but I do appreciate the effort. There were also a few who asked questions but I never got around to answering them. If you remember your question or have a new one, please ask.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/5/2009 3:18 PM (GMT -6)   
It is an exhausting thing, isn't it?

I'm talking to my doc tomorrow about Remicade or other stronger treatments. I just don't have time for surgery now. I wish I had done it when I was young, wish that I had thought it through or known what a long road this would be.

Cherish your friends and simple (comfortable) pleasures, try to not get too dragged down into feeling sorry for youself (but we all need to indulge once in a while). You are being assertive about taking the next steps, I'm doing that, too. Having no kids I'm responsible for, I am comfortable taking the risks and see where it leads me. I tell myself we on this message board are only a tiny fraction of those out there being treated, and maybe it really works better than it seems here...I'm eager to hear my doc's experience.

Surgery could cure you! That has to be an exciting possibility.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 3/5/2009 3:36 PM (GMT -6)   
Most of the time no one is too old for surgery. There are cases of people having jpouch surgery into their late 70s. I know one of them and she's doing fantastic. So, never think that you are too old.

The tricky thing with UC is that it slowly robs you of your self and your life. You rationalize the changes, compromise your life, and let UC tell you what you can and cannot do. I lived like that for 2 years before opting for surgery. Surgery has given me the opportunity to reclaim my life, travel, and not worry about drugs, side effects, where the bathroom is, or can I commit to international travel. I am much better off now but it took a string of mules to get me to agree to surgery.

This coming Saturday I will be celebrating my 8th year of life with a jpouch. You can bet on cake and ice cream!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/5/2009 3:44 PM (GMT -6)   
It's not my age that holds me back from surgery, it is the reality of my career. I am managing...and with surgery I might have to give up a lot I have worked very hard for and cannot take for granted.
(As you may know, I am also rabid about not revealing my health weakness to my employer.)
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 3/5/2009 3:51 PM (GMT -6)   
Other then possiblity a 6 week convalescence (mine was 3 weeks) what would you be giving up?

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 3/6/2009 2:20 AM (GMT -6)   
Fremen said...
He's already stated that he wants to start me on Remicade. I am pretty reluctant. The side effects of Remicade seem worse than UC. I'm contemplating skipping the immuno-suppressive step and going right to surgery. I've seen many testimonies from people who had surgery saying it gave them their life back and they wish they'd done it sooner. With Remicade I've seen only a few people say anything even close to that, most saying it gave them a remission but it came back anyways. Right now I don't see the point of messing with my immune system further if there's still a chance that it could come back and require surgery anyways. Feel free to give your opinions or stories.


I would weigh the benefits and costs of putting off surgery. The costs are having to live with flareups longer and having medical problems from taking strong medication. The benefits are that the medicine will buy you some time to find something that doesn't hurt your body and puts and keeps you in remission. I would weigh the likelihood of these occurring. And then I would make my decision.

I don't think I would ever take Remicade though. It has some very serious possible side effects.

Have you exhausted alternative treatments, such as diet, Probiotics, and fecal transplantation?
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)

Post Edited (subdued) : 3/6/2009 1:38:57 AM (GMT-7)


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 3/6/2009 2:23 AM (GMT -6)   
Peety said...
It's not my age that holds me back from surgery, it is the reality of my career. I am managing...and with surgery I might have to give up a lot I have worked very hard for and cannot take for granted.
(As you may know, I am also rabid about not revealing my health weakness to my employer.)


Oh. Peety. Some things are more important than a career. You are very proud that you are a lawyer. I can see this by your signature.

I used to be a securities analyst. I have an MBA from UC Berkeley. I'm white, yet I can speak, read, and write Chinese fluently. I'm now developing Web sites and making Flash games. I know how to figure skate, to do Indian dance, and I'm extremely flexible. Yet I put none of these in my signature. Why? Because these are my accomplishments. They aren't what's important. What's important is my health, my family, and the rest of humanity and the world. You should never let your accomplishments get in the way of your health.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)

Post Edited (subdued) : 3/6/2009 1:42:24 AM (GMT-7)


Fremen
New Member


Date Joined Jan 2009
Total Posts : 17
   Posted 3/6/2009 11:31 AM (GMT -6)   
subdued said...
Have you exhausted alternative treatments, such as diet, Probiotics, and fecal transplantation?


Diet I have tried. Although I haven't followed a specific anti-UC diet, at this point I'm fairly confident that at least in my case diet has little/no effect on a flare up or remission.

I'm not sure exactly what you mean by probiotics. The only time I see the term used is talking about probiotic yogurts. I was unaware that probiotics were a treatment in and of themselves.

And fecal transplantation to me seems like another sort of 'voodoo' method. I'm sure a small percentage get better, but for the most part it looks like the kind of thing that could be anything from prayer to energy healing, where afterwards that small percent who do obtain remission for whatever reason are then convinced it was X that caused it. Perhaps it is more effective than I'm aware, if so please let me know.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/6/2009 1:00 PM (GMT -6)   
I put the attorney thing on my signature because I regularly offer a legal perspective, and it's easier than explaining each time. It's no big deal, and now I'm a little embarassed that it comes off as impor-tan-tay.

And I understand that things may happen that are out of my control, but even a month or two of recovery would really disrupt my work. I'm not willing to do that right now, because I don't take a good job that I love for granted! Especially in this economy. And I manage.

So my message is, I wish I would have been more forward-thinking when I was younger. I'm hopeful the new treatments will find me a good middle ground between my lingering state of health and surgery.

I would love to see some data on how many people ever achieve long term remission without surgery. I suppose they wouldn't need to hang around message boards like this, so we are not a good sample.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 3/6/2009 1:09 PM (GMT -6)   
Fremen said...
subdued said...
Have you exhausted alternative treatments, such as diet, Probiotics, and fecal transplantation?


Diet I have tried. Although I haven't followed a specific anti-UC diet, at this point I'm fairly confident that at least in my case diet has little/no effect on a flare up or remission.

I'm not sure exactly what you mean by probiotics. The only time I see the term used is talking about probiotic yogurts. I was unaware that probiotics were a treatment in and of themselves.

And fecal transplantation to me seems like another sort of 'voodoo' method. I'm sure a small percentage get better, but for the most part it looks like the kind of thing that could be anything from prayer to energy healing, where afterwards that small percent who do obtain remission for whatever reason are then convinced it was X that caused it. Perhaps it is more effective than I'm aware, if so please let me know.


Probiotics are being sold in food stores, drug stores, and vitamin stores. They are sold in the vitamin section. Doctors are prescribing them now. Someone on the forum might be able to advise as to the best ones to use. They work so well for me that I'm not particular as to buying the "best" kind.

Fecal transplantation is not voodoo. It's a medical treatment in which you put the good bacteria back into your colon. See http://en.wikipedia.org/wiki/Fecal_bacteriotherapy. If the bacteria take hold and multiple, then you have a good chance of going into remission. More than a small percentage get better. I large percentage get better. That is more than I can say for Prednisone, 6MP, and Remicade.

There are some caveats though. Fecal transplantation works best for those who have Colitis due to an imbalance in their fecal fora. And it is better to do fecal transplantation when you aren't in a bad flare. Apparently, the bacteria have a better chance of taking hold.

I've done it, and it put me in remission. I did get another flare after taking antibiotics three times in a little less than a year, but then the antibiotics probably messed up the balance of the bacteria in my colon again. Probiotics seem to be working for now, but I do plan to do fecal transplantation again.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)

Post Edited (subdued) : 3/6/2009 12:12:52 PM (GMT-7)


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/6/2009 1:23 PM (GMT -6)   
Peety, I would LOVE to see some stats about long-term remission, too. It seems that they'd have to exist, right? I mean, it's not like it would be hard to collect such data. I'd also like data on a number of other things. For instance, I am hopeful that the Asacol and Rowasa are able to keep me in remission for a while because they alone were able to pull me out of a pretty bad flare. However, I can't find anything to prove or negate that theory.

I'm in research, though, so my whole job revolves around data, and is why I want some so badly!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 3/6/2009 2:32 PM (GMT -6)   
I don't think you will ever see that data due to the unpredictability of the disease. I have met people who have had remission for 20+ years only to lose their colon because meds no longer worked. I have met others who stopped taking their meds altogether and are in remission. And then there are those who are dx and don't respond to any drug treatment and lose their colons within weeks of their diagnosis. I know that most people with UC (70-80%) manage their disease with no surgical intervention. Those that have flares more frequently are more prone to having surgery (according to my GI). My first flare was silenced with sulfasalzine and proctifoam. The sulfasalazine gave me 10 years of remission. Who knows why it stopped working? Every drug given to me after sulfa failed did not work. It's a mystery.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/6/2009 2:52 PM (GMT -6)   
My doc told me the biologicals work for about 60-70% of her patients. She also said that a GI colleague at Mayo confirmed her (smaller scale) observation that Remicade works a little better than Humira. She only experienced one patient with a very bad reaction to Remicade, many years ago. Just a little anecdotal info, better than nothing.
If the insurance works out, we're going to try Humira.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 3/6/2009 2:54 PM (GMT -6)   

Hi Fremen, have you thought about at least consulting a surgeon? Getting as much information as possible is key to making a decision. A consultation does not necessarily mean you have to go ahead with surgery. It sounds like you are living your life around UC rather than living life with UC. I think that is one of the reasons my daughter opted for surgery now. Besides the fact that she could never stay in remission, she couldn't imagine the rest of her life (hopefully 60-80 more years) always trying to stay one step ahead of UC.

Peety, don't be embarrassed that you put your profession in your signature. I think it is a great idea and you should be proud (coming from a daughter of an attorney smilewinkgrin ).


--Mom of bratcat (17 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/6/2009 3:08 PM (GMT -6)   
My doc and I had an interesting conversation about how startled I was when I seemed to have a bit of remission last fall and how free-ing it was not to have to deal with my UC for even a few weeks. And, it turned out, I actually still had a lot of left-side inflammation! But it was so much better! She pointed out that I am just so used to managing my life around my UC that it is just part of my DNA, especially since I don't reveal it or complain to anyone about it (except now you guys). How pathetic is that?

I'm so hopeful about the biologicals. And we even talked about how I could sneak in a surgery without anyone knowing...
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


Fremen
New Member


Date Joined Jan 2009
Total Posts : 17
   Posted 3/6/2009 10:53 PM (GMT -6)   
I just got back from my GI and we spoke at length about what's going on. And I have to say I'm feeling more optimistic about Remicade. Although I'm not entirely sure of how long the remission will last, it seems the chances of severe side effects are less than I thought and the chance of remission is greater than I thought. So I am definitely considering it now.

I have to go through a ton of tests and start on immuran in order to be applicable for Remicade. So that will start soon so that I can start the ball rolling and get on Remicade as soon as possible.

My doctor didn't receive my stool test results yet, meaning he still doesn't know if this flare is caused by some kind of bug or whatnot. And he still jumped to prescribing Remicade. Which was a little bizarre to me. I at least want to make sure I can't stop this flare with antibiotics before I start on Remicade or anything of the like.

subdued said...

Probiotics are being sold in food stores, drug stores, and vitamin stores. They are sold in the vitamin section. Doctors are prescribing them now. Someone on the forum might be able to advise as to the best ones to use. They work so well for me that I'm not particular as to buying the "best" kind.

Fecal transplantation is not voodoo. It's a medical treatment in which you put the good bacteria back into your colon. See http://en.wikipedia.org/wiki/Fecal_bacteriotherapy. If the bacteria take hold and multiple, then you have a good chance of going into remission. More than a small percentage get better. I large percentage get better. That is more than I can say for Prednisone, 6MP, and Remicade.



I will look into probiotics. It seems like it's too late for me in that I need to stop this flare pretty soon and get off the prednisone, but if it's something that I could use long-term to prevent a flare, I will definitely check it out.

Fecal transplantation still seems like a placebo to me. If you can provide any real data on remission rates I would be interested to see, especially if you feel it has a larger percentage of people who recover than prednisone or remicade.

Bennie said...
Hi Fremen, have you thought about at least consulting a surgeon? Getting as much information as possible is key to making a decision. A consultation does not necessarily mean you have to go ahead with surgery. It sounds like you are living your life around UC rather than living life with UC.


I think that's a good idea. I was considering talking to a surgeon when I was not wishing to try Remicade. But I think you are right. It doesn't hurt to talk to a surgeon before I make that choice.

I probably do live my life around UC and not with it at least right now. I'm not sure if I seem like a crybaby but I try not to be. When I am not in a flare this bad my UC doesn't even enter into my life. I am unstoppable in my everyday life when I'm healthy. However, when I do get a bad flare my life does tend to revolve around it since it becomes such a big part of my everyday routine. Running to the bathroom constantly in pain and barely leaving the house for months does take a toll on me mentally.

My GI mentioned to me something about me finishing my degree. And it shocked me because I at that point couldn't even imagine getting my degree. I can't imagine myself five or ten or twenty years from now. As most of you can, or as most of you can imagine your children. When I am like this it seems like all that could possibly be in store for me in the future is more pain. And I just don't see how that could last so long, nor do I see why I would want it to. It is strange how in two months I could go from being carefree and happy to being so emotionally drained.

Today I feel a little better though. It is difficult to explain. I am more optimistic but more frightened at the same time. When I was fairly certain that there was no hope at all, there was really nothing left to be scared of. Now it seems there are a number of ways this can go, and that will take a little getting used to. Maybe there is hope.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 3/7/2009 3:00 PM (GMT -6)   
     I read most of your posts here.  I was just wondering...do you have ulcerative proctitis or pancolitis?  My UC is confined to my rectum.  I had a severe flare last year even while taking the 6MP.  However, I saw a GI surgeon and in his opinion the 6MP has helped in containing my UC to the rectum.  I am not a candidate for surgery yet.  He says that surgery is usually the "last resort".  My GI doctor did mention Remicade to me but I did extensive research on it and discovered that it is not an option for me as I was exposed to the TB virus back in the 1960's.
     Fortunately, I was able to achieve remission after a seven month flare.  My GI doctor did recommend taking a probiotic which I do twice a day faithfully.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Fremen
New Member


Date Joined Jan 2009
Total Posts : 17
   Posted 3/7/2009 4:31 PM (GMT -6)   
Christine1946 said...

<FONT color=#800080> Fortunately, I was able to achieve remission after a seven month flare. My GI doctor did recommend taking a probiotic which I do twice a day faithfully.


I have UC.

How do you find the probiotics are helping or not helping?
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