I stated here before that I believe most supplement and diet cures are a waste of time for those with moderate to severe UC. You name it and I tried it. ...Molocure...
Firstly, congratulations on hitting remission after a long 25 years (!). I can't imagine what that's like.
But I'd like to inquire more about
your Molocure experience. How long did you try it? Did you follow the diet and immodium protocols? For the past year and a half, I've been in remission and haven't taken 1 ounce of prescript
ion meds. I'm on a maintenance dosage of 3 AMP Floracel/day, and I'm free to eat whatever I want now. I've only had 2 colonoscopies, and my last one was about
3 years ago (or has it been 4 already? I can't remember.) It followed almost exactly a year after my first colonoscopy. And the difference in my colon between the two is the difference between a fully inflammed, chronic case of UC, and a healed colon.
I was on a diet, I ran, I took multivitamins, lecithin, Colazal, and Canasa, in addition to my AMP during my recovery. And while I stayed on all supplements when I could, I tried a month at a time of just Colazal, just AMP, and just dieting. And AMP was certainly the reason for my reversal in my experiments, and my 1.5 year long remission has confirmed this to me.
Now, it took me awhile to get there. I read the testimonials that seemed to suggest that they could hit remission in a couple months. I wasn't so fortunate. Because my entire colon was inflammed, it took me ~18 months of active treatment over the course of 2 years. It wasn't easy, nor was it cheap. But I know it definitely works, at least in my case. So I'm curious to hear your experience with Molocure (which is now Floracel, the brand I use).
If anyone else has stories, I'd like to hear them too. Let me know how well you followed the procedure, and how long you tried it, with what consistency, etc.
As an aside, I also noted that long periods on your feet are great to thwart UC symptoms. I think it's the constant churning of the legs and stomach that help to absorb the foods, or whatever it does. But if you can, give it a shot. My specific experiences were 10+ hrs/day on my feet for a 3 day weekend, and 4+ hrs of playing roller hockey. I noticed unusually well formed stools, and in the case of that weekend, it was as if I never had colitis. There were no negative symptoms. And that was my first summer after being diagnosed, when I was still in the thick of it. Prolonged walking, it really does something for me.
dx'd: Dec. '04, though the onset was probably around '02/'03
Treatments included: Prednisone, Colazol, AMP (Molocure -> Digestinol/Floracel), Diet, exercise. Currently in remission. Only taking maintenance dosage of Floracel.
Condition: At worst, when I was diagnosed, I had gone 8 times a day, two or three days straight. Since then, I've got it down to about
once or twice a day. For a brief time, I had hit "pre" remission, and ruined it with a bad diet. I'm currently at ~1 BM/day at ~95% normalcy. Canasa is my drug of choice. AMP is my health suppliment of choice. AMP> all others. www.myspace.com/canaanabolaananHailey's Letter