In several posts here I have stated that I have not had your kind of urgency, never had an accident home or away, etc. I sometimes sounded like I had no respect or empathy for what you all are going through. I want everyone to know that is not true. I AM feeling fortunate that it has not happened to me - yet! I am also 68, newly diagnosed which is unusual. I have had IBS for years so the doctors say - diagnosed with an upper GI test years ago. My GI doc now says I may have had IBD for years - just mild and no bleeding (which took me for the colonoscopy last year).
Last night I was remembering living in Germany in 1961, young, new mother, sharing a bathroom (had to go downstairs from our apartment) - sharing with 9 people. Just could not imagine what it would have been like to have UC then.
Please accept my appology if I sounded insensitive. I wish you all the best - some of my methods of "holding it" work for me - that is all I am thankful for.
I am praying for a cure or at least better medication for this DD for my grandchildren, etc. Hang in there!! Thanks so much for your info and concern for me on this forum.
Prednisone is working for me now and 6MP is ok - going for blood tests today - hoping all is ok so I can continue to take it.
Senior - New diagnosed with proctosigmoiditis - 6/2008
Tried all mesalamines and enemas, Canasa, etc. Colonoscopy 10/28 showed only few cm. left to heal -hydrocortisone enemas 12 days - much worse. Cannot tolerate mesalamine!
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
Feb. 21 - down to 20 mg. - no blood, no pain, no bad side effects so far. Starting 6-MP Feb. 28 along with 20 mg. prednisone. March 9 - spoke too soon - bleeding returned.
Probiotic Align, Prilosec for GERD