Posted 3/11/2009 8:26 PM (GMT -7)
Yeh was thinking about that, the Asacol that is...can't say that I have seen marked improvements because of it, but don't really think that things have gotten worse either.
 
Not sure on the coughing, I never heard back from the doc today. The receptionist said the doc would call me, though she is very busy.
 
Met with my GP "AGAIN" today. He looks through my charts and all the stuff and basically tells me to come back when something gets worse because right now he's pretty much done all he and A.M. can do test wise and nothing is showing up. Between the UP, the coughing, my back, my headache...the Health Anxiety is getting to me again...argghh!!! Not a good day today. Drugs here I come!!
 
Sorry to bellyache, just feeling sorry for myself.
 
 
Posted 3/12/2009 12:49 AM (GMT -7)
ah, I have those often....I recently told my GP that I'm a square peg trying to fit in a round hole...common analogy, but there is much truth to it.

Well, I just found out my husband hasn't been taking the Singulair daily...intermittently (of course I ask him when I suspect his cough is happening again). I suspected, but he admitted that he didn't like the way he felt on them (yes, the complaint has been a constant)...so he tried his own experiment and yes, it's the Singulair. I'm as he is, so cannot discount the validity of how one feels on certain meds...so, I will acquiesce. We'll see when it gets worse after a cold or once the snow melts...

Hope the results hurry up and arrive..lol! Maybe youll feel better.

Now, I purchased the Metamucil capsules....it says to take 3 - 5 caps 3 times a day....so, wondering how many you're taking daily?

Are you still having a lot of stomach discomfort?

I'm curious when you mentio health anxiety...what aspect exactly is affecting..meaning, what are you thinking?

Hope you have a better day.

quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Posted 3/12/2009 8:14 AM (GMT -7)
I know I'm creating my own misery here for the most part, but it gets difficult when you have physical symptoms to just turn a blind eye to stuff. Then hearing the doc say what he said kind of sunk me for a bit. (not that I ever thought he was helping me)
 
Is hubby coughing now? I take it that he only uses the Singulair when he needs it? I've only coughed a handful of times so far today...woohoo.
 
Getting tired of waiting for the results, taking longer worries me, my wife on the other hand figures it means there is nothing concerning if it's taking longer...wish I could think like her!
 
For now I am taking 3 capsules daily, all in one swoop, usually after a morning meal. Not sure on the results, though "squirt bum" has left the building! There appears to be a bit more substance to them, though they're still very loose.
 
The blood isn't as dark as the blood was when I did my sample...what was up with the purplish tinge? Anything to do with the Salofalk? Asacol? I thought I saw someplace that these could have an effect on stool colour.
 
Stomach discomfort has for the most part gone away except for cramping when I have to "go". The constant burning/twsting I complained about previously appears to have gone away for the time being.
 
What am I thinking? Well, basically every weird feeling I get means I have something morbid. Examples would be: it can't just be my UP that is causing my stomach/bowel issues, it can't just be trigger points/muscle issues for my back issues, it can't just be a headache/muscle tension for my head , and of course it can't just be a harmless chronic cough.
 
I can't seem to let many thoughts go to be able to determine if all of a sudden things would disappear if I quit worrying about them.
 
Talk to you soon!
Posted 3/12/2009 10:00 AM (GMT -7)
Yeah, we are our own worst enemies at times. Hard to break that cycle. I still go through it and am learning to not ruin my days by fretting over stuff I have no control over. Learning is the operative word...and it's very difficult.

I wouldn't concern myself over the stool samples, however...but I would secretly hope there was actually something other than nothing going on so that it could be dealt with.

The time of testing and results back doesn't mean much....it seems to go through a process depending on where and how many tests are being done I would think.

Regarding the coughing....it's periodic, but I can tell with it'll need to be dealt with. This is a 30 year issue, remember...he did admit he would consider an inhaler |(corticosteroid)...could help, maybe not...sigh. Spring is on its way...I'm already shuddering, but could be at this point the long time with heat in the house and a dryer environment. Also, he got a new mouth guard...seems to dry out his mouth, so that in itself could be part of it. lol...never ends with the little stuff. We may be told to not sweat it, but it's all so inconvenient when it interferes.

The capsules...you might want to add to another meal...maybe supper if you don't take meds with them. Take the meds a few hours afterward. That will help with the bulking.

Yes, the Salofalk can change the colour of the stool a bit....but if you have any bleeding, it will colour the salofalk a bit, more of that maroon colour as you say.
Pretty much the stains colour in the toilet....Vim Power Spray used daily is helpful to keep them at bay...but I've learned it depends on the type of toilet seat finish that determines how well it works.

Good to hear the stomach discomfort is no longer a problem....

One positive, your blood tests came back OK...

Eventually, you'll learn what's bothering what...once you have that figured out, you'll probably relax a bit. I hope the results come back, but you'll still have to determine a treatment for your UC that will be more helpful. I still don't think you gave the Salfofalk a good enough length of time...especially since other stuff is going on.
But you'll eventually know what you can tolerate.

Are you using the foam enemas or nothing at all?

Hope the weekend fares better for you/

Well, off to do my 96 year old client....believe it or not I gain energy from her, she's the coolest person and totally with it...she wins popcorn twists from Bingo as my treat, plus has the aids put aside coffee for us (I nuke it before our chat session)..oh to be spoiled!

Hope you have a better day.
quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Posted 3/13/2009 12:09 PM (GMT -7)

I keep trying and for some reason can't be quite as persistent in getting to a point of not worrying about things as I can in continuing to worry. Easy way out I guess.

Still nothing from AM's office, left a message with the nurse.

I just want to know of anything that may help things along with my cough. I guess I'll have to go to the Walk In again to see if she has any words of wisdom to dispense.

Started today with giving the Metamucil dose increase a try to 3 in the morning and 3 at night.

Salofalk isn't in the system anymore and it appears as though the BMs are no longer purplish tinged.

Right now I'm only taking the Asacol, wonder if I should use the Cortifoam sparingly until he tells me different?

96 yr old....wow! Funny how being around someone like that can have such a positive effect on our mindset. Hope you enjoyed your time with her.

Nice out there isn't it?...things definitely feel warmer all around.

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