Patience is a virtue...

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fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/11/2009 11:25 AM (GMT -6)   
At least I keep trying to tell myself that.  I just want to be back to where I was before I got the tummy bug NOW!!!  I was almost back to normal (~2 mostly formed BMs a day) and now I'm back to diarrhea ~4-6 times a day.  It's just frustrating! 
 
For those of you who have been through something like this before, I do just need to be patient, right?  I'm assuming the bug stirred up the irritation in my colon again, or is that wrong? 
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 3/11/2009 2:08 PM (GMT -6)   
Hi...well, patience plays a huge part in dealing with UC, but if you sense it's not of the norm what you're experiencing, then your doctor should have your stools tested for whatever bug you might have.

There are some bugs that can reside in the colon for a long while after the major symptoms have subsided.

Are you nearing a period or have your hormones fluctuated in the way that could cause your UC to be exacerbated? (I'm meaning at this point in time, not what you've been through before this)

Did your child just have an immunisation recently that has caused her/him to have diarrhea?

Have you eaten something recently that could be causing a change in your stools?

I think really you need to have stool testing done to clarify if it's that or not.

You could add a fibre supplement and maybe up the probiotics.

When is your next appointment with the doc?

Since you've improved a lot since your January 30 diagnosis, I would say ups and downs are common...at least I remember that experience from my many times of flaring. My recent flare has made its ups and downs and I'm trying to remain patient and not attempt to taper for another 3 weeks....

I do notice my stools have been looser which are a bit more difficult to hold with most of my inflammation being very low in the rectum...but today was much better as of late, so I'm assuming the inflammation is improving nicely. As well, yesterday I had unbelievable stomach discomfort and severe nausea with a horrific headache..ugh! Seems again when my UC is at a certain point rectally, my symptoms vary. But in saying that I might be more hopeful than actual.

Regardless...today is a much better day and life goes on.

Hope you're able to get it figured out....but do remember that as your colon is healing (up to down), your symptoms will vary as well.

You could, however, keep a daily diary, maybe even take your temp in the morning and night to possibly track hormone fluctuations, etc. It could lead to some insight (at least to help your mind from constantly trying to remember it all).

Keep us posted as to how you're feeling.

quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/11/2009 2:50 PM (GMT -6)   
I do feel like I am getting better...I was just hoping that after I got over the worst of the bug (vomiting and extreme diarrhea) that I'd pop right back to where I was before I got the bug. Unrealistic, I know.

My son had his last round of immunizations on February 16, which included the oral rotavirus vaccine, but we didn't notice any change in him during the following week, which is when any reaction would have occurred. And I was extra cautious about hand-washing after diaper changes as well as instructed by his doctor.

I am on oral birth control and I haven't noticed that any changes coincide with the time I'm on the "sugar pills" or anything like that.

Food has all been pretty mild stuff...nothing out of the norm.

I may try upping the probiotic, but I'm hesitant to try fiber. I did that back in November, before I was diagnosed, at the suggestion of my GP. All it did was make my BMs larger volume. And I don't want to add too many things at the same time, b/c then I won't know what it is that made the difference.

I did take an Immodium before bed last night, which allowed me to make it through the entire night holding the enema. I was having trouble doing so once my system "filled up" again after the bug. Maybe that will help me heal a bit faster.

My next appointment is April 6.

I think I'll give it until Monday next week to get better before thinking about stool cultures. My sister (who is a pediatrician) reminded me that it can take the gastrointentinal system of a normal person up to a week to 10 days to heal after a bug...I just need to remember that!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


Risan1808
Regular Member


Date Joined Jan 2009
Total Posts : 153
   Posted 3/11/2009 2:53 PM (GMT -6)   
I can relate to your frustration. Patience is one of my worst qualities. I have NONE!! It seems like I just start to get the UC under control and I catch something else (repiratory infection this time) that seems to through all the work with the UC out the window. I have no clue why but this is the second time I've been sick since being diagnosed and both times the UC has gotten worse.

Everyone just tells me to be patient but I am going on 15 weeks of being miserabel. It wears on you mentally after awhile. I just keep telling myself to take "one day at a time". Some days are easier to follow that advice than others.

Just realize you aren't alone!
Diagnosed Friday, February 13, 2009
Asacol 3 tabs 3X daily
Prednisone 20 mg
Flax and Fish Oil
Probiotic
Multivitamin


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/11/2009 3:15 PM (GMT -6)   
Patience is soooo not my strong point, in any aspect of life. For instance, I love my husband dearly, but it takes him SO FREAKING LONG to do some things. Sometimes I have to make myself not say "Here, let me do that," when I know I could get a task done much more quickly. :)

I just want to be well and to really, really, really be able to enjoy my son. It's just so darn unfair that I had to get sick right after he was born. Before my anxiety (and UC) were diagnosed I wasn't feeling the way I should about him. I was content to let my mom (who came out to help) and my husband do most of the care, which I know isn't right. And now I'm mad and upset that I lost that time with him. I know it was just a few hours here and there, and that it won't matter in the end, but I just feel like this darn disease stole that from me.

And now, with a job interview coming up at U of Wisconsin (and hopefully one at Purdue) that will allow us to move back closer to family, I just want to KNOW that I'll be well and healthy and able to perform my best. And I know you feel the same way about your trip. You just want to KNOW you'll be able to enjoy it.

That's what I hate most about UC...not knowing if you'll be able to be away from a potty.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).

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