Four hour bus ride

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 3/5/2009 5:47 PM (GMT -6)   
I've been pretty good lately, in remission, mornings can be a bit rough still (I only go a few times but it's very urgent, I feel slightly nauseated for a couple of hours, then good to go along with my day). Afternoons are fine. But I am feeling apprehensive about a weekend trip I'm taking with my DH. I'd soooo much rather drive but he's insisting on taking a bus. Normally he's pretty understanding about everything, but I think he figures I am in remission, the ride is late in the day ... I am just venting to people who "get" it here. I am sure I'll be fine, but all the same, I am packing like a toddler, with a change of clothes handy and all.
Meesh
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!

13 Remicade infusions: 1st: 7/21/07; most recent: 1/21/09; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;

Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16744
   Posted 3/5/2009 5:51 PM (GMT -6)   
Maybe there is a bathroom on the bus? I would be worried even though my major problem is first thing in the morning. I usually drive when it is an option.

Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December 08 but had symptoms months ago - Treating with Asacol 400mg (9 a day)


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 3/5/2009 6:00 PM (GMT -6)   
It's a luxury bus, I am assured there is a bathroom. I never go anywhere without my Xanax, although it's been awhile since I needed to take it. I'm hoping to nap.
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!

13 Remicade infusions: 1st: 7/21/07; most recent: 1/21/09; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;

Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16744
   Posted 3/5/2009 6:06 PM (GMT -6)   
Oh, you will be fine. Rest assured that there is a bathroom if you need it - just hope it isn't occupied.

Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December 08 but had symptoms months ago - Treating with Asacol 400mg (9 a day)


Risan1808
Regular Member


Date Joined Jan 2009
Total Posts : 153
   Posted 3/5/2009 7:53 PM (GMT -6)   
I would have a major panic attack over a bus ride that long. I am panicing over a 4 hour flight and there are more bathrooms on a plane than a bus. I know where every bathroom is in my town now.
Diagnosed Friday, February 13, 2009
Asacol 3 tabs 3X daily
Rowasa Nightly


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 3/5/2009 8:02 PM (GMT -6)   
Reminds me of a couple of weekends ago when I was going to a seminar. I got on the first plane to Charlotte and the first thing the pilot said was the restrooms did not work "I hope you can hold it" due to freezing of the water or something. If I hadn't of taken my lomitil I would have stressed myself into an accident.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 3/5/2009 8:16 PM (GMT -6)   
Wow, DR-A I am super afraid of flying and would have just died right there. Or I would have been pooping into a trash bag in the bathroom. How long was the flight??

Meesh - I would WAY rather take a 4 hour bus ride w/ a bathroom than ride in a car. What if you got stuck in traffic? There is a bathroom on the bus, but none in a car!
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 3/5/2009 8:25 PM (GMT -6)   
Thankfully only a couple of hours.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/5/2009 10:00 PM (GMT -6)   
Once an airline tried to load me into a van for a three-hour drive to make a connection at another airport because they had to cancel my booked flight. Talk about panic! I waited for the flight the next day instead. What were they thinking??

I think I know where every bathroom is east of the Rocky Mountains.

For me, just knowing the bathroom is there if I need it will calm my gut. Hopefully you'll be fine.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5191
   Posted 3/5/2009 10:23 PM (GMT -6)   
Your DH should let you take the aisle seat so that you can stand up for a few minutes every hour or so. Then you will hopefully not feel crampy or stiff in your limbs. 4 hours at a stretch is about my maximum in a vehicle. Train travel is the best for tricky guts, but only in the few parts of the U.S. that have reliable rail service. Hope you have a good trip, Meesh! / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 3/6/2009 2:27 PM (GMT -6)   
Take some Immodium and your Xanax and you should be fine. At least there is a bathroom. I find that sleeping during long trips helps tremendously. Good luck!!
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
LDN - 2/17/09 1.5 mg.
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 3/6/2009 3:02 PM (GMT -6)   
Another vote for Immodium. A long car trip is one of the few times I still occasionally take it or at least have some with me, just in case.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 3/6/2009 3:06 PM (GMT -6)   
What type of immoduim do you ladies get? I know alot of times the Lomitil is a little overkill for more of a "not traveling but working" type of day, and I can't cut the darn things into 1/4's.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


Howright
Regular Member


Date Joined Oct 2008
Total Posts : 86
   Posted 3/6/2009 3:28 PM (GMT -6)   

 

Immodium here too . . . I take it when I'm going to be on a flight or somewhere without access to a bathroom for a prolonged period.  Oh, and only take it if you need it, keep it and a bottle of water handy and if you can last without out it the entire trip definitely do. 

 


 
Diagnosed January 07 - but realize I've been living with minor flare-ups for 10+ years. 
 
Asacol 3 pills/3 times a day.
 


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 3/6/2009 9:32 PM (GMT 0)   
For me immodium works stronger than the lomotil. Not sure why this is. But I take imodium and I'm plugged up all day... good to go. Lomotil, I still have to go... but I can usually hold it awhile. I know it backwards... just how those two affect me.
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09**down to 17.5 mg 1/22/09
**down to 15 mg of pred 2/3/08**down to 12.5 mg of pred 2/13/09**down to 10 mg 2/26/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 3/8/2009 1:33 PM (GMT -6)   
I like the Advanced immodium w/ the anti-gas component.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Burli
Veteran Member


Date Joined May 2003
Total Posts : 1251
   Posted 3/8/2009 1:42 PM (GMT -6)   
Anything to relax you should be taken. It's a mental thing as you don't usually have to go until you realize you have no bathroom available. Watch your diet well ahead of time (don't eat fruit prior to the trip). Alcohol and Imodium AD is what I always used but my doctor scolded me for self medicating with vodka and beer (as he probably should have). Xanax or Valium, I guess, are better options.
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 26, 2018 5:59 AM (GMT -6)
There are a total of 3,006,718 posts in 329,385 threads.
View Active Threads


Who's Online
This forum has 161847 registered members. Please welcome our newest member, Mindstrange.
136 Guest(s), 4 Registered Member(s) are currently online.  Details
paul_t, tickbite666, Tudpock18, Nana1988