Hydrocortisone side effects

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qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 3/7/2009 8:48 AM (GMT -6)   
I've just been discharged from hospital after a week of IV Hydrocortisone steroids plus LOTS of other medication. Flexi sigmoidoscopy on Thurs showed that things have improved and there is now only mild - moderate inflammation in the sigmoid and less severe in the rectum. However while I was in hospital I started getting very shaky, dizzy, lightheaded etc and they could not work out what was causing this...it may be a seperate issue as I have experienced similar symptoms before, but they seemed to think it might be because of the amount of medication and high doses of steroids I've been on whilst in there.

Obviously I'm now off the IV steroids, and I've been put back on 40mg Prednisolone alongside a whole range of suppositories etc. However my eyesight has definitely got a bit more blurry since I've been in hospital (as it has been slightly getting worse over the past year) and I'm wondering if this is simply because I've been unwell and dizzy etc, aswell and the amount of medication I have been on. The doctor at the hospital did check the back of my eyes for any other causes of dizzyness/shakiness etc (such as MS etc) but said the back of my eyes look ok.
 
Just wondered if anyone has any thoughts on this as I'm getting a bit worried as these symptoms don't seem to be going away and I'm very limited as to what I can physically do.


22 year old female, from the UK.
 
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for IV Hydrocortisone - had no effect!
Hospitalised Fri 27th Feb for a week of IV Hydrocortisone.
  
Currently taking daily: 
40mg Prednisolone tablets
5mg Prednisolone suppositories x 2
1g Mesalazine suppositories x 2 (soon to change to Acetarsol)
2g Mesalazine sachets x 2
Fybogel supplement
Vitamin tablet
Build-up drinks
                             
                             


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 3/7/2009 4:23 PM (GMT -6)   
Steroids will cause all that mess. I usually get good results with the hydrocortisone enemas. The systemic side affects aren't nearly as bad either. Never done the suppositories. If most of your inflammation is in the sigmoid then I would use hydrocortisone enemas vs all that other stuff. I would probably do a half one in the morning and try and get a whole one in at night. If difficult to retain, I would use 1-2 60 ml ottle of warm distilled water first to get my colon relaxed and flushed. Consistency is the key. Hope you get better!!
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/7/2009 5:57 PM (GMT -6)   
My eyesight gets blurry when I'm on prednisone, but it goes away once I taper off. You are still on a pretty big dose, so that might be it.
See if a simple decongestant or a dramamine (seasickness med) helps your dizziness? Worth a try.
Hope you continue to get better!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 3/8/2009 9:23 AM (GMT -6)   
Thankyou for your replies...The dizzyness seems slightly improved today but I am still extremely tired and lethargic. I will ask about the Hydrocortisone enemas when I go back to my consultant next week, and also maybe look into the 'seasickness' meds...good idea!

22 year old female, from the UK.
 
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for IV Hydrocortisone - had no effect!
Hospitalised Fri 27th Feb for a week of IV Hydrocortisone.
  
Currently taking daily: 
40mg Prednisolone tablets
5mg Prednisolone suppositories x 2
1g Mesalazine suppositories x 2 (soon to change to Acetarsol)
2g Mesalazine sachets x 2
Fybogel supplement
Vitamin tablet
Build-up drinks
                             
                             


JRob
Regular Member


Date Joined Jul 2008
Total Posts : 29
   Posted 3/8/2009 3:46 PM (GMT -6)   
Prednisone does the same to me. I just had to have my wife drive the rest of the way home from her mother's after a dizzy spell kicked in while I was trying to drive. Try to get as full a night's rest as possible. I've found that can help as well as drinking plenty of fluids. Hope you feel better.
Ulcerative Proctitis - October 05 diagnosed
Last flare November 08

Current Meds that are working
lialda - 4 pills AM
prednisone - 30mgs/day!
hydrocortisone enema - as needed
6MP 75mgs/day started 1st week March 09

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