Rowasa question

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ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 3/12/2009 4:27 PM (GMT -6)   
I have been unable to retain rowasa since my colonoscopy. My colonoscopy shows that the lower 30 percent of my intestines is bad while the rest is great so my GI doc said to stick with rowasa every night because that will heal that part of the me. I was having a little trouble with this before my colonoscopy and have had blood both before and after. Is it possible that my intestines are sore and can't handle it like they used to right now? Thanks all!
UC diagnosed January 05
Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, dicyclomine (still flared), Remicade - 7 treatments (stopping because no dramatic changes), allergy shots (03-07), levbid, prednisone (been off since nov. 08!), rowasa
Current meds: Asacol 4 - 3x, Aciphex (acid reflux), canasa and rowasa alternating every other night, konsyl (fiber for bulking stool), multivitamin, caltrate 2x a day. probiotic (florasmart), astelin (nasal spray as needed for allergies), fosamax (bone density)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/12/2009 7:07 PM (GMT -6)   
I know the prep always leaves me a bit sore as well as the biopsies. So I am thinking that you might be even more sensitive for a while until things settle a bit in there. However, by using Rowasa it may actually help settle your colon down. Have you tried warming the bottle first before inserting? Squeezing all the air out of the bottle?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 3/12/2009 7:11 PM (GMT -6)   
I heard of people microwaving I think - What do you do? I would fear melting the plastic and getting chemicals mixed into the solution.
UC diagnosed January 05
Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, dicyclomine (still flared), Remicade - 7 treatments (stopping because no dramatic changes), allergy shots (03-07), levbid, prednisone (been off since nov. 08!), rowasa
Current meds: Asacol 4 - 3x, Aciphex (acid reflux), canasa and rowasa alternating every other night, konsyl (fiber for bulking stool), multivitamin, caltrate 2x a day. probiotic (florasmart), astelin (nasal spray as needed for allergies), fosamax (bone density)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/12/2009 7:54 PM (GMT -6)   
There are two ways to heat the bottle up. Microwave? Umm no! lol You can submerse the bottle in warm water for a minute or two or roll it around in your hands until it warms up. I've even had the bottle under my armpit for a bit to help warm it up on occasion but that is when I was camping and there was no warm water around and it was chilly out. :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 3/12/2009 8:48 PM (GMT -6)   
OMG...microwave?? never.

How long are you able to retain the Rowasa...is it at least 30 minutes?

You could ask your doctor for some antispasmodics....or maybe see if using Imodium for the nights can be helpful...I just saw that in someone else's posting to help retain the enemas.

I have no problem retaining the enemas...One has to try and get through the first minute of urges after insertion.

Hope after a week you'll be able to retain them better.

You might ask the doctor for the suppositories to maybe use during the day and the Rowasa at night.

Keep us posted as to how you're doing.

quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 3/13/2009 8:30 AM (GMT -6)   
I retained it last night. Such a funny thing to be happy about it... Thanks everyone for the help and I will try warming it - I thought microwaving was ridiculous but I've been out of it lately, haha.
UC diagnosed January 05
Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, dicyclomine (still flared), Remicade - 7 treatments (stopping because no dramatic changes), allergy shots (03-07), levbid, prednisone (been off since nov. 08!), rowasa
Current meds: Asacol 4 - 3x, Aciphex (acid reflux), canasa and rowasa alternating every other night, konsyl (fiber for bulking stool), multivitamin, caltrate 2x a day. probiotic (florasmart), astelin (nasal spray as needed for allergies), fosamax (bone density)


RyanF
Regular Member


Date Joined Jan 2006
Total Posts : 358
   Posted 3/13/2009 10:44 AM (GMT -6)   
I personally never had an issue retaining these things except when the flare went really bad once and they believe the UC infected an area to consider it proctitis, too-- so sensitive and it hurt like #%^!!! So I went on the bullet for a while, things abated and now I can retain the enemas again no problem.

I personally heat the bottle in warm water myself... although lately, with me being in or on the verge of remission, I just take it as is-- I'm a tough guy! ;o)
Ryan


Meds:
Began Humira on 10 Jan 2009
Second injection: two pens on 24 Jan 2009
Third injection: two pens on 07 Feb 2009
Humira pen (1) weekly WIE UFN
Rowasa nightly
Canasa daily
Lialda X3
Probiotics + protein digestive enzymes


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 348
   Posted 3/13/2009 11:20 AM (GMT -6)   
How long are you supposed to be on the Rowasa for? I ask because I am really interested in how long people are put on it during flares.
26m - Dx January 2005: UC/Crohn's
Normal medication: 12 tablets of Asacol daily
New: Entocort 9 mg


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/13/2009 12:34 PM (GMT -6)   
The typical dosing regimine is 6-8 weeks and sometimes longer if the symptoms are still present.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 3/13/2009 12:43 PM (GMT -6)   
Has anyone been on it longer - is there a limit on how safe it is for long-term/prolonged use issues?
UC diagnosed January 05
Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, dicyclomine (still flared), Remicade - 7 treatments (stopping because no dramatic changes), allergy shots (03-07), levbid, prednisone (been off since nov. 08!), rowasa
Current meds: Asacol 4 - 3x, Aciphex (acid reflux), canasa and rowasa alternating every other night, konsyl (fiber for bulking stool), multivitamin, caltrate 2x a day. probiotic (florasmart), astelin (nasal spray as needed for allergies), fosamax (bone density)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 3/13/2009 12:50 PM (GMT -6)   
however long it takes one to feel "normal"...and remember to always taper to a maintenance dosage.

I'm in a mild flare, but it seems things are just taking its sweet time. My emotions definitely seem to dictate my progress, and I'm feeling a tad distressed lately. too many friends having health problems, and another who is soon to be dying from cancer. I'm at a loss internally because this person is close, but not close...I have internal conflict and it sucks. She's a fighter, in denial but forever hopeful and of course doesn't want to die....I'm protecting my feelings, so maybe I'm the one in denial.

Sucks....and my butt is reminding me it's paying attention.

oops, off track....but the point is I'll be stying on the enemas for at least a month nightly depending on what stressors are presenting. I'm feeling vulnerable, but know I'm having to meet the challenge of dealing with the aftermath of knowing the whole family. There I go again....

quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 348
   Posted 3/13/2009 1:04 PM (GMT -6)   
Sorry to hear about all the bad news recently. I hope things get better.

6-8 weeks seems really, really long. Have any of you used enemas for that long? I am wondering if it will really take that long to end the flare.
26m - Dx January 2005: UC/Crohn's
Normal medication: 12 tablets of Asacol daily
New: Entocort 9 mg


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 3/13/2009 1:06 PM (GMT -6)   
I'm sorry to hear that :( but at least you are aware of how you are reacting to it. I notice you take dicyclomine, what are your feelings on that - I took it for a while but I always thought it just made me more exhausted.
UC diagnosed January 05
Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, dicyclomine (still flared), Remicade - 7 treatments (stopping because no dramatic changes), allergy shots (03-07), levbid, prednisone (been off since nov. 08!), rowasa
Current meds: Asacol 4 - 3x, Aciphex (acid reflux), canasa and rowasa alternating every other night, konsyl (fiber for bulking stool), multivitamin, caltrate 2x a day. probiotic (florasmart), astelin (nasal spray as needed for allergies), fosamax (bone density)


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/13/2009 1:14 PM (GMT -6)   
I'm going to stay on it as long as it takes to get myself into remission and then I'll start tapering. I'll use them at a maintenance dose if I have to. As far as long-term safety, it's the same medicine that's in the Asacol I take orally, and I have a feeling it's probably a bit easier on my kidneys to use enemas a few times each week if I can keep my Asacol dose lower.

I started using them on February 6, but just a half a one at first b/c my doctor didn't think I'd be able to retain it. Then around the 18th or so I decided to start using a full one. about a week later I was down to 2-3 fairly formed BM's a day and was doing great. Then I got a tummy bug on March 3.

So I've been on them for five weeks now.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 348
   Posted 3/13/2009 1:17 PM (GMT -6)   
Did you have blood before going on the enemas?
26m - Dx January 2005: UC/Crohn's
Normal medication: 12 tablets of Asacol daily
New: Entocort 9 mg


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 3/13/2009 1:24 PM (GMT -6)   
At points...But I was on the enemas for a few months before getting a flare. They with canasa and fiber put me in remission I think.
UC diagnosed January 05
Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, dicyclomine (still flared), Remicade - 7 treatments (stopping because no dramatic changes), allergy shots (03-07), levbid, prednisone (been off since nov. 08!), rowasa
Current meds: Asacol 4 - 3x, Aciphex (acid reflux), canasa and rowasa alternating every other night, konsyl (fiber for bulking stool), multivitamin, caltrate 2x a day. probiotic (florasmart), astelin (nasal spray as needed for allergies), fosamax (bone density)


NostraHistoria
Regular Member


Date Joined Nov 2008
Total Posts : 348
   Posted 3/13/2009 1:58 PM (GMT -6)   
Canasa is a suppository, right? How did you take the enema and suppository? Did you take Canasa in the morning? How long did you have to lay on your side with Canasa? I guess the enema was at night only. I take the enema at night.
26m - Dx January 2005: UC/Crohn's
Normal medication: 12 tablets of Asacol daily
New: Entocort 9 mg


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/13/2009 3:22 PM (GMT -6)   
You don't need to lie down with Canasa which is why most people use them in the morning. Canasa is not a liquid but a solid and it melts but it only treats rectal symptoms. The enema, since it's a liquid, you have to lie on your side for proper distrubution.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


RyanF
Regular Member


Date Joined Jan 2006
Total Posts : 358
   Posted 3/13/2009 3:31 PM (GMT -6)   
I used the Canasa and I took it at night before bed but I wasn't able to hold the enemas anyway-- so when I finally could I used enemas at night and then in the morning, post-morning-obligatory-bathroom-visit, I would take a bullet.:0)

I've been on the enemas now since December but I'm beginning to taper.
Ryan


Meds:
Began Humira on 10 Jan 2009

Humira pen (1) weekly WIE UFN

Rowasa nightly

Probiotics + protein digestive enzymes


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 3/13/2009 3:38 PM (GMT -6)   

At one point - I was actually on the Rowasa for around 9 months or so - nightly.  And I needed them.  Every time I tried to slow down I would start getting symptomatic.  6-8 weeks is really not all that bad.

If you are still having problems retaining them - warming and squeezing out the air first are a must.  Then my doc had me take 1/2 to 1 immodium 1/2 hour before taking the enema.  Then starting with 1/2 bottle worked my way up to retaining the whole bottle over the course of a week.  Eventually I didn't need the immodium anymore.


Mamas Boys
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 3/13/2009 3:46 PM (GMT -6)   
I was taking canasa one night and the rowasa the next and alternating.
UC diagnosed January 05
Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, dicyclomine (still flared), Remicade - 7 treatments (stopping because no dramatic changes), allergy shots (03-07), levbid, prednisone (been off since nov. 08!), rowasa
Current meds: Asacol 4 - 3x, Aciphex (acid reflux), canasa and rowasa alternating every other night, konsyl (fiber for bulking stool), multivitamin, caltrate 2x a day. probiotic (florasmart), astelin (nasal spray as needed for allergies), fosamax (bone density)


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 3/13/2009 6:22 PM (GMT -6)   
When I was DX with UP in 2006 I used Salofalk (Rowasa) enema nightly for 6 months before I could taper.
For my recent flare, I have been using Salofalk enema nightly for 4 months now, after I had used Entocort enema for 7 weeks earlier.
I am still not 100%, though. I still have urgency and occasional bleeding. I don't know what to expect. I only know I need patience.
Hope you will feel better soon.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 2/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C, psyllium capsule (Metamucil) and bee propolis.

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