Peety - about the UK being very different...what do they do in the US/Canada?! Do they not keep you in for 5-7 days for IV steroids?
Hi, If I remember right you were scheduled for your hospital stay ahead of time? I think that in the US we pretty much only end up in the hospital on an emergency basis, when we're about ready to collapse and the body chemistry has gone wacko from dehydration or anemia or the like. Otherwise, treatment with steroids would just be given orally. Hospital stays are so ridiculously expensive, and our insurance can have influence on our treatment regimens.
In more than 20 years, I was only hospitalized overnight once, for severe anemia, and I was ready to collapse. Even then I was not given a blood transfusion because it was before they had good tests for HIV. I also didn't get IV steroids. I can't remember what was actually in the IV, but it wasn't steroids. But it worked, I got better and got the H out of there.
I hope the potassium-laden meals work for you!
Yep it was scheduled ahead of time...alot of the time people do end up in hospital with IBD on an emergency basis, but in some cases they arrange for you to come in before it gets to that point so they can get you on IV steroids or whatevers needed. The down side is that they can't 100% guarantee the bed will be free on the day they arranged (eg. incase theres a big emergency and more beds are needed) but its usually fine. My GP was going to send me in via accident & emergency if there was a problem anyway because I was getting so bad.
So how do you all cope with this disease when you have to pay so much money for it all? If even hospital stays are ridiculously expensive?
22 year old female, from the UK.
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for IV Hydrocortisone - had no effect!
Hospitalised Fri 27th Feb for a week of IV Hydrocortisone.
Currently taking daily:
40mg Prednisolone tablets
5mg Prednisolone suppositories x 2
1g Mesalazine suppositories x 2 (soon to change to Acetarsol)
2g Mesalazine sachets x 2