kops2da...response as to not hijack thread

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quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 3/15/2009 5:24 PM (GMT -6)   
kops2da said...

Thanks!  Somehow I just didn't think you would go entirely without your rectal meds - see how I am learning about you.  I am sorry you have not been feeling well in general too.  I do know how stress and feeling unwell seems to go around and around with UC symptoms, etc.  Sometimes I think how "funny" it is that what I see in my toilet dictates how I "feel" all day - mentally and physically!! 

Tomorrow is my day with the doctor.  Hope he is patient with me and listens and has time to answer all my questions.  I am writing them down.  I had such a good day yesterday and then this morning woke up with a little nausea and yucky - oh well!  Have a good Sunday!

ElaineNY

I appreciate your bringing it to my attention...and yes, I'd never be without rectal meds.
I hope your appointment with your doc goes well.  I think keeping focussed on what you'll need and willing to try and request the steroid supps is about the best option.  Remember, you can use them a few times a day.  Writing stuff down just makes it more efficient....
I agree that the one day good, next day not so good is like a teaser.  Just makes the not good day much worse.  The nausea thing...ugh....I hate that the most, and I've had it way too often in the last few months with this flare, which makes sense that the inflammation is pretty much staying low in the rectum.  A good thing, but with more of the nausea/spasming symptoms. 
Of course, the next immediate thing that's to my mind is liver related.  I do have to change my diet a bit methinks.  The fact that I'm not breaking down B12 and have low vitamin D is probably liver related...so even though enzyme ## are good, I'm sensing something else is awry.  I'm thinking I should see the doc if by the end of the month I'm not feeling better....I'm going to ask for a look-see.  I'd take a c-scope over that any day.  Regardless...I'm not liking this phase..lol!
I'm not bad today..busy week ahead.  Tomorrow,  I see a friend/client who will be ultimately dying of cancer .  I'm not experienced in this matter even though she's been amazingly focussed to get well and never shows her emotional side except to be positively optimistic.  Physically, she's a rail....not much left, and with her in this state (from how I understand from her daughter), apparently, the cancer has spread to her brain...., The point...I don't know what to say, etc.  I always feel I need a solution....a huge disadvantage. 
She's a family friend, was with my mom when she died, I do her family's hair as well, two of which will be tomorrow...and I'm not dealing with this too well.  I do see the daughter before, so maybe talking will help....the daughter/family doesn't talk much about "it"...so I'll try to do more listening than talking I guess.
Any suggestions will be greatly appreciated since your husband has lung cancer treatments, etc, and you've dealt with family, friends and others.  Even though I've had family with cancer, my dealing with it has been from an emotional and physical distance until close to the end...somehow dysfunction makes it much easier.  This time, it's not an option.
Thank you as always,
quincy xx
 


*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/15/2009 7:05 PM (GMT -6)   

This is my third attempt to write this and lost it each time - clicking the wrong thing!

Anyway, I understand about visiting anyone terminal - I never know how to act.  Some like to talk - some like to listen.  My Mom liked to reminice about old times.  My husband is in remission for about 10 months now but could change anytime - we keep our sense of humor and I called him Mr. Clean when he lost his hair.

If you haven't seen our blog..... http://our-trip-fighting-lung-cancer.blogspot.com/

Good luck to you and hope you feel better soon - yes, nausea is the WORST!!

I will report on my doc visit tomorrow night.  Thanks for caring!

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008
Tried all mesalamines and enemas, Canasa, etc.  Colonoscopy 10/28 showed only few cm. left to heal -hydrocortisone enemas 12 days - much worse. Cannot tolerate mesalamine!
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 Feb. 21 - down to 20 mg. - no blood, no pain, no bad side effects so far. Starting 6-MP Feb. 28 along with 20 mg. prednisone. March 9 - spoke too soon - bleeding returned.
Probiotic Align, Prilosec for GERD
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30984
   Posted 3/16/2009 12:15 AM (GMT -6)   
Thanks Elaine...I'll keep you posted as well.

quincy
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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