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teacher1980
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/17/2009 12:54 AM (GMT -6)   
Hi there,
I was diagnosed with ulcerative colitis in Aug 08. Since then I have been on three different types of medication. The last two weeks have been terrible. I haven't been able to work, I have severe cramps, cant sleep, am dry-retching and I am losing blood like there's no tomorrow.
 
I am now noticing lots of white-ish/yellowish stuff in the blood too. Can someone tell me what this is? I saw my specialist yesterday and he wants to do another camera up the bum thing in two days. He took blood tests, but I called today and they said the doctor would have to discuss my results with me when he sees me next.
 
I am concerned. I know so many of you have experienced horrific times, but as a fairly new person to it, I am really worried.
 
Thanks if anyone can be bothered getting back to me.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30408
   Posted 3/17/2009 1:19 AM (GMT -6)   
Hi..welcome to the forum...no bother at all to answer a few questions.


It sounds like mucus and/or pus mixed up in the blood.

What medications were you on over the past year?

What medications are you on at this time?

How many times a day are you having bms...is it diarrhea?

Yes, I had losts of ups and downs the first few years with flares and trying to get it all figured out regarding meds..etc.

Hang tough...hopefully, you'll get your answers soon if it's anything over and above the norm of a UC flare.

quincy
*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Southernbelle
Regular Member


Date Joined Feb 2009
Total Posts : 33
   Posted 3/17/2009 6:02 AM (GMT -6)   
Hi Teacher1980....I was diagnosed in July. It really is scary stuff in the begining. When I started seeing the mucus I was so afraid it was pus but after tests was assured it was just mucus which is the way the colon protects it's self when inflammed. Unfortunately it's just part of this DD as is the blood. I have only been through 1 major flare,and it's no fun at all but as you learn what meds work, what foods to stay away from and such it will get better. It is true that some people don't get better and as a last resort have to resort to sugery. That was what scared me most in the beginning. It's only a small percent that are so unfortunate.
Hang in there. It will deffinately take time to figure it all out and might get a little overwhelming at first as you learn that everybody is different in how UC affects them. It will take a bit of trial and error but you will eventually discover what your body needs to get well.
These guys are great and very knowledgeable. Hang in there and things will get better.
58/F/Hairdresser
Dx leftsided UC July 08.Can't handle any masalamine or 6-MP
Been on steroids twice. Do well on those.
Suppliments: Aloe MPS, probiotics, enzymes, C and E, Curcumin,CoQ10,Grapeseed extract, Selenium, Cal.-Mag w/D, Multi., Vit.E enemas, Three-lac
Meds: mild blood pressure. Prilosec, Wellbutrin, steroid suppositories
 
 


Southernbelle
Regular Member


Date Joined Feb 2009
Total Posts : 33
   Posted 3/17/2009 6:03 AM (GMT -6)   
P.S....You are no bother. That is what we're here for. We all care and have all been through it, too.
58/F/Hairdresser
Dx leftsided UC July 08.Can't handle any masalamine or 6-MP
Been on steroids twice. Do well on those.
Suppliments: Aloe MPS, probiotics, enzymes, C and E, Curcumin,CoQ10,Grapeseed extract, Selenium, Cal.-Mag w/D, Multi., Vit.E enemas, Three-lac
Meds: mild blood pressure. Prilosec, Wellbutrin, steroid suppositories
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 3/17/2009 6:11 AM (GMT -6)   
Hi and welcome to Healingwell :) Yes, being newly diagnosed with this is a scary time indeed! Even though I've had this for a while now I still remember the early days like they were yesterday.

There is one medication that we take that can turn the mucous yellow and that is Colazal. Is this one of the meds you were on? If not, then yes it can be pus but the white stuff is definately mucous. Increased mucous production can be from the foods you eat. Your colon is in already agitated state and some foods tend to aggravate it. What we can't say because we all respond differently to different foods.

Are you on any probiotics?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


teacher1980
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/17/2009 3:43 PM (GMT -6)   
Thankyou everyone for getting back to me. I am currently on suppositories - prednisolone and have been taken off salofalk enemas and colifoam gel. Knowing that other people have all been through what I am currently going through makes it alot easier to deal with.
Today I am feeling so much better than I have been feeling previously. Hopefully the specialist can give me more answers tomorrow.
Thanks again

Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 3/17/2009 4:00 PM (GMT -6)   
Hi teacher welcome!  Are you only on the prednisone?  No oral Solafolk with that?  Being newly diagnosed is definitely a nerve-wracking time.  Never feel bad for asking questions.  We've all been there.  Glad to hear that today was a better day. :)

Mamas Boys
Colazal, Azathioprine, Remicade
Culturelle, MultiVitamin, Folic Acid, Viactiv
Status: Remission!!

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