The way i look at it is that no body wants to go against what doctors say. And that's great b/c Dr's dedicate most of there lives to these type of things so they obviously know more about
this than the average person. If a dr says you require maintenence drugs for any condition he's only going to say this b/c he knows that the facts are that they greatly reduce the risks associated with the disease in the majority of people or in everybody. That being said, UC is a very serious and dangerous disease so you want to be very very cautios with your treatments.
Personally i have chosen to go without prescriptions for several reasons. The main reason being is that i did improve when I got off maintenanvce levels of both azathioprine and asacol. i was on those 2 drugs since initial diagnosis and a lot of the time as well. I would go into flares and remissions so i figure i know a lot more about my body by now with that experience. So while off Prescriptions I improved significantly and started feeling better than i had since I got UC. In fact that was the only period i gained a weight back. So feeling healthier and looking healthier has made me think that i'm better off now than when taking prescription drugs or at least that combination that i was on.
It was also interesting that my first flare off prescriptions was a little different than the prior ones while on presciptions. It was diffenent b/c i had way more joint pain than was typical for me and i felt horrible and definately not mobile enough to play basketball like i love to do. But on the other hand i was in remission and "better" remission longer than i had ever been since my initial UC diagnosis and the flare didn't last as long as they used to.
So in my opinion i have to say that you take in all the information you possible can and analyze all your symptoms as best you can and make a decision based on everything and what everyone tells you. Doesn't make much sense maybe but UC doesn't make much sense.lol Good luck!
28/M/TX single parent of gorgeous 3yo girl (revised 12/12/08)
Severe Colitis (pancolitis) since January 9, 2005
currently: Mildly Flaring
RX/day: none! Tapered off Prednisone 9/20/08. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: enzymes everyday, turmeric, seldom use probiotics, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: Prayer, food combos, good posture, chewing more, etc.