Chron's & Colitis Foundation Walk

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notsosicklygirl
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Date Joined Dec 2008
Total Posts : 16713
   Posted 3/9/2009 10:25 AM (GMT -6)   
Is anyone here going to participate in their local walk for Chron's and Colitis Foundation?
 
I would like to walk but I don't know how to raise money.
 
Any ideas?

Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December 08 but had symptoms months ago - Treating with Asacol 400mg (9 a day)


kops2da
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Date Joined Jun 2008
Total Posts : 2865
   Posted 3/9/2009 11:35 AM (GMT -6)   

Your email looks like you are from NY too.  Click on your state and area and see when/where, etc.  It will tell you how to raise/donate money.  My son does the diabetes biking here in central NY and he registers and takes pledges online or in person.  Last year he raised over $2,000 for diabetes research biking 100 miles.  I cannot walk because of my knees and I see none in this area anyway.  But I would be happy to donate to your walk - let me know the link!  I believe you can leave the link here but if not - I will email you my address or ?

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008
Tried all mesalamines and enemas, Canasa, etc.  Colonoscopy 10/28 showed only few cm. left to heal -hydrocortisone enemas 12 days - much worse. Cannot tolerate mesalamine!
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 Feb. 21 - down to 20 mg. - no blood, no pain, no bad side effects so far. Starting 6-MP Feb. 28 along with 20 mg. prednisone.
Probiotic Align, Prilosec for GERD
 
 
 


goforbroke
Regular Member


Date Joined Sep 2008
Total Posts : 51
   Posted 3/9/2009 11:40 AM (GMT -6)   
I went on the site, but where do you they walk at? Their was a seperate section that talked about donating or raising money.
26 year old male, diagnosed back in 2000 with UC.
My maintenance drugs consist of fish oil and acidophilus.. I take prednisdone when I have a flare up to get it under control. My bum likes me at the moment.


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/9/2009 11:42 AM (GMT -6)   
On the right front page of the site there is a box says "find your local walk".  Click that on - select your state and it will tell you where the walks are this Spring and summer.  ElaineNY

 
Senior - New diagnosed with proctosigmoiditis - 6/2008
Tried all mesalamines and enemas, Canasa, etc.  Colonoscopy 10/28 showed only few cm. left to heal -hydrocortisone enemas 12 days - much worse. Cannot tolerate mesalamine!
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 Feb. 21 - down to 20 mg. - no blood, no pain, no bad side effects so far. Starting 6-MP Feb. 28 along with 20 mg. prednisone.
Probiotic Align, Prilosec for GERD
 
 
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16713
   Posted 3/9/2009 12:46 PM (GMT -6)   

Cool! I will do the Long Island walk on June 6th. I am so impressed that your son raised $2,000 for diabetes. That is amazing.

I was thinking about putting signs in local business places but I wonder if people will know what Chrons & Colitis Foundation is. I wouldn't know if I didn't have this terrible problem. All I can do is try. Even if I only raised $100 or $200, it is something.

Please email me and I will give you more information. I need to get the sign up sheet and see who they want me to make checks payable to. I am excited. It will feel good to do something to help raise awareness.


Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December 08 but had symptoms months ago - Treating with Asacol 400mg (9 a day)


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/9/2009 12:50 PM (GMT -6)   
I have walked the walk in the past and every year more and more people have signed up. A couple years ago, they hit a record high for attendance.

Usually they have you make the check payable to the CCFA. And on a plus note, it's tax deductible. :)

Ps. As a side note, remember that you can not post your personal fund raising site for the walk on here.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 3/9/2009 12:52 PM (GMT -6)   
ok I know this is going to sound silly, but... I would totally do it if I knew there'd be bathrooms....?
Kara, 22F Married.
Latest-Went to ER cuz I couldn't eat for 5 days and was having severe flare up after passing two kidney stones after a week of the flu. (long month)
GI tried to taper me off of pred fairly fast in hopes to keep me on Lialda and at a lower dosage of pred. to try mesalamine enemas again.  Starting the Imuran as soon as labworks done... longer pred time....yippee *rolls eyes*
Medications:Prednisone 40mg Again! (groan)Lialda 4 a day until Imuran
I am so sick of this disease!
 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/9/2009 12:55 PM (GMT -6)   
Kara, they usually have portapotty galore on the walk! LOL
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/9/2009 12:56 PM (GMT -6)   
The walk I did in MI - where I met Red - did have porta potties along the route. Thankfully I didn't need them, but knowing they were available eased my mind :)

I didn't raise money, but just attended and paid whatever fee there was. It was a great way to see other people who UNDERSTAND! I am hoping I am well enough this year to attend a walk near me.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission???
Asacol 12 per day,  Azathioprine 50mg, Aciphex, Effexor XR, Forvia, Fibercon, and Culturelle
Remicade: 1st infusion 06/17/08:  Next infusion: April 1
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16713
   Posted 3/9/2009 12:57 PM (GMT -6)   
Wow, it is all online. If anyone wants to donate. Please email me and I will send you my link.
 
I am sure there will be bathrooms! It would be terrible if there weren't any. Do you live in NY too?
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December 08 but had symptoms months ago - Treating with Asacol 400mg (9 a day)


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 3/9/2009 1:00 PM (GMT -6)   
I live in Texas..
Kara, 22F Married.
Latest-Went to ER cuz I couldn't eat for 5 days and was having severe flare up after passing two kidney stones after a week of the flu. (long month)
GI tried to taper me off of pred fairly fast in hopes to keep me on Lialda and at a lower dosage of pred. to try mesalamine enemas again.  Starting the Imuran as soon as labworks done... longer pred time....yippee *rolls eyes*
Medications:Prednisone 40mg Again! (groan)Lialda 4 a day until Imuran
I am so sick of this disease!
 
 


goforbroke
Regular Member


Date Joined Sep 2008
Total Posts : 51
   Posted 3/9/2009 1:29 PM (GMT -6)   
Ha their is one May 30 in Philly, right in my neck of the woods. Theirs another one May 16 in Bucks County which isn't too far from me also. I mind as well do both. I like how numerous people asked about the porta potties I thought that was kinda funny, but I completely understand!

26 year old male, diagnosed back in 2000 with UC.
My maintenance drugs consist of fish oil and acidophilus.. I take prednisdone when I have a flare up to get it under control. My bum likes me at the moment.


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/9/2009 8:48 PM (GMT -6)   
Well that would be a cruel joke on us if they didn't have the portpotties huh?! lol Put a bunch of Uc'ers and CD'ers together.........with NO toilets!

I believe we have two walks this year in Michigan. I haven't signed up for any of them yet because I don't know if I will be in town then. But if I am, I plan on going :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


JM21204
Regular Member


Date Joined Dec 2008
Total Posts : 254
   Posted 3/9/2009 8:53 PM (GMT -6)   
I walked in mine last year and am again this year at the end of May in my city (Baltimore). It was run very well. All the fundraising is done online and you get decent prizes too. I didn't know anyone, so I signed up to join an existing team and met some very nice people last year that I'm walking with again this year. At the actual walk all the pharmaceutical reps are there with free gifts too (fiber samples, pill boxes, gum, mints, pens, etc.) And yes, there are plenty of porta potties with hand sanitizer as well.
34 yr old female
Diagnosed with Pancolitis in 1/2007
Baby due 3/2009
Meds:1600 mg Asacol a day, Ferrex, Pre-Natal Vitamins, Lovenox, on and off Prednisone (40 mg then taper)
 


Sweetpea17
Regular Member


Date Joined Jan 2009
Total Posts : 73
   Posted 3/9/2009 10:43 PM (GMT -6)   
There is one in oregon in june. Im going to do it.

blondeceo
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 3/11/2009 12:38 PM (GMT -6)   
I'm doing the Houston walk on May 16th.
diagnosed with UC in 2008
current meds: asacol 3 400mg 3 X a day, remicade every 4 weeks, prenatal vitamin, probiotic, gelatin pills


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 3/11/2009 11:08 PM (GMT -6)   
I'm going to do the walk on Saturday, May 30 in San Jose. It's within walking distance of where I live.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: pro-inflammatory foods, HFCS, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 3/12/2009 6:04 AM (GMT -6)   
Ive done the Maine walks the last few years and raised over a thousand dollars the last two years. I just ask everyone I know, put my link on my facebook page, put it on my myspace page, etc. I also ask some local business owners I know. They tend to donate the most. I am registered for this year but think I might be moving before then so I might have to switch to the NH walk.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 3/27/2009 12:38 AM (GMT -6)   
I just joined to do the Dallas walk on May 17th!!! I'm so excited. I dunno if we're allowed to put a link to our personal page? I guess it'll be edited out if not... No sorry, this is not allowed.

 

 

Post Edited By Moderator (Red_34) : 3/27/2009 6:12:09 AM (GMT-6)

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