Wow, can't believe it took that long for a diagnosis...curious as to why the confusion?
Hissy fits are fine....and while it could be worse, your situation is bad enough to interfere with your life plans...that's bad enough, and you do require meds to deal with that. No doctor should set you up for failure without treating you properly with meds initially. It would be different if you weren't able to take the meds....then your options would have to be narrowed down. But, at this point in time, it's not the issue.
Regarding changing the
location....through the use of oral and rectal meds...enemas would really be the best for you to get the concentration of the med in the rectum and sigmoid...your flares could very well be kept limited. My initial diagnosis was up to and into the sigmoid...but my flares are pretty much now low in the rectum. They're dealt with quickly, but these last few months have I've been impatient and tapered way too fast....I'm back to nightly enemas and will stay on them for a month making sure inflammation is truly kept at bay.
Keep us updated as to how you're doing.
Have you given any probiotics and or fibre supplements a try? Both could very well work in helping your diarrhea. I use Metamucil Orange (not the sugar-free stuff), and taken at suppertime helps a lot to help bulk up the stool. At least that might help lessen bms somewhat.
Do continue the Canasa anyway....it can still be doing some good even though it's not enough alone.
*Heather* Status..Asacol (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!