Is a good idea to it TRY now?

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Mia @;------
Regular Member


Date Joined Feb 2007
Total Posts : 231
   Posted 3/6/2009 3:32 PM (GMT -6)   
Hey guys/gals...
How are you all doing?, i had a appointment with my specialist today and again im being asked to try the aziathropine. I have been worried about this drugs and its effects from the day it was suggested to me, which is ironic as i have had my fair doses of steroids. But i'm worried about going on something so strong for such a longtime. I want to start a family, and always thought i do that first before i attempted to try it. I mean i do have symptoms of a flare which im dealing with. My worries lately have been my eyes and joints and again id rather hold out a little longer if i can. Im worried if the drug doesnt work i wont have any other options to look at apart from surgery!Also i dont want to be pregnant and on something so strong, i have a history of cancer in my family and dont want to increase any of those chances either.
But what i want to ask you all is those of you who have or are using the drug, those preferably that have been on it for a longer term, Is it making you feel alot better? Are you symptom free now? What are the side effect? And is it realy that easy to come on and off the drug without it worsening your symptoms?
 
Thanks you in advance for any helpful responses! 
Female
Diagnosed in 2001,
Since then i have flared seven times, each time taking 40mg of pred for a month to manage the flare. Now on my eighth dose since diagnosis!
Currently on Asacol 6 tabs a day
 
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/6/2009 3:40 PM (GMT -6)   
Have you ever used rectal meds? I've just been recently diagnosed, but it seems to make sense to use those every few nights, even when in remission, as flares start in the rectum and work their way up. Maybe they will help you stay in remission for lonter periods of time. Also, do you ever take more than just 6 Asacol a day?
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


Mia @;------
Regular Member


Date Joined Feb 2007
Total Posts : 231
   Posted 3/6/2009 3:47 PM (GMT -6)   
Thanks for your reply, initially i was on asacol 3x a day now its 6, ive not tried anything higher not sure if asacol does much :-(
I just dont know whether the link to my eye and joints is because im slighlty flaring and they will pass when im in remission or if my immune system has gone wild!And needs suppressing asap.. Which is why i am considering the 6mp.
I could try the enemas again (i have done once before) theyre just such a pain!But i may just give them a go, thanks!
Female
Diagnosed in 2001,
Since then i have flared seven times, each time taking 40mg of pred for a month to manage the flare. Now on my eighth dose since diagnosis!
Currently on Asacol 6 tabs a day
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 3/7/2009 4:37 AM (GMT -6)   
Yeah, I second the rectal meds...no surprise there.

Being a pain and having a pain are two different things. Make the effort at least to give them a fair try.

q
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 3/7/2009 6:27 AM (GMT -6)   
On it for a year and really never noticed a difference using it. Get better quicker response from rectal meds.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 3/7/2009 2:44 PM (GMT -6)   
     I've been on 6MP for over five years.  I still get a flare once a year.  Last year was the worse, flared for seven months and hospitalized for ten days.  Been in remission since Nov 1st.  My white count has really dropped which makes me kinda uneasy.  I did cut back my dosage from 75 mgm to 50 mgm one day and 25 mgm the next.  So far, so good.  I also take Colazal and Powerdophilus (probiotic twice a day) and one capsule of fish oil.  Not sure what exactly helped me achieve remission.  I was on prednisone for most of those seven months. 
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Mia @;------
Regular Member


Date Joined Feb 2007
Total Posts : 231
   Posted 3/7/2009 5:35 PM (GMT -6)   
Thanks for the replies, i may hold out on the drug for a little longer. I was just wondering whether it helped stop extra-intestinal problems, joint pain, eyes etc if you were experiencing these along the way, as these have been a concern to me lately.
Im worried about my eyes in particular i have had stubborn iritis in one eye because i was misdiagnosed and using the wrong drop for a month. I ve been told my eye pressure is high and worried it will stay that way and get worse, hence why i was considering the drug to reduce the risk of my immune system causing a flare in my eye again.
Female
Diagnosed in 2001,
Since then i have flared seven times, each time taking 40mg of pred for a month to manage the flare. Now on my eighth dose since diagnosis!
Currently on Asacol 6 tabs a day
 
 

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