I had surgery- what an experience!!!!

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jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/14/2009 5:21 PM (GMT -6)   
Hey guys-
Wedesday I had an appointment with the surgeon to schedule surgery. I was feeling exceptionally bad so I told him about my hospital visit last week etc.. He checked my records from the visit and he said well let's do it--- the surgery that is. He admitted me in to the hospital and told me that he would perform the surgery Friday... Boy, was I shocked. He didn;t want to take the chance that I would deteriorate any further.

Unfortunately, he said the best thing was to do a three step instead of two step. Because of extended pred use and how sick I was it was the best for me.

Thursday was the day for tests- x-rays, EKG, lots of blood work etc

Friday at 4:30 pm, I was wheeled in to the OR and I was in reovery by 9:00pm
Got back to the room by 10:00

Ok- was I in pain -- real pain whoooooo..... I have a pain pump which really helps


They got me up today to walk and I sat in the chair for a while. Not bad at all.

The stoma is working well- they already emptied out twice. It doesn't bother me at all to look at it, in fact it is rather fascinating.

And it farts --- too funny. When the physical therapist came to help me it farted very loudly. My daughter was so embarrassed- he and I just laughed.

Well, at least I had the surgery laparscopically which he wasn't sure he could do.


Any questions?

I will keep you updated- I hope to be out by Tuesday.... Keep your fingers crossed.
Oh yeah, I have to change my profile.... :)))
Jackie, 43
Pancolitis, DX October 06

Lexapro, Colazal 3x3, Synthroid, Protonix, 6MP (100 mg)
Severely Anemic
Prednisone 20mg, Iron, Vitamin D
Surgery almost certain


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 3/14/2009 5:40 PM (GMT -6)   
Hi Jackie...wow, that was amazingly fast...and it's awesome to hear you're feeling this well a day after the surgery!

Did the surgeon mention about the condition of your colon...etc? I remember some UCers having had surgery state that even the doctor was surprised as to how bad the colon was. Maybe it looks worse when it's not connected..lol!

Hope your recovery goes smoothly.



quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/14/2009 5:58 PM (GMT -6)   
The surgeon said that the colon was in horrible condition and that is really good we got it out when we did. No wonder I was soooo sick. That is the reason it has to do a three step....
Jackie, 43
Pancolitis, DX October 06

Lexapro, Colazal 3x3, Synthroid, Protonix, 6MP (100 mg)
Severely Anemic
Prednisone 20mg, Iron, Vitamin D
Surgery almost certain


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 3/14/2009 6:12 PM (GMT -6)   
Hi Jackie...so saying good riddance is easy then.

What are the 3 steps that you would require? I haven't done much research on it as of yet...

when is the proposed date for step 2?

q
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 3/14/2009 6:52 PM (GMT -6)   
Glad to hear that you are doing well! You sound really happy. Wishing you a speedy recovery!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


redbull
Regular Member


Date Joined Mar 2008
Total Posts : 30
   Posted 3/14/2009 7:09 PM (GMT -6)   
Glad to hear everything is ok and going good.I ask my Dr about cutting out only the infected part of the colon, he said with UC you have to cut the whole colon out. I don't understand because with colon cancer you cut out the cancer this is what my motherinlaw had she had stage 3 cancer.so far she is cancer free.Anyway when u have the surgery u had do u have to be put on permanent disability or can u still work I am a heavy equipment operator I don't know if I would still be able to work and have a normal way of life if it ever came to surgery for me.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/14/2009 7:27 PM (GMT -6)   
Thanks for taking time to let us know already! Wow!
You sound happy. I wish you a speedy recovery, good things.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/14/2009 7:36 PM (GMT -6)   
YAY for being healthy! I hope all goes well for you!

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 3/14/2009 7:48 PM (GMT -6)   
So glad that nasty sick colon is gone and for good!
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 3X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 3/14/2009 10:31 PM (GMT -6)   
I hope your recovery continues to go well! We've had many people say that very quickly after surgery they feel healthier than they did with their colon. Is that your experience?

Congratulations on being UC free!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  Remission???
Asacol 12 per day,  Azathioprine 50mg, Aciphex, Effexor XR, Forvia, Fibercon, and Culturelle
Remicade: 1st infusion 06/17/08:  Next infusion: April 1
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 3/15/2009 4:35 AM (GMT -6)   
Thanks for the kind thoughts. To answer your questions-

the first step is removal of colon - they leave a bit of the rectum
Second step is creation of the jpouch -
third step is connection of the jpouch.

The 3 steps allow for more recovery time.

As far as feeling differenty Uc- wise. I do feel differently. It is weird that I don't have to run to the bathroom and no cramping or extreme UC pain. I like that part.

I have been having gas pain- I guess from the surgery and stuff- which is annoying but not toooo bad. Tums helps a bit.

I know there will be good days and bad days- so I am trying to take one day at a time and know that recovery will take a while. I do feel better walking around and sitting in the chair like I am now.


Stoma nurse should come by tomorrw and change the bag. I am observing the emptying of the bad and it looks easy --- nurses have different techniques , but they are experienced with this. I think I will be okay with the bag after I get used to it.


It does pass gas a lot. A bit worried about this once I am out in public nono
Jackie, 43
Pancolitis, DX October 06

Lexapro, Colazal 3x3, Synthroid, Protonix, 6MP (100 mg)
Severely Anemic
Prednisone 20mg, Iron, Vitamin D
Surgery almost certain


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/15/2009 7:56 AM (GMT -6)   
I'm impressed too that you are up and posting to us already! Kudos to you :) I will hope that the rest of your stay and recovery is smooth sailing!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16719
   Posted 3/15/2009 10:34 AM (GMT -6)   
That is wonderful. You sound like you're in high spirits. Congrats and goodluck having a quick recovery :)
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December 08 but had symptoms months ago - Treating with Asacol 400mg (9 a day)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/15/2009 11:23 AM (GMT -6)   
The gas will calm down alot afer a while, esp after you get to eating more often. And regular foods. Also, take some Gas X, BEFORE you get gas, have your dr write you a script for it, and then take it in the am and then the middle of the day, or in the middle of the day or at night.
The output will slow too, and not tlook as nasty, or smell as nasty eitehr, lol.

mollymcbutter
Regular Member


Date Joined Mar 2009
Total Posts : 130
   Posted 3/15/2009 11:47 AM (GMT -6)   
Hi I am new to this site. I have had Ulcerative Colitis for 40 years. Actually things overall hadn't gone too badly, this last year I have had somewhat more problems. I am faced with stepping up my medications to keep this more under control. I am so scared to death, I can't sleep at night. My doctor has called in Rx for 6-MP, but am so afraid of taking this, I can't seem to do it. Have been thinking instead of having colon removed and having the J pouch, know that this is a big step as I haven't been as sick as some with UC, but always having to go to the bathroom and not making it many times has taken it's toll over the years. I need some advice from anyone who has any for me. THanks.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/15/2009 1:10 PM (GMT -6)   
mollym, why don't you start a new thread, so we can talk with you ~
I'm also a long time sufferer, hoping to start Humira soon.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 3/15/2009 2:01 PM (GMT -6)   
mollymcbutter said...
Hi I am new to this site. I have had Ulcerative Colitis for 40 years. Actually things overall hadn't gone too badly, this last year I have had somewhat more problems. I am faced with stepping up my medications to keep this more under control. I am so scared to death, I can't sleep at night. My doctor has called in Rx for 6-MP, but am so afraid of taking this, I can't seem to do it. Have been thinking instead of having colon removed and having the J pouch, know that this is a big step as I haven't been as sick as some with UC, but always having to go to the bathroom and not making it many times has taken it's toll over the years. I need some advice from anyone who has any for me. THanks.
hi there...just wanted to comment on the 6-mp...i have been on it for about a month.  i was scared as well...put it off for a long time before i gave in.  i have not noticed any bad side effects to this point.  it has not kicked in yet, but they said it could take up to 3-5 months so i'm just taking it and waiting.  it's a strong drug. but if it works and gives me some quality of life back that it will be worth it.  good luck with your decision...also read theough the threads- there are a bunch on 6-mp and people's thoughts and experiences.

mollymcbutter
Regular Member


Date Joined Mar 2009
Total Posts : 130
   Posted 3/15/2009 2:30 PM (GMT -6)   
Thank you for replying.  I don't know how to maneuver through this site, so need help.  How do I find the threads of people who use 6MP

mollymcbutter
Regular Member


Date Joined Mar 2009
Total Posts : 130
   Posted 3/15/2009 2:36 PM (GMT -6)   
Peety, I hope this is reaching you as I don't know how to work this site.  Thank you for writing.  Please help me along to be able to chat.  I need a lot of advice right now.
Peety said...
mollym, why don't you start a new thread, so we can talk with you ~
I'm also a long time sufferer, hoping to start Humira soon.


mollymcbutter
Regular Member


Date Joined Mar 2009
Total Posts : 130
   Posted 3/15/2009 2:42 PM (GMT -6)   
HI, thanks for writing.  I don't know how to maneuver well through this site, but need to talk to people desperately.  Hope this reaches you and thank you for replying to me.  I hope to get over my fear, but feel that is not going to be an easy task.  Fear is holding me back from doing anything, and feel that maybe I should just have the surgery, but then think maybe I should give this medication a try.  I don't know how to start a thread, but maybe that would be a good thing for me to learn.
mtgman said...
mollymcbutter said...
Hi I am new to this site. I have had Ulcerative Colitis for 40 years. Actually things overall hadn't gone too badly, this last year I have had somewhat more problems. I am faced with stepping up my medications to keep this more under control. I am so scared to death, I can't sleep at night. My doctor has called in Rx for 6-MP, but am so afraid of taking this, I can't seem to do it. Have been thinking instead of having colon removed and having the J pouch, know that this is a big step as I haven't been as sick as some with UC, but always having to go to the bathroom and not making it many times has taken it's toll over the years. I need some advice from anyone who has any for me. THanks.
hi there...just wanted to comment on the 6-mp...i have been on it for about a month.  i was scared as well...put it off for a long time before i gave in.  i have not noticed any bad side effects to this point.  it has not kicked in yet, but they said it could take up to 3-5 months so i'm just taking it and waiting.  it's a strong drug. but if it works and gives me some quality of life back that it will be worth it.  good luck with your decision...also read theough the threads- there are a bunch on 6-mp and people's thoughts and experiences.

Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 3/16/2009 10:11 PM (GMT -6)   
MollyMc Butter: Just go to the "new Topic" area and write what you want in the subject line--just like you see on the main page. Then write your questions and comments. I think you would benefit from lots of reading of what is already out here. Just scroll thru the pages(top right), and you will see the questions and comments from our smart group. We try not to go off topic from the original poster's requests. Sorry to have just done that. Good luck!
Daughter,15 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Prevacid, Flagyl, Prednisone- 50mg to 0, 4 major flares '08.Hospital four x. Low residue diet,
6MP, Colazal , Cortifoam enemas,
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 3/16/2009 10:14 PM (GMT -6)   
Meant to include some speedy recovery vibes to our brave JBlue 65. So glad you are on the path to a healthy life.
Kathy
Daughter,15 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Prevacid, Flagyl, Prednisone- 50mg to 0, 4 major flares '08.Hospital four x. Low residue diet,
6MP, Colazal , Cortifoam enemas,
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal


mollymcbutter
Regular Member


Date Joined Mar 2009
Total Posts : 130
   Posted 3/16/2009 11:15 PM (GMT -6)   
Thanks for the advice Katmom.  I am slowly finding my way through this.  I am looking for all the information about 6MP that I can gather, as I am to go on it in a couple of days...MollyMcB
Katmom said...
MollyMc Butter: Just go to the "new Topic" area and write what you want in the subject line--just like you see on the main page. Then write your questions and comments. I think you would benefit from lots of reading of what is already out here. Just scroll thru the pages(top right), and you will see the questions and comments from our smart group. We try not to go off topic from the original poster's requests. Sorry to have just done that. Good luck!


mollymcbutter
Regular Member


Date Joined Mar 2009
Total Posts : 130
   Posted 3/16/2009 11:21 PM (GMT -6)   
Katmom, I was just reading your blog about your daughter having UC.  I also was diagnosed at the early age of 17 and here I am 40 years later.  I also take Colazal and for the first time stepping it up and am supposed to start on 6MP in the couple of days.  That has me a little freaked out (well maybe a lot freaked out) I am so susceptible for medication making me sick.  I am hoping that will not be the case.  I have to try to put my brave hat on and try to move forward.  I have been fortunate for a great number of years.  Good luck to your daughter and hope she is doing alright.  I know what it is like at that age to go through this stuff...MollyMcB
Katmom said...
Meant to include some speedy recovery vibes to our brave JBlue 65. So glad you are on the path to a healthy life.
Kathy

 
***Molly -- just click on the "New Topic" button to start a new topic.

Post Edited By Moderator (Lonielane) : 3/17/2009 7:21:11 AM (GMT-6)


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 3/17/2009 8:19 AM (GMT -6)   
Wow, JBlue, that was a fast one! Glad to hear you are on your way to better health. Take care and keep the updates coming...sending all my healing strength vibes to you!

Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 

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