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Dr-A
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Date Joined Jul 2006
Total Posts : 2105
   Posted 3/16/2009 9:11 PM (GMT -6)   
Think I may be allergic to gluten. Attended a nutritional seminar this weekend and muscle tested positive for it. Gonna give it a two week elimination, and strong day dose of gluten and see what type of reaction I get. Guy also pinned my chronic achilles tendon problem back to me having an adrenal problem...... I told him I had colitis after that and the prednisone had killed the healing of my tendon. Also killing my adrenals.


Any anti-gluten eaters out there? I know elimating it isn't bad anyway, just a little complicated figuring out how to substitute.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/16/2009 9:26 PM (GMT -6)   
I eliminated it in August. I felt worlds better right away and for a while, but am in a mild flare again now anyway. So no miracles...

I've cheated a couple of times (usually a little birthday cake), never noticed an immediate reaction, frankly. Intolerance was revealed by a blood test. I didn't eat a lot of wheat products anyway, since I try to stay low-carb to lose weight (and succeed with that).

But over the months I have discovered there are good corn pastas, and potato flour works for coatings and such. There is wheat-free beer although Heineken is apparently low gluten too. Fritos, potato chips, tortilla chips are a treat I can still enjoy now and then. The gluten-free breads taste awful and have bad texture, so I pass on those. Sushi is a favorite, I bought wheat-free soy sauce at the organic food store.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 3/17/2009 6:44 AM (GMT -6)   
I emailed my GI office. Have a visit with them next week. Another Golimumab injection. Asked them to do a Gluten test on me then too. Curious on what that will yield, and also curious what their response will be to me asking, lol. "Hey, some guy put gluten on my chest and my arm basically went limp so test me already, lol"

Anyway, I picked up and learned a ton of stuff getting ready to implement. Not so much to target UC, but to target some other things not functioning to well. If I get a side affect of some good UC changes I'll pass them on. Good thing is the doc said he would help me fight my UC for free, so it puts another tool in the belt against this.

You ever tried making your own bread with some of those mixes?
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 3/17/2009 7:35 AM (GMT -6)   
Today is actually day one hundred of the gluten diet for me. I started out gluten free for about 60-70 days, then i went "low gluten". I still watch it closely and avoid gluten when possible.
Rice pasta is not bad ( least the brand my local store carries) you just have to cook it longer, about 12 minutes. Some kinds of rice crackers are okay. But my favorite substitute.... corn cakes for pan cakes. I actually liked them better. Look on the package of corn meal you buy, recipe should be there. If not let me know and I'll email you the recipe. Make sure you buy 100% corn corn meal though. THey even hide wheat in there sometimes.
Just another note.... Wheat is even hid in some ketchups, most rice dinners, some corn chips.
http://www.peter-thomson.co.uk/messageboard/coeliac-celiac/ulcerative_colitis.htm this is a good site for info. The threads along the side are very informative.


 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09**down to 17.5 mg 1/22/09
**down to 15 mg of pred 2/3/08**down to 12.5 mg of pred 2/13/09**down to 10 mg 2/26/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 3/17/2009 9:36 AM (GMT -6)   

I'm mostly gluten-free - actually mostly grain free now. It's a major switch from the typical Standard American Diet, but there's plenty to eat and a GF diet is very healthy. I've found I feel my best when I don't try to "substitute" but eat naturally gluten free foods... lean meats, eggs, healthy oils, low carb veggies, nuts, nut butters and fruits.

Check out www.celiac.com for lots of good info and a supportive forum.



Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3670
   Posted 3/17/2009 11:39 AM (GMT -6)   
 
you can get prepared cookies, breads and other food items gluten free and approved by the SCD book. I can not have corn, rice bothers me too, so it's almost being grain free for me.
It's basically how my parents cooked, all natural and nothing processed. I was raised with no artifical colors or flavors and low, low sugar. My parent were ahead of their time back in 1977. We belong to a co-op so my mom could get nuts and food by the bulk. I guess what I miss the most is someone cooking for me, I know that sounds selfish, but it's easier to plop down at the table ready to eat then to prepare it. Often when I prepare it doesn't taste as good as having someone else prepare it for me...you know how that goes. Anyways, the above website you can get good cookies that are gluten free, I'm looking forward to trying them.
I will be tested next month for yeast sensitivity, yeast allergy, food allergy, yeast in urine too, I heard this is an important test. Also, I want to be tested for hypothyroidism, lyme just to rule these out. But if you ask me it's a bacterial upset in the colon b/c when I'm on antibiotics my stools are pretty good and inflammation is gone. I'm starting PREbiotics as well as Probiotics and see if that helps with the bacteria in the colon.
 
I'm 15 day sof 4.5mg of LDN, I can't tell you how good I feel mentally and physically. I'm hoping it's the LDN not my YAZ birth control. I can't wait to get off  YAZ as soon as I get rechecked for the hyper-displacia.
But like Dr. A, I was tested for celiac and it came up negitive but I know I can't do gluten foods, nor corn, rice, oats.
 
Very mild left sided (could have fooled me with the "mild")  UC. STARTED LDN ON 1/25/09. Supplements:  Cod Liver, Probiotics, multi whole food vitamin, olive leaf extract.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 3/17/2009 1:04 PM (GMT -6)   
Dr-A said...
Think I may be allergic to gluten. Attended a nutritional seminar this weekend and muscle tested positive for it. Gonna give it a two week elimination, and strong day dose of gluten and see what type of reaction I get.

You should be aware you probably won't notice any dramatic improvement in only two week's time. From Dr. Mercola's site:
 

Unfortunately, most people don't feel better immediately after eliminating gluten from their diets as it may take 30 to 60 days for the inflammation to subside, and up to 9 to 12 months for the lining of your small intestine to heal. 

On rare occasions an individual may experience significant improvement within weeks of eliminating gluten from their diet.  But in other cases people may feel considerably worse upon initially starting a gluten free diet.  This is usually due to other unidentified food allergies and food sensitivities -- a problem that plagues about 75 percent of the population.  In fact, food cravings can often serve as a gauge of food sensitivity. Craving dairy products or breads, for example, can be an indication that you are sensitive to that food, especially if you crave it but then feel worse after eating it.

For most people with gluten intolerance, by around 6 to 9 months of being gluten free, noticeable physical and mental/emotional changes will have taken place.


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3670
   Posted 3/17/2009 1:10 PM (GMT -6)   
Well I have to say just being off it two days, yesterday I was feeling so sick like I had the flu, very week and slept all day. Today I'm just fine, still gluten free and yes I know I've heard it takes a long time for the healing process to beging. I remember reading Sheldons posts about the Vitamin E enema and him doing it for years or so, but he's in remission. I'm not focusing on a year, that's a long time, today is today and I will finish that out. Tomorrow a new day begins right? I'm really trying and so far, I'm able to hold back the cravings for bread. I ordered GF cookies from the SCD website and hopefully my body won't feel deprived of bread/flour/pasta and so forth.

Very mild left sided (could have fooled me with the "mild")  UC. STARTED LDN ON 1/25/09. Supplements:  Cod Liver, Probiotics, multi whole food vitamin, olive leaf extract.


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 3/17/2009 6:35 PM (GMT -6)   
princesa said...
Dr-A said...

Think I may be allergic to gluten. Attended a nutritional seminar this weekend and muscle tested positive for it. Gonna give it a two week elimination, and strong day dose of gluten and see what type of reaction I get.

You should be aware you probably won't notice any dramatic improvement in only two week's time. From Dr. Mercola's site:



Unfortunately, most people don't feel better immediately after eliminating gluten from their diets as it may take 30 to 60 days for the inflammation to subside, and up to 9 to 12 months for the lining of your small intestine to heal.

On rare occasions an individual may experience significant improvement within weeks of eliminating gluten from their diet. But in other cases people may feel considerably worse upon initially starting a gluten free diet. This is usually due to other unidentified food allergies and food sensitivities -- a problem that plagues about 75 percent of the population. In fact, food cravings can often serve as a gauge of food sensitivity. Craving dairy products or breads, for example, can be an indication that you are sensitive to that food, especially if you crave it but then feel worse after eating it.

For most people with gluten intolerance, by around 6 to 9 months of being gluten free, noticeable physical and mental/emotional changes will have taken place.


Yeah, the purpose initially is not so much to look for improvment. More to identify if I have a sensitivity or not. General rule for us to test some of the allergies is to give it a couple weeks to get out of the system then overload yourself with it. Any sort of reaction in the following 72 hours other than a normal day would indicate a sensitivity, backup the muscle testing, and give me something good to look at against the blood test I'll get on Monday.

So...... the GI np called today and was wondering why I wanted a gluten test. I told her my reasoning and that no one had ever check or even asked to check it before. They call back a little later and conferred my blood test for Monday, and decided they wanted to add in an endoscopy and biopsy, lol. I was like, "Uh, why?" Evidently to check for celiac sprue. I declined. I really don't need a tube stuck down my throat and cut on, just because I brought up a simple blood test. shocked

therearemiracles said...
https://www.digestivewellness.com/


you can get prepared

But like Dr. A, I was tested for celiac and it came up negitive but I know I can't do gluten foods, nor corn, rice, oats.


I read that can happen. Get neg. on blood but can still have the sensivity. Always better to trust the body than a test.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 3/18/2009 7:53 AM (GMT -6)   
I also tested negative for a gluten allergy. WHen I asked my GI why I was doing better gluten free then?, he said I was probably gluten intolerant, not allergic. I guess there's a difference. LOL
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09**down to 17.5 mg 1/22/09
**down to 15 mg of pred 2/3/08**down to 12.5 mg of pred 2/13/09**down to 10 mg 2/26/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3670
   Posted 3/18/2009 8:38 AM (GMT -6)   

no gluten for 3 days but a little more sugar than normal yesterday, I had two eggs in the morning too yesterday, baked pork chops and cabbage dinner (no meat) for dinner and this morning I was dead on the toilet in pain, pain and diarreah. Mabey it's eggs, which I know I've scored low sensitivity to them by a blood test. I can't figure it out what is giving me the ok poops to the terrible poops. The day before I had ok morning, I had two pieces of rice bread, pork chops, can spinich, sunflower seeds (at seperate times) dinner what steamed chinease food with rice and a egg roll. No sugar really that day but a 12oz Pepsi. Also, Tension Tamer tea really helps my gut and I had one cup the day before as well.

I'm back today with the rice bread and tension tamer tea so far and see what happens tomorrow. I just want answers, I don't see this allergist for another month! Now I'm thinking bacteria not so much yeast problem b/c of the sugar I had yesterday.


Very mild left sided (could have fooled me with the "mild")  UC. STARTED LDN ON 1/25/09. Supplements:  Cod Liver, Probiotics, multi whole food vitamin, olive leaf extract.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 3/18/2009 8:41 AM (GMT -6)   
I'm amazed more folks with digestive issues aren't tested for celiac disease. I also had to ask for it. I've had the endoscopy/biopsy and blood tests done and everything came back negative, but I know from experience that I feel much better gluten free and even grain free. Ultimately, I doesn't really matter what all the tests say... results are the bottom line.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 3/18/2009 4:22 PM (GMT 0)   
My test showed I was not allergic, just high on the scale of intolerant, something like 800 on a 1000 scale.

I did feel better than I had in ages within the first week, so remember that studies and stats do not determine your own response!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, trying 15/20 mg. Appt 3/6 to discuss Humira, etc.   


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 3/18/2009 11:30 PM (GMT -6)   
therearemiracles said...
Now I'm thinking bacteria not so much yeast problem b/c of the sugar I had yesterday.


What do you mean by that? Also, you may not have eaten much refined sugar, but the rice, egg roll and pepsi has high sugar content. Was the Chinese food/eggroll homemade, or store bought? Lots of added preservatives/yeast in that stuff, if so.

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3670
   Posted 3/19/2009 8:54 AM (GMT -6)   

Hi Kim,

How are you doing on your LDN, good still I hope? I had a better morning today not as severe and when I woke up I didn't run to the toilet as normal, it was about 5 min delay and then I went. Yesterday I didn't have eggs and normally I would have eggs 3-4 times a week.

If I wanted a pop and it's really not often, just sometimes I just crave a pepsi, is one that is ok to drink that wouldn't be as bad for me?

Maybe I should look at spriters pops.

Thanks,

Linda


Very mild left sided (could have fooled me with the "mild")  UC. STARTED LDN ON 1/25/09. Supplements:  Cod Liver, Probiotics, multi whole food vitamin, olive leaf extract.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 3/19/2009 9:03 AM (GMT -6)   
All sodas are very high in sugar and diet drinks have artificial sweeteners that can cause health problems. Best to wean yourself off them and try a fruit juice spritzer instead.

Dr. Mercola had this to say about sodas:

Avoid all soft drinks! I don't ever advocate drinking any soft drink for any reason as they have no redeeming value whatsoever. Both regular and diet sodas are potent contributors to a number of health challenges. For example, did you know that for every can of soda you drink per day, your risk of obesity increases by 60 percent! This is one of the easiest changes you can make that can significantly improve your health.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 3/19/2009 5:33 PM (GMT -6)   
a skin test would be much more accurate than the blood test for the gluten, or any food testing. The blood test only shows if you have a full blown allergy, whereas a skin prick test will show a sensitivity, an intolerance or an allergy. Even if you have none of these staying away from gluten can still be beneficial because gluten proteins are very difficult for the body to digest. Best way to stay gluten free is not to substitute as someone else mentioned, but rather to simply avoid. most premade and prepackaged gluten free things are gross. Do it from scratch and the results are so much better.

Gluten Free Baking Classics by Analise G. Roberts is amazing. I even used its recipes for my cake decorating class final. just be aware that no gluten free baked goods will be very moist.

http://glutenfreegirl.blogspot.com/ is full of gluten free recipes.

Tinkyada is the best gluten free pasta. hint, only make what you plan on eating that night. It does not reheat well at all, gets all mushy.

Glutino is excellent for everything from cookies to crackers. very similar to the real thing.

You get used to not eating bread after about a week. But be wary at restaurants because a lot of seasonings have gluten in them. Ask for a gluten free menu most have them. Some stores even have gluten free shopping guides, i know Trader Joe's does. you'd be surprised what kind of things have gluten in them.
diagnosed with UC Dec 2006 at 22
diagnosed with IBS at 15
weekly accupuncture, probiotics, l-glutamine, and a combo of digestive enzymes. Staying gluten and dairy free as much as possible to avoid hard to digest proteins.
allergic or intolerant to all 5ASAs, sulfa and 6-mp

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