So far so good! He liked my progress and then said "we have to get you off that prednisone". I told him I liked it and he said "don't get used to it" - I told him I was joking and that I wanted off when possible.
So, I am now taking 20 mg. tapering from 40. He said two more weeks on 20mg. and then down to 15mg for two weeks and call. I take 50mg. of 6MP and he will increase that to 75 mg. after I am on prednisone 15mg for two weeks to see how I do. He defined remission (when I could get off prednisone AND 6MP) as free from symptoms and back to my "regular" BM schedule and NO blood - he stated that I might always have some mucous off and on. I still have blood streaked mucous but no real bleeding and rectal discomfort.
q- you would be proud of me when I ask about suppositories and he said "good idea" and prescribed Anusol 25MG for every night. He said that woudl hopefully hurry the healing along!
Knee surgery is on hold. He said unless I HAD to have some kind of surgery - especially joint surgery it would "probably" be ok but there is more risk of infection, etc. So, tapering prednisone, raising 6MP until in remission and then he could take me off the 6MP for surgery and raise prednisone if needed. Got all that! LOL
I am happy to say my symptoms are decreasing and as he said "you will know when you are in remission by the way you feel and how your system is working".
I see the NP in June and call anytime in the meantime with questions, etc.
I was happy that I had only gained 2 lbs. on prednisone. I ask if my moonface would go away and he said yes!! (when off the steroids)
He is a good doctor from India many years ago and he even liked my shirt LOL - I collect frogs and wore my lucky shirt with frog in rhinestones on front.
Senior - New diagnosed with proctosigmoiditis - 6/2008
Tried all mesalamines and enemas, Canasa, etc. Colonoscopy 10/28 showed only few cm. left to heal -hydrocortisone enemas 12 days - much worse. Cannot tolerate mesalamine!
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
Feb. 21 - down to 20 mg. - no blood, no pain, no bad side effects so far. Starting 6-MP Feb. 28 along with 20 mg. prednisone. March 9 - spoke too soon - bleeding returned.
Probiotic Align, Prilosec for GERD