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Learntoadapt
New Member


Date Joined Feb 2009
Total Posts : 19
   Posted 3/14/2009 10:12 PM (GMT -6)   
My UC is somewhat under control right now but I am having some other crappy problems. My eyes have dried up since my diagnosis in 8/08. I know Iritis is a symptom of UC but what about dry eyes. My mouth also feels dry at times. Has anyone else had this problem?
Diagnosed with Proctitis in 8/08 with additional inflammation by the appendix (whatever that means, sounds like it is more than proctitis)

Colazal 3x3
probiotic
fish oil
multi-vitamin
SCD since 9/08


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 3/15/2009 1:08 AM (GMT -6)   
for sure.....I'll be seeing a rheumatologist next week....I'm suspecting I might be on the same path as my sister who has Sjogren's.
 
Regarding dry mouth, I have found some toothpastes to exacerbate it...


q


*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 3/15/2009 2:10:17 AM (GMT-6)


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 3/15/2009 6:03 AM (GMT -6)   
I had a streak last year where my eyes were drying up real bad. Went to Opth. just to get them checked. He said they looked fine. It just disappeared after a couple of months. I used some eye drops for moisture sporadically and it helped somewhat.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 3/15/2009 6:50 AM (GMT -6)   

Definitely treat the dry eye with OTC drops made for dry eye.  I used Refresh both the day and the night version when I had a bout of dry eye.  They worked like a charm.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/15/2009 7:01 AM (GMT -6)   
Dry eye is an extra manifestation of UC according to the CCFA website. I was diagnosed with Dry eye a few years ago. In the beginning they used to be really bad but I started using Dry Eye drops and now I only use the drops as needed. I personally like Systane or Bausch and Lomb. Go have your eyes checked first though before assuming that it's dry eye. Also ask your doc about the possibility of it being Sjogren's.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Learntoadapt
New Member


Date Joined Feb 2009
Total Posts : 19
   Posted 3/15/2009 1:09 PM (GMT -6)   

Thanks for the replies.  I did meet with the eye Dr on 2 occasions.  He stated that my eyes are a dry but did not diagnose them.  He told me to get more sleep (thanks for the help).  Sometimes the dryness turns to pain, grittiness and blury vision.  It is the most annoying part of this disease so far.  It effects my sight along with my concentration.  I thought I might have Sjogren's so I made an appt with a Rheumi in April.  I know Sjogren's is more of a female disease but I can't think of anything else it would be.  I really don't feel like taking on a new disease but I need some answers.

Thanks,

aaron


Diagnosed with Proctitis in 8/08 with additional inflammation by the appendix (whatever that means, sounds like it is more than proctitis)

Colazal 3x3
probiotic
fish oil
multi-vitamin
SCD since 9/08


quincy
Elite Member


Date Joined May 2003
Total Posts : 30596
   Posted 3/15/2009 3:53 PM (GMT -6)   
Hi...men and women can have the same diseases....but for some there is a likelihood for one sex to have more than the other. I had a liver specialist state that because I was female, it was unlikely that I had PSC even though it was suspect. I stated that I don't put stock in those stats because it won't change what's actually happening in my body. Guess what? I have PSC and/or PBC (which affects more females than males).

Regarding Sjogrens...I mentioned it to a few doctors because of my eyes, and they said..just use more moisture drops. So, basically, the treatment will be the same...it more or less just boils down to that knowing gives it a name.

Bauch and Lomb moisure and Systane is what I use, but every morning upon rising I use the Allergy drops to ease the redness and the crepy wrinkled conjunctiva. ugh.

quincy
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Learntoadapt
New Member


Date Joined Feb 2009
Total Posts : 19
   Posted 3/15/2009 4:40 PM (GMT -6)   
No conjunctiva here.  Just the constant grittiness.  I also use Systane and it does help a little bit.  This disease is ever changing!

Diagnosed with Proctitis in 8/08 with additional inflammation by the appendix (whatever that means, sounds like it is more than proctitis)

Male-33 yoa
Colazal 3x3
probiotic
fish oil
multi-vitamin
SCD since 9/08


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 3/16/2009 8:14 AM (GMT -6)   
Dry eyes/mouth are a common side effect of Colazal!!!!!!!!!! Be sure to drink plenty of water throughout your day + definitely try moisturizing eye drops, such as Tears Naturale.( Do not go for redness reducing drops, though, because those constrict the blood vessels.) / Old Hat (nearly 30 yrs with left-sided UC; taking Colazal since 2003)

Learntoadapt
New Member


Date Joined Feb 2009
Total Posts : 19
   Posted 3/16/2009 2:51 PM (GMT -6)   
I am hoping that Colozal is the culprit.  I do take in alot of water. 
Diagnosed with Proctitis in 8/08 with additional inflammation by the appendix (whatever that means, sounds like it is more than proctitis)

Male-33 yoa
Colazal 3x3
probiotic
fish oil
multi-vitamin
SCD since 9/08


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 3/16/2009 3:43 PM (GMT -6)   
If you have some inflammation in the cecum area (appendix), you should probably be taking Asacol instead of Colazal because Colazal is said to dissolve farther into the colon-- so it's more effective on the left-side. / Old Hat

Learntoadapt
New Member


Date Joined Feb 2009
Total Posts : 19
   Posted 3/16/2009 6:20 PM (GMT -6)   
Asacol screwed with me the first time I took it (leg cramps, frequent urination) so I switched. 

Diagnosed with Proctitis in 8/08 with additional inflammation by the appendix (whatever that means, sounds like it is more than proctitis)

Male-33 yoa
Colazal 3x3
probiotic
fish oil
multi-vitamin
SCD since 9/08


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 3/17/2009 6:29 AM (GMT -6)   
Sorry you had to switch, but the reason for it is interesting. 5ASA meds can definitely impact on the kidneys, which apparently did not impress most doctors 'til recent yrs. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
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