How do I start a website Dating-Dating those with your same illness?

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therearemiracles
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Date Joined Dec 2006
Total Posts : 3608
   Posted 3/13/2009 10:19 AM (GMT -6)   
Hi All,
 
I know some of us want to date, but dating can be hard if you don't want to open up about UC and I think dating someone with UC would be easier, b/c understanding would already be present and having one thing in common is already established.
 
I would like to start a dating matching service so that those who suffer with illnesses can find a mate with the same illness to have understanding and campanionship with and someone who can identify with what you are going through. Wouldn't this be nice for those who are looking to date, but are afraid to met anyone who wouldn't understand their dis-ease??
Once I came across a man, same age as me with UC and we talked for hours and shared stories and emtionally were on the same page together but he was married. What a comfort it is to know someone of the opposite sex is going through what you're going and can identify witht he urgencies, accidents, not feeling good and can be there for you emotionally.
 
Do you like this idea?
Very mild left sided (could have fooled me with the "mild")  UC. STARTED LDN ON 1/25/09. Supplements:  Cod Liver, Probiotics, multi whole food vitamin, olive leaf extract.


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 3/13/2009 10:41 AM (GMT -6)   
This is actually not a bad idea. I can see where your coming from. But a friend of mine ( who also has UC ) and I were talkin a little while ago about something similar. Can you truly see two people dating and living in the same house and both have UC? Leads to some possibly funny scenarios.
"Honey as soon as we both finish our enemas, want to full around?"
"Dang Honey.... ya used the last of the tp AGAIN."
"hurry up in there..... my turn"
Or maybe ya could just in stall side by side toilets.... that way quality time could be spent instead of wasted. LOL.
I don't mean to poke fun... it actually is a good idea... I know having someone to talk to who has the same disease has helped me alot. Its just my weird sense of humor that can see the possible down sides when the disease in question is UC
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09**down to 17.5 mg 1/22/09
**down to 15 mg of pred 2/3/08**down to 12.5 mg of pred 2/13/09**down to 10 mg 2/26/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 3/13/2009 11:04 AM (GMT -6)   
Oh no, it's a a terrible idea!  I mean, all you would do is sit around & talk about your bm's, or how your butt is feeling, & I bet you'd never actually "go" anywhere with the other person for fear of accidents, or bathroom issues. I guess what I mean is- sometimes, other "healthy" people can bring you up a bit, & make you do things you wouldn't decide to do on your own. If I'm feeling half-heartedly about an event or outing, my friend or husband will kind of urge me in to it. So I go & usually have a GREAT time. No problems. Maybe a few more bathroom trips than the average person. So wouldn't you think the 2 of you would just sit around & opt out of everything? I don't know... a person doesn't have to have a disease to be caring & empathetic. Besides, what is there to understand, really? We go to the bathroom a lot. If you're having a horrid day, there's no need to get into explicit details about it, just say you're not feeling well & would rather stay home.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Primal Defense Ultra
Fiber supplement
 
 
 


WhiteSox1
Regular Member


Date Joined Oct 2007
Total Posts : 135
   Posted 3/13/2009 11:27 AM (GMT -6)   

lol...you crack me up Bubba.

Personally, I think it's a great idea.  In fact, when I recently jumped back into the dating pool I tried to find a site just for UC or Crohn's but couldn't find any.  When I finally met somebody from a regular dating site, it was really hard on me to open up to them about my UC without them fully understanding it.  In my opinion, if I was to meet somebody who already had the disease it would have been so much easier and stress free because the understanding is already there.

 


Pancolitis - Diagnosed on 9/6/07
Asacol 4 pills 3x's daily
Imuran 150mg.
Canasa
Multi-Vitamins
Calcium with Vit. D Tablets


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3608
   Posted 3/13/2009 12:00 PM (GMT -6)   
Hi again,
I too am in the dating pool and the first thing I think of is, I'll have to drive seperatly b/c sometimes I shart in the car, that a nice after dinner send off. You have no idea how much spontaneous things I did b/4 this BS. I can't take long walks b/c I always have to poop. I'm really hoping this LDN kicks in soon.
Very mild left sided (could have fooled me with the "mild")  UC. STARTED LDN ON 1/25/09. Supplements:  Cod Liver, Probiotics, multi whole food vitamin, olive leaf extract.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 3/13/2009 12:16 PM (GMT -6)   
There already is a site for this!

www.ibdmatch.com


Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 3/13/2009 12:35 PM (GMT -6)   
thought of a possible benefit....... maybe sharing drugs... one prescription to benefit two? LOL. Might work out cheaper.
But could you imagine car trips? If ya weren't on the same "schedule" you'd never get anywhere. Bathroom stops every exit instead of every other. LOL.
but another up side is you could play a form of russian roulette... see who could hold it the longest. " oops honey... I lose " " actually honey I lose because its my week to do the laundry" LOL
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09**down to 17.5 mg 1/22/09
**down to 15 mg of pred 2/3/08**down to 12.5 mg of pred 2/13/09**down to 10 mg 2/26/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 3/13/2009 12:46 PM (GMT -6)   
therearemiracles said...
Hi again,
I too am in the dating pool and the first thing I think of is, I'll have to drive seperatly b/c sometimes I shart in the car, that a nice after dinner send off. You have no idea how much spontaneous things I did b/4 this BS. I can't take long walks b/c I always have to poop. I'm really hoping this LDN kicks in soon.

Ugh, yeah, dating or doing anything spontaneous is just not fun. I'm recently single and the thought of dating again just freaks me out. Dinner and a movie?? Uh no thanks! Unless the movie comes first and I can go home after dinner that is. I'm going to have to buy stock in Immodium.

I miss doing spontaneous or even just regular things too. My dad was telling me today that I should really take my dog to the dog park since it's been months since she's even played with another dog, and I would LOVE to but there are no toilets in the park and the thought of walking all the way out there and being stuck makes me too anxious.
Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
3rd Remicade infusion 3/19/09


madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 3/13/2009 1:36 PM (GMT -6)   
Generally, I support anything that encourages love, so I think it is a grand idea for those looking for companionship and understanding.

Bowel Disease would bring the couple together (how romantic, eh?), but it would be all the other more interesting things about their personalities and lives that will keep them together.
UC diagnosed 10/05, first symptoms 1983
Starting remicade 3/24/09
* asacol 12/daily * rowasa pm * cortifoam  
 Culturelle Probiotic - prilosec - metamucil capsules
past rx: colozal, lialda, canasa, 6mp
i can't complain, but sometimes i still do.  lifes been good to me so far.  -joe walsh


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3608
   Posted 3/13/2009 1:40 PM (GMT -6)   
I'm trying the IBD, let's see there's no one 35-50 yrs old, male, within 500 miles from detroit, weird. I'm must be the only one with a but problem in northern Michigan :)
Very mild left sided (could have fooled me with the "mild")  UC. STARTED LDN ON 1/25/09. Supplements:  Cod Liver, Probiotics, multi whole food vitamin, olive leaf extract.


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 3/13/2009 2:03 PM (GMT -6)   
thanks fot the laughs bubba. omg that was too funny.. I loved the dual toilet and QT idea.haha. And the one about sharing drugs. I can already see it. when one runs out the other tells his/her partner "oh honey i'm so forgetfull about my refills, what would i ever do without you."lol
when i first read the title i said that could be great. I mean the couple would have a really close and open relationship and if both are in remission that would be awesome b/c they would encourage eachother to live better and healthier by eating the same healthy foods and maybe excersing together and stuff. But then i read uncle bubbas responses and he made me luagh but he made a lot of sense too. So obviously there are pros and cons to this matching idea. But since i believe all relationships should start off as friendships then maybe the matching website should just be an "person introduction" website where someone could find more of a friendship than anything and if it led to somehthing more than that then that would be a plus from the whole thing. For example even if i knew of a guy (which i'm a guy too) in my area it would be cool just to talk to them and becomes friends. I have a lot of great friends, males and females, but none who really can relate to me and none that i can really talk seriously about my UC with.
therearemiracles you said in the title that it would be for people with the same illnesses so that may work out better than just UC since UC may quite posssible have the most annoying, embarrasing and highest likely symptoms.

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3608
   Posted 3/13/2009 2:15 PM (GMT -6)   
I just registered on the www.ibdmatch.com, something I thought I would never do. I'm at the point like who cares people have issues of all sort my just happens to be butt issues. I encourage all those looking to date and want to find someone who understands a IBD issue to register, it should be fun!
I really don't want to be the only one of front and center page thank you :) how do they get me off there??? I'm like, IN YOUR FACE at least the dude above me doesn't look so big.
Very mild left sided (could have fooled me with the "mild")  UC. STARTED LDN ON 1/25/09. Supplements:  Cod Liver, Probiotics, multi whole food vitamin, olive leaf extract.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 3/13/2009 2:43 PM (GMT -6)   
You can always just look at the IBD site as a place to meet others in your area that have IBD. I know that when I had UC it sure was nice to meet others with UC and Crohn's. I made some great friends in our local CCFA.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3608
   Posted 3/13/2009 2:47 PM (GMT -6)   
Suebear Thank You so much this is very cool and I'm excited about it!

Very mild left sided (could have fooled me with the "mild")  UC. STARTED LDN ON 1/25/09. Supplements:  Cod Liver, Probiotics, multi whole food vitamin, olive leaf extract.

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