Pretty well said by all. It is hard to explain to others. At my senior age at least I can get away with being "older" and therefore full of aches and pains anyway. I have bad knees - obvious to others - and they know I am in pain because I use a cane to get around. The inside pain/weakness/tiredness/etc. just doesn't always show and we try not to show it to our loved ones and friends.
NOW - I have that "moonface" from prednisone. I have not seen many but wonder which ones notice and KNOW what it is or wonder how I am. Some know I am on steroids and at my age we know what causes moonface! I don't mind but wonder what others may think! If the prednisone (and it is) gets rid of the DD - stops the bleeding, etc. I can tolerate a FAT face! I find many just don't undertand how we have to TRY so many treatments, etc.
I have been trying to get a knee replacement for 3 years - first panic attack, then husband cancer and now UC - my family thinks I am "using UC" to get out of the surgery - REALLY! If I don't want the surgery I will just not have it - don't need any excuses - it is my body after all. I have learned in my 68 years (well, at least about 40 of them) that we take care of ourselves first - family will have to wait. Took a few years to learn that but it is important lessson!!
I stand in admiration of all of you who have to cope with college, parents, young children, etc. My heart goes out to all of you. May there be a cure for this DD in your lifetime!!
Senior - New diagnosed with proctosigmoiditis - 6/2008
Tried all mesalamines and enemas, Canasa, etc. Colonoscopy 10/28 showed only few cm. left to heal -hydrocortisone enemas 12 days - much worse. Cannot tolerate mesalamine!
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
Feb. 21 - down to 20 mg. - no blood, no pain, no bad side effects so far. Starting 6-MP Feb. 28 along with 20 mg. prednisone. March 9 - spoke too soon - bleeding returned.
Probiotic Align, Prilosec for GERD