Watery Diarrhea...yuck

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ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 3/6/2009 11:23 AM (GMT -6)   
Hello all,
 
I've posted several things on the Salofalk enemas, but has anyone had any experience with their BMs being all water like with a few fragments of stool while taking these. Blood is accompanying these as well, not every BM but most. If I have 6 BMs, likely 3-4 are accompanied with blood.  It is like I'm peeing out of my bum.
 
I don't like the looks of these ones.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 3/6/2009 1:51 PM (GMT -6)   
It is possible it's not the enemas, but that you might have picked up something along the way...meaning coincidence.


Have you started the probiotics as of yet?

If your doc finally calls you back, you could request to have a stool sample done.

I'm not convinced it's the Salofalk.....

quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 3/6/2009 2:04 PM (GMT -6)   

Just got off the phone with AM's nurse.  She has told me to stop the enemas immediately (from AM), up the Asacol, and go get a stool culture done.

She is leaning more towards the antibiotics being the cause of my issue.

 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 3/6/2009 2:53 PM (GMT -6)   
where are you supposed to get the stool culture done...meaning do you go there to pick up the vials...happy scooping, by the way..LOL...I always wear a mask when I do that stuff..pu.
 
Well, you'll know soon enough if it's the Salofalk....hope squirt-bum improves....

Keep us posted.

q


*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 3/6/2009 2:02:36 PM (GMT-7)


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 3/6/2009 4:09 PM (GMT -6)   

Yes, I picked them up at a Lab not too far from home. This is one "fun thing" I've yet to do. What a lovely Friday night activity! Mask sounds like a good idea. I guess it is C-Diff they are looking for.

Squirt Bum...now there's a nice moniker! I should change from ZLSJ. Which by the way is the first initials of our 4 boys, one of whom watches over us from above.


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 3/6/2009 4:17 PM (GMT -6)   
I just did the C Diff scoop sample 2 weeks ago - barf!!! Good luck with that.
31 yr old female currently breastfeeding
Diagnosed 2/29/08 with Mild Universal UC
I've had UC since 2000 but was in remission for most of those 8 years med free
Lialda Colazal & Asacol made symptoms worse, MUCH worse
Not taking any meds for now. May be on 6mp soon?


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/6/2009 4:24 PM (GMT -6)   
Hey, when they were trying to figure out what was wrong with me, I had to collect my stool for 24 hours b/c my doc wanted to get an idea of my daily output (turns out it was 4x higher than the high end of normal!). Anyway, I had to poop DIRECTLY into a paint can AND keep it cold. The people at the lab suggested I put it in the fridge. I said that was unsanitary and that I didn't have time to run get a can out of the fridge and get to the bathroom before I crapped my pants. So, we just put a cooler full of ice in the bathroom instead and bleached the cooler when I was done. To make pooping in a pain can easier, my husband got a five gallon bucket and put a small bucket upside down in the bottom of it. That brought the top of the paint can up to the top of the five gallon bucket. Talk about undignified. I'd much rather scoop a bit of poop for a C. diff test (had to do that, too!).
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 3/7/2009 4:09 AM (GMT -6)   
LOL...and to make it a more enjoyable experience.....how about that teeny scoop?

I used a cleaned out 2L plastic container (Becel to be exact)...difficult, but I held it for the first part of my bm then covered it and put it in another pail so that I could finish my bm. I didn't want to puke while looking at it until I finished..

Yes, the mask helped a bit anyway...but I still gagged..clearly, I haven't changed a lot of baby poo diapers.

I would think that a plastic bag put over a pail or in the toilet could work...as long as the bag was clean..etc.

I've only had to do it twice..once before diagnosis and a few years ago. The last one I had to do 3 separate bm session specimens.
It didn't seem any easier that time either.


ZLSJ....I think you should stick with your screen name...much more deely meaningful, for one day your SB will improve. That's my husband's term for diarrhea, by the way.

Let us know how the day fares for you now that you're not on the Salofalk as well as...you know...poop scooping.

So, do you only have to do just one??? If so, what's the fun in that?

quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 3/8/2009 7:44 PM (GMT -6)   
That was a wonderful experience...not! The plastic bag thing worked fine, it was gross purplish tinged diarrhea? What's up with that? I can't say that I noticed that tinge before but I guess once it hits the bowl with the water it just dilutes the colour. I guess I now sit and wait to hear from AMs office.

Since I stopped the Salofalk the BMs don't seem to be the rushing watery type. A little more substance to them but still the loose type nonetheless. Perhaps I do have an issue with them or perhaps it was all timing?

How was your weekend?

Decent temps, this time change thing will take an adjustment. I actually adjust quicker to this one then I do to the fall back for some reason.

My weekend was good but busy.

My cough is still hanging around, been over a month now. I am off tomorrow so I think I will slip in and get it checked out again (no antibiotics for me though) It is getting annoying and not really getting any better. (I am and have always been a non-smoker) It is a phlegm producing cough, but thank goodness it doesn't keep me up through the night. And now, I started getting headaches that don't seem typical, maybe the anxiety is getting to me again! Yeesh.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 3/8/2009 8:56 PM (GMT -6)   
LOL..nothing like gross poo to gross one out! yep, imagine doing the cultures on that stuff all day long??? You survived..woohoo! Hope the wait isn't too long, however.

Didn't realise you had a continual cough. My husband has the same thing every so often...been through a gazillion tests for the past 30+ years with no confirmation except to say that he has excess phlegm on the larynx and to drink lots of water..hmmm. With his job, he talks for 12 hours a shift...so, doesn't help as much as him starting on Singulair. It's worse after a cold....but at least he's been faithful with the Singulair and it's been a total blessing. His doesn't bother him during sleep either.

Now, I'm not saying that's your problem...some coughs can continue after chest infections for a few months. It also can be from post nasal drip (oh, which my husband also has), so coughing/talking makes it worse, and the cycle continues.

You definitely should see the doctor, but you could enquire about trying an expectorant to help thin the mucus. But, it might encourage diarrhea, so maybe nix that idea for now. You don't happen to have asthma, do you?
You might next request to be sent to an allergist or respirologist if it continues.
Have you had a chest x-ray?
Is the phlegm coloured/green/yellow or white?
Was that part of the reason you were having discomfort in your chest?

The headaches could be caused from the coughing....unless they're what's called cluster headaches. Add that to your list....frustrating to say the least.
Anxiety could be part of it...maybe the trigger point therapy could be focussed on your headaches as well?
Do you get any relief or is it at a particular time such as after coughing all day?
Some headaches could be from dehydration...sometimes if I get a headache starting, a glass or two of water helps to ease it. If not, I have to take some aspirin. If it continues, the chiropractor is next on the list.

My weekend was OK. I had only a few clients, otherwise it was pretty quiet. The time change is fine for me now that it's been moved forward by a few weeks....easier to adjust to. I like the winter, so the time change in the Fall is good too. By that time I'm liking it dark by 6:00 ready to hunker down for the evening if I'm home.

I have a busy week ahead....nice the weather isn't too warm as of yet, but it feels like Spring is around the corner.

quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 3/9/2009 6:24 AM (GMT -6)   
Yes hoping I find out sooner than later. Now there's a job, doing those cultures.
 
Yes, it's been going on for a month for sure. I've been trying to keep the liquids up but not sure if it's helping. Lot of loud speaking at my son's hockey game on Saturday didn't help me at all, my throat was pretty hoarse. I've had 2 chest x-rays done in the last 2 months but they weren't done in relation to my cough. It was for my anxiety attaack on the kid's hockey trip and when I went to see my GP here about chest pains...I'd think if there wasn't something there previously they would have caught it whether or not they were looking for it or not. 
 
Phlegm is everchanging...one day it is whitish, the next yellowish, very seldom green, and as far as I can ever tell, never red.
 
The headaches seem to be more around the back of my (ears back) head/neck. I know I had my pillows really contorted there a couple of nights. Going to have to get this checked out as well!!
 
Busy week work-wise? Or just have a lot of things to get done?
 
We were up bright and early, even though it was my day off, to send our middle guy off for a school ski trip for the day.

Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 3/9/2009 6:35 AM (GMT -6)   
I had god-awful diarrhea and stomach aches while on Salofalk enemas too. It stopped when I tapered off.

23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.
  • Psyllium powder   
  • Cortenema


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 3/9/2009 12:24 PM (GMT -6)   
Yeah Mitzo...some cannot use any 5ASA meds at all....but it's good to firstly give them a fair trial. My UC symptoms got somewhat worse after starting the 5ASA meds...but since I did show improvement, I stuck with them.

q
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 3/9/2009 12:33 PM (GMT -6)   
ZLSJ....good you had x-rays done as a baseline, anyway, and that it showed all clear.
Sometimes the irritation from yelling or even from reflux can cause a cough.
I wouldn't think it would be too productive, however, unless its just plain mucus/whiteish.

You could still try Zantac to see if it helps. Just another suggestion where one might not even consider.

Back of the neck headaches...ugh....I see a chiropractor for relief, and it's amazing how much it's helped. Massage would help as well if you're not wanting to see a chiropractor. Oh, the other option would be a formed pillow. The one I got is a shaped foam one from Northland. It's not memory foam. Works quite well.
Even my husband likes his.

My week is busy with some hair and catching up socially and doing some things I've put off. We'll be painting soon and continuing house redecorating. I've packed stuff in boxes for the ready...I'll definitely not be putting back most of it. Wanting to purge for some reason...probably because I hate dusting..lol!

Hope you enjoy your day and your son had a good day skiing..perfect day for it.

quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 3/9/2009 6:35 PM (GMT -6)   
Today I went to the same doc I had seen previously on my cough. Shortly after listening she pulls away with the stethoscope and says you better get in for an x-ray with the amount of "crackling" you have going on...pneumonia perhaps.
 
So off I run to the Vic to get the x-rays done. They call me in the afternoon and tell me all is clear with my lungs. So I must have something similar to your hubby going on. I am getting a wee bit tired of coughing...almost as bad as my bowel issues! 
 
Painting...that's been mentioned around here several times. We moved into a different house last year and everything was all painted the year before we moved in, colours were tasteful so no need to paint for the sake of painting. A year and a bit has passed and I think we are moving towards painting our bedroom for starters. Should take very little time and I don't mind once I get going, it's just the thought of it.
 
Ski trip was great!
 
Nothing from AM yet.
 
 

quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 3/10/2009 1:33 AM (GMT -6)   
Hi there....wow, crackling lungs...I did some reading, and it could be caused by sudden opening of the airways Maybe because you have some "congestion", it could be from that. Did she suggest you see a respirologist anyway? You might want to consider it if it's not eased up over a week or so. Good to hear the x-ray was clear.

Nice painting won't be necessary in your place for a while. We painted with alkyd oh about 1992...General Paint has a formula that we can use over it...Enviro Guard...nice we won't have to put primer, etc. That would be a twice as long process. Lots of white woodwork, however...still taping, etc...nothing can match the look/wearability of alkyd..sigh...change with the times I guess.

Has the diarrhea subsided any more since being off the Salofalk?

Have a good week!
quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 3/10/2009 10:37 AM (GMT -6)   

I'm an endless chain of symptoms that they can't seem to end up with a cause. This one obviously never strikes me as being "in my" head though. I never followed up with her to see where I turn next. Can't make it to her today.

Yes, you can't beat the alkyd as far as durability goes, just finicky to work with. I believe there is a mix at our place.

As far as the diarrhea goes, there is definitely a difference since I stopped those....still loose but definitely no "squirt bum". Typically 4-6 times a day still. I'm guessing my body does not agree with those.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 3/10/2009 3:18 PM (GMT -6)   
It's possible that the SBS..squirt bum syndrome...side effect would have eventually changed, and not necessarily doesn't agree because your bms didn't increase or you didn't get worse....in one attempt for you to have success, I'm going to suggest that you "could" ask for the 2gram dosage and not the 4gram...less medication, but same amount of fluid.

I thought your GP doctor was a male? You know..the worst rating in wpg? Is the female doc at a walk-in clinic? Hope she'll follow-up.

Hope you hear soon regarding the poo results.

Oh, are you still taking the Metamucil caps and the probiotic?

q
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 3/10/2009 7:32 PM (GMT -6)   
I guess I'm getting kinda curious about the fact that it may be the Salofalk after reading the posts on people who are having issues with Mesalamine products. Talking to AM's nurse today, she said that they do have a fair number of people who it does not agree with. So yes, spoke to them, but no results back yet.
 
My GP is a male and yes he is one of the worst rated but like I said, he is quick to refer which is fine by me.
 
This was a Walk-In Clinic doc that I had seen for my cough originally when I could not get into mine, and I had seen her in the past and found her to be alright...at least she doesn't rush me out the door. I will likely try to see her tomorrow to follow-up, because though my lungs were clear something is still going on. I assume without doing a quick search that Singulair is an asthma med?
 
Yes, still taking the Probiotics/Metamucil and Asacol. (6x800g)

quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 3/11/2009 2:30 AM (GMT -6)   
Hi...it's true for sure that some cannot take mesalamine and have issues with it...you are on Asacol which is also mesalamine.

The Singulair works to block one of the receptors with the involvement of a reaction..mostly allergies, but not all allergies cause a reaction as is the case of asthma. 
This is a good site for info on it. 
 
 
Your reactions are probably from your cold...but for some, colds can ultimately end up triggering a reaction, not asthma but something like reactive airway syndrome or something like that.  Nothing specific, but still a pain.  Not unlike what many of us experience with our body symptoms elusive to a definitive diagnosis. 
 
Curious as to what the next step is for you.
Hope you have a feeling better day. 
 
quincy


*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 3/11/2009 2:36:46 AM (GMT-6)


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 3/11/2009 9:26 PM (GMT -6)   
Yeh was thinking about that, the Asacol that is...can't say that I have seen marked improvements because of it, but don't really think that things have gotten worse either.
 
Not sure on the coughing, I never heard back from the doc today. The receptionist said the doc would call me, though she is very busy.
 
Met with my GP "AGAIN" today. He looks through my charts and all the stuff and basically tells me to come back when something gets worse because right now he's pretty much done all he and A.M. can do test wise and nothing is showing up. Between the UP, the coughing, my back, my headache...the Health Anxiety is getting to me again...argghh!!! Not a good day today. Drugs here I come!!
 
Sorry to bellyache, just feeling sorry for myself.
 
 

quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 3/12/2009 1:49 AM (GMT -6)   
ah, I have those often....I recently told my GP that I'm a square peg trying to fit in a round hole...common analogy, but there is much truth to it.

Well, I just found out my husband hasn't been taking the Singulair daily...intermittently (of course I ask him when I suspect his cough is happening again). I suspected, but he admitted that he didn't like the way he felt on them (yes, the complaint has been a constant)...so he tried his own experiment and yes, it's the Singulair. I'm as he is, so cannot discount the validity of how one feels on certain meds...so, I will acquiesce. We'll see when it gets worse after a cold or once the snow melts...

Hope the results hurry up and arrive..lol! Maybe youll feel better.

Now, I purchased the Metamucil capsules....it says to take 3 - 5 caps 3 times a day....so, wondering how many you're taking daily?

Are you still having a lot of stomach discomfort?

I'm curious when you mentio health anxiety...what aspect exactly is affecting..meaning, what are you thinking?

Hope you have a better day.

quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 3/12/2009 9:14 AM (GMT -6)   
I know I'm creating my own misery here for the most part, but it gets difficult when you have physical symptoms to just turn a blind eye to stuff. Then hearing the doc say what he said kind of sunk me for a bit. (not that I ever thought he was helping me)
 
Is hubby coughing now? I take it that he only uses the Singulair when he needs it? I've only coughed a handful of times so far today...woohoo.
 
Getting tired of waiting for the results, taking longer worries me, my wife on the other hand figures it means there is nothing concerning if it's taking longer...wish I could think like her!
 
For now I am taking 3 capsules daily, all in one swoop, usually after a morning meal. Not sure on the results, though "squirt bum" has left the building! There appears to be a bit more substance to them, though they're still very loose.
 
The blood isn't as dark as the blood was when I did my sample...what was up with the purplish tinge? Anything to do with the Salofalk? Asacol? I thought I saw someplace that these could have an effect on stool colour.
 
Stomach discomfort has for the most part gone away except for cramping when I have to "go". The constant burning/twsting I complained about previously appears to have gone away for the time being.
 
What am I thinking? Well, basically every weird feeling I get means I have something morbid. Examples would be: it can't just be my UP that is causing my stomach/bowel issues, it can't just be trigger points/muscle issues for my back issues, it can't just be a headache/muscle tension for my head , and of course it can't just be a harmless chronic cough.
 
I can't seem to let many thoughts go to be able to determine if all of a sudden things would disappear if I quit worrying about them.
 
Talk to you soon!

quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 3/12/2009 11:00 AM (GMT -6)   
Yeah, we are our own worst enemies at times. Hard to break that cycle. I still go through it and am learning to not ruin my days by fretting over stuff I have no control over. Learning is the operative word...and it's very difficult.

I wouldn't concern myself over the stool samples, however...but I would secretly hope there was actually something other than nothing going on so that it could be dealt with.

The time of testing and results back doesn't mean much....it seems to go through a process depending on where and how many tests are being done I would think.

Regarding the coughing....it's periodic, but I can tell with it'll need to be dealt with. This is a 30 year issue, remember...he did admit he would consider an inhaler |(corticosteroid)...could help, maybe not...sigh. Spring is on its way...I'm already shuddering, but could be at this point the long time with heat in the house and a dryer environment. Also, he got a new mouth guard...seems to dry out his mouth, so that in itself could be part of it. lol...never ends with the little stuff. We may be told to not sweat it, but it's all so inconvenient when it interferes.

The capsules...you might want to add to another meal...maybe supper if you don't take meds with them. Take the meds a few hours afterward. That will help with the bulking.

Yes, the Salofalk can change the colour of the stool a bit....but if you have any bleeding, it will colour the salofalk a bit, more of that maroon colour as you say.
Pretty much the stains colour in the toilet....Vim Power Spray used daily is helpful to keep them at bay...but I've learned it depends on the type of toilet seat finish that determines how well it works.

Good to hear the stomach discomfort is no longer a problem....

One positive, your blood tests came back OK...

Eventually, you'll learn what's bothering what...once you have that figured out, you'll probably relax a bit. I hope the results come back, but you'll still have to determine a treatment for your UC that will be more helpful. I still don't think you gave the Salfofalk a good enough length of time...especially since other stuff is going on.
But you'll eventually know what you can tolerate.

Are you using the foam enemas or nothing at all?

Hope the weekend fares better for you/

Well, off to do my 96 year old client....believe it or not I gain energy from her, she's the coolest person and totally with it...she wins popcorn twists from Bingo as my treat, plus has the aids put aside coffee for us (I nuke it before our chat session)..oh to be spoiled!

Hope you have a better day.
quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 3/13/2009 1:09 PM (GMT -6)   

I keep trying and for some reason can't be quite as persistent in getting to a point of not worrying about things as I can in continuing to worry. Easy way out I guess.

Still nothing from AM's office, left a message with the nurse.

I just want to know of anything that may help things along with my cough. I guess I'll have to go to the Walk In again to see if she has any words of wisdom to dispense.

Started today with giving the Metamucil dose increase a try to 3 in the morning and 3 at night.

Salofalk isn't in the system anymore and it appears as though the BMs are no longer purplish tinged.

Right now I'm only taking the Asacol, wonder if I should use the Cortifoam sparingly until he tells me different?

96 yr old....wow! Funny how being around someone like that can have such a positive effect on our mindset. Hope you enjoyed your time with her.

Nice out there isn't it?...things definitely feel warmer all around.

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