Thanks everyone. I wasn’t able to respond last night because we picked up our brand new SUV and I spent the night reading the manual about
all the features. It’s almost more programmable than my computer LOL. I finally have a vehicle to take me to work when I go back. My wife was in an accident a few days before Christmas and her car was totaled.
I just started Lomotil last week. I was on it before my last surgery but was told to stop it until I see the surgeon for the first time after leaving the hospital. Yes I did try most of your diet suggestions but it seems to take a long time to make any difference if at all. I Have tried 3 different ointments and I’m using the one that I feel works best. I do read www.j-pouch.org once in I while. I haven’t posted there in a long time. I just don’t like how the forum is laid out. Things have definitely improved in the last week and I think my quality of life has finally equaled my pre surgery condition. I should be going back to work in a week or two.
Sue I am always amazed when you say you went to work 3 weeks after surgery. I was still in the hospital after 3 weeks. Even after I went home I couldn’t stand or walk for more than 10 minutes without breaking out in sweat and becoming totally exhausted. It took me over 2 months after surgery to get my strength back. At last weeks appointment I met my first hospital roommate. He seemed to be doing better than me. He had his first surgery 2 weeks before me and his second 2 weeks after me. He has been back to work for a week when I saw him last week. It’s amazing how everyone is different.
Luckily I have a good sick leave plan. Over the past 18 years of employment with the same company I have accumulated about
6 months of 100% pay followed by 6 months of 75% pay then LTD at 66% pay indefinitely.
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
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