Confused about after effects of hospital visit

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qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 3/9/2009 6:03 PM (GMT -6)   
I already posted a topic about steroid side effects...having been in hospital last week and given IV steroids, suppositories etc, and then put on 40mg Prednisolone. I explained how I was/am dizzy and shaky alot of the time and also experiencing slightly worsening vision without my glasses. The general thought from doctors and on here is that it is due to fairly high doses of medication I have been on.
 
However I spoke to my GP today who look at the blood test results on the day of my discharge (last Fri) and I have low potassium and low protein (which is fairly normal with this condition I'm guessing) However the weird thing is that when I was admitted to hospital a week previously my liver results from the blood test were fine, and now she says they are showing as abnormal. She said this either means I have picked up an infection or maybe its just the steroids etc. Does this sound about right?
 
And not sure if this is of any relevance or not but sometimes after eating I experience a kind of dull burning pain/sensation from below my throat all the way to my chest, and it stays there for a while no matter how much water I drink to try to take it away.
 
Sorry for all the questions, I'm just very confused....I thought hospital was supposed to make you better, but I seem to have come out with more problems and worries!


22 year old female, from the UK.
 
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for IV Hydrocortisone - had no effect!
Hospitalised Fri 27th Feb for a week of IV Hydrocortisone.
  
Currently taking daily: 
40mg Prednisolone tablets
5mg Prednisolone suppositories x 2
1g Mesalazine suppositories x 2 (soon to change to Acetarsol)
2g Mesalazine sachets x 2
Fybogel supplement
Vitamin tablet
Build-up drinks
                             
                             

Post Edited (qwerty1) : 3/9/2009 5:23:51 PM (GMT-6)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/9/2009 8:16 PM (GMT -6)   
They sure did load you up once they got you in the hospital. A week in the hospital for an IV? I still don't get this approach, UK medical practice is so different!

The steroids deplete potassium, cause some blurriness and shakiness, no mystery there. My feet and hands will cramp in a painful, stubborn way from the potassium deficiency. Eat bananas, see if it goes away, don't put yourself through a bunch more tests over that!

What you describe in your throat and chest happens to everyone once it a while, I forget what it's called.
Relax, you're fine.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/9/2009 8:56 PM (GMT -6)   
The burn in your throat/chest area sounds like heartburn. Have you tried taking any OTC meds to see if this helps?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/9/2009 9:20 PM (GMT -6)   

GERD (reflux disease) causes those symptoms of throat burning, etc. and definitely can be caused by prednisone and other medications.  I take Prilosec for it - diagnosed along with UC with endoscopy. 

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008
Tried all mesalamines and enemas, Canasa, etc.  Colonoscopy 10/28 showed only few cm. left to heal -hydrocortisone enemas 12 days - much worse. Cannot tolerate mesalamine!
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 Feb. 21 - down to 20 mg. - no blood, no pain, no bad side effects so far. Starting 6-MP Feb. 28 along with 20 mg. prednisone.
Probiotic Align, Prilosec for GERD
 
 
 


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 3/9/2009 9:30 PM (GMT -6)   
Potatoes are very high in potassium. One medium potato with skin contains over twice the potassium as one medium banana. One medium potato contains 926 milligrams of potassium and one medium banana contains 422 milligrams. 8 ounces of orange juice contains 496 milligrams of potassium.
I don't know about the UK but by law in the US potassium supplements sold over the counter cant exceed 99 milligrams of potassium per capsule, which is a waste of money and a worthless amount of potassium. Your way better off to eat bananas, potatoes and oranges than to buy potassium supplements.

qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 3/10/2009 4:49 AM (GMT -6)   

Thankyou so much for all your replies - very helpful! I have already been making lots of smoothies and eating bananas! Sounds like potatoes are a good idea too then, so I'll be making myself that for lunch I think!

And Red_34 what are OTC meds?! Are they medicines for heartburn etc?

Peety - about the UK being very different...what do they do in the US/Canada?! Do they not keep you in for 5-7 days for IV steroids?


22 year old female, from the UK.
 
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for IV Hydrocortisone - had no effect!
Hospitalised Fri 27th Feb for a week of IV Hydrocortisone.
  
Currently taking daily: 
40mg Prednisolone tablets
5mg Prednisolone suppositories x 2
1g Mesalazine suppositories x 2 (soon to change to Acetarsol)
2g Mesalazine sachets x 2
Fybogel supplement
Vitamin tablet
Build-up drinks
                             
                             


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/10/2009 7:20 AM (GMT -6)   
OTC stands for over the counter medications = medications you don't need to see the pharmacist for. But I forgot that you are in the UK lol. :) Yes they are medication that is for heartburn or acid reflux.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 3/10/2009 7:58 AM (GMT -6)   
My daughter had similar symptoms after the high doses of pred. Not unusual for 40 mg of Pred(Solumedral,sp?) for multiple days to get UC under control. They put her on Prevacid and only recently took her off of it, as the excess acid can cause another set of problems. It is quite expensive if you pay for prescriptions, so I might try the over the counter stuff that used to be prescription first. Good idea to add the potassium.
Daughter,15 diagnosed 1-08 w/ UC .
Asacol, Prevacid, Flagyl, Prednisone 50mg, major flare, now off!, Hosp. four x this yr. Low residue diet still, an
6MP, Colazal ,horrible acne/moon for awhile- No more Pred,but 6mp isn't working. Cortifoam enemas 4xweek
Trying probiotics, Niferex, fish oil, and Mangosteen for kicks.
update:
Had 4th infusion of Remicade(12-08), and still on all of the other drugs, except Flagyl and Pred. Better, no remission. In a drug trial for children. Living on a flare's edge.


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 3/10/2009 7:59 AM (GMT -6)   
Ah I see. thanks! I actually went to the chemist this morning and they have given me some medication for heartburn and said its probably Prednisolone causing the problem as the tablets aren't coated.

22 year old female, from the UK.
 
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for IV Hydrocortisone - had no effect!
Hospitalised Fri 27th Feb for a week of IV Hydrocortisone.
  
Currently taking daily: 
40mg Prednisolone tablets
5mg Prednisolone suppositories x 2
1g Mesalazine suppositories x 2 (soon to change to Acetarsol)
2g Mesalazine sachets x 2
Fybogel supplement
Vitamin tablet
Build-up drinks
                             
                             


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 3/10/2009 8:13 AM (GMT -6)   
all your symptopms are ones I have while on Prednisone...Like the prior comments I agree that it sounds like that's probably what is causing your issues.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/10/2009 6:10 PM (GMT -6)   
qwerty1 said...

Thankyou so much for all your replies - very helpful! I have already been making lots of smoothies and eating bananas! Sounds like potatoes are a good idea too then, so I'll be making myself that for lunch I think!

And Red_34 what are OTC meds?! Are they medicines for heartburn etc?

Peety - about the UK being very different...what do they do in the US/Canada?! Do they not keep you in for 5-7 days for IV steroids?

Hi, If I remember right you were scheduled for your hospital stay ahead of time? I think that in the US we pretty much only end up in the hospital on an emergency basis, when we're about ready to collapse and the body chemistry has gone wacko from dehydration or anemia or the like. Otherwise, treatment with steroids would just be given orally. Hospital stays are so ridiculously expensive, and our insurance can have influence on our treatment regimens.

In more than 20 years, I was only hospitalized overnight once, for severe anemia, and I was ready to collapse. Even then I was not given a blood transfusion because it was before they had good tests for HIV. I also didn't get IV steroids. I can't remember what was actually in the IV, but it wasn't steroids. But it worked, I got better and got the H out of there.

I hope the potassium-laden meals work for you!


49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


qwerty1
Regular Member


Date Joined Feb 2009
Total Posts : 402
   Posted 3/11/2009 3:24 AM (GMT -6)   
Peety said...
qwerty1 said...

Peety - about the UK being very different...what do they do in the US/Canada?! Do they not keep you in for 5-7 days for IV steroids?

Hi, If I remember right you were scheduled for your hospital stay ahead of time? I think that in the US we pretty much only end up in the hospital on an emergency basis, when we're about ready to collapse and the body chemistry has gone wacko from dehydration or anemia or the like. Otherwise, treatment with steroids would just be given orally. Hospital stays are so ridiculously expensive, and our insurance can have influence on our treatment regimens.

In more than 20 years, I was only hospitalized overnight once, for severe anemia, and I was ready to collapse. Even then I was not given a blood transfusion because it was before they had good tests for HIV. I also didn't get IV steroids. I can't remember what was actually in the IV, but it wasn't steroids. But it worked, I got better and got the H out of there.

I hope the potassium-laden meals work for you!

 Yep it was scheduled ahead of time...alot of the time people do end up in hospital with IBD on an emergency basis, but in some cases they arrange for you to come in before it gets to that point so they can get you on IV steroids or whatevers needed. The down side is that they can't 100% guarantee the bed will be free on the day they arranged (eg. incase theres a big emergency and more beds are needed) but its usually fine. My GP was going to send me in via accident & emergency if there was a problem anyway because I was getting so bad.
 
So how do you all cope with this disease when you have to pay so much money for it all? If even hospital stays are ridiculously expensive?
22 year old female, from the UK.
 
Diagnosed with Ulcerative Proctitis Jan '08, Proctosigmoiditis Jan '09.
Hospitalised Jan '09 for IV Hydrocortisone - had no effect!
Hospitalised Fri 27th Feb for a week of IV Hydrocortisone.
  
Currently taking daily: 
40mg Prednisolone tablets
5mg Prednisolone suppositories x 2
1g Mesalazine suppositories x 2 (soon to change to Acetarsol)
2g Mesalazine sachets x 2
Fybogel supplement
Vitamin tablet
Build-up drinks
                             
                             


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/11/2009 7:05 AM (GMT -6)   
Many of us have insurance. They pay the majority of it if not all of it. But some aren't so lucky. If that is the case then the hospitals usually have a payment plan available. All medical expenses are ridicously expensive here that it's unreal. A couple years ago I went in for some female procedures. The actual procedure lasted maybe an hour and I didn't even stay the night. If I didn't have insurance, that trips would've cost me $13,000. A colonoscopy, here in Michigan, runs around $500-$750. Yes, things are a bit out of control here in the states when it comes to medical care.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 

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